• Starting chemo...

    Asked by kat1113 on Thursday, February 20, 2014

    Starting chemo...

    I get my port put in next week and start chemo the following week. I will be getting carboplatin and taxol. Anyone take this combo and how did you do?
    Also - any suggestions on where to find hats/wigs/scarves etc for when my hair is gone. I'm getting it cut short today so my 2.5 yr old can be part of the transition so she hopefully won't be scared of mommy with no hair. The anxiety is at an all time high - praying I can get through this!!!

    10 Answers from the Community

    10 answers
    • Judt1940's Avatar
      Judt1940

      American cancer site TLC hats, scarves. Brochures at Dr office. I ordered on line. Hair started coming out within 2weeks after 1st chemo. Had head shaved. Had ordered hats ahead of time. Had this chemo combo, pretty standard. First treatment rough, Dr adjusted amount. No nausea (get your scripts filled). Had severe diarrhea/body pain. 6 chemos later I've handled it well. No walk in park, you can do.

      about 6 years ago
    • pdparker's Avatar
      pdparker

      I also like the TLC scarves. I've also gotten quite a few from English Traditions (an etsy member). Just google English Traditions chemo scarves and it'll give you a direct link. I like the fit of those scarves.
      You have a two year old? Oh darling, you are so young. I have 13 grandchildren all the way down to 3 months. The three Six-yr-olds laughed at me. I told them medicine was making Nana's hair fall out. The 2-1/2 yr old (who talks a lot for her age) said, "what happened to you head?" The 9 and 10 year olds seem to have a grasp that something is going on with Nana more serious than just medicine making her hair fall out. I have 5 wonderful children (2 are twins). All the couples were fertile at the same time. Lol. But I love it, love it, love it. They all keep me happy!!
      God bless you and keep journaling!
      Patsy

      about 6 years ago
    • glam's Avatar
      glam (Best Answer!)

      I totally understand your anxiety and fears.....especially with so young child at home....so you need to take care of her emotions in addition of yours.....but please be sure YOU CAN!!!! you are much stronger than you think.....YOU CAN!!! God has never promised us it would be simple and/or easy but He said it would be possible....with faith and fight.......Please be aggressive against this stupid cancer and for each side effect remember the main goal which is to definitely kill this cancer....I have bought my wig in Brazil but I could see a very good ones and at a low price at www.dhgate.com.....take a look and hope you find the one that make you feel comfortable with....I wish you a very successful treatment and with your permission I will keep you in my prayers....God bless you, your family and continue blessing all of us

      about 6 years ago
    • avonlea02's Avatar
      avonlea02

      I understand where you are coming from, as so many here do! I also had carbo and taxol as my first chemo agents. Ultimately, I found them all to be tolerable. Not pleasant, but "doable". My side effects got more pronounced as I went on. I found that my "day 3-4" was hardest. I felt like I had the flu. The meds now really help with the nausea, so, other than feeling "queasy", I did not feel awful in that regard. That "flu feeling" was the hardest, for me...as was the exhaustion.

      Taste changes are big with chemo. You have to find what food you can tolerate; nothing tastes "normal". My first chemo round, I had a hard time eating, and lost a lot of weight. This time around, I gained a lot of weight. Not sure why. I find sweet things to be hard to take (which is amazing, since I had a huge sweet tooth!). I can't even stomach the though of a peanut butter cup - yuch! (didn't used to feel that way!)

      I've had three bouts of cancer in the last 2 years. Two have been ovarian cancer, and this last time, I just finished another 8 cycles of carboplatin in January. I am now NED (and SO grateful!) This time, I worked full time, and it was hard. There were days I just could NOT go in. It is very hard to work while getting chemo. If/when it returns again, I won't even try next time. I am BRCA positive, and, as it returned within a year, it is likely to return again. But I'm a fighter! It won't, if I can help it!

      With Taxol, my biggest problem was neuropathy. Mine got to a point, over time, that I could not feel if I was holding something in my hand. I had to give up crocheting because I couldn't feel the yarn in my hand. I couldn't feel small objects, like paper clips. My feet were numb. But I could still walk! And, over time, after the Taxol was done, the neuropathy gradually got better; from about 90% down to around 10%. I am grateful for that.

      Re: hair, I had my long hair cut and donated it to Locks of Love. Then I had someone shave my head. For me, even that felt "prickly", like little bee stings all over my head, so I learned to "Bic" it. I got to where I could do it in the shower without a mirror and never cut myself. You learn, because you have to. And it's okay!

      I was worried when I was bald that my granddaughter (who was about a year old at the time) would be frightened by my bald head. I usually wore turbans and scarves and at times, took them off in front of her. She would look at me like, "Well, THAT'S curious!" and then go about her business. It never phased her.

      I found wigs to be uncomfortable. My "bald" period was during the summer when it was unbearably hot. I couldn't take that. I found the scarves and turbans to be far more comfortable. However, it is NOT summer, now!! The American Cancer Society gave wigs away to cancer patients. Check your local ACS. Also look into "Look Good Feel Better" through them for tips about make-up and how to look/feel more normal during this period.

      Sorry my answer is so long. I have a lot of history with cancer, and know it can be endured! We are in this together, and there is MUCH hope and love!! Write whenever you wish, and I hope I can help in some way. You'll be in my prayers, which I also believe are a huge help. Don't give cancer any advantage! Stay positive, joyful and laugh as much as you can!

      Linda

      about 6 years ago
    • cam32505's Avatar
      cam32505

      I had the same chemo as you. The taxol gave me an allergic reaction, so my treatment was stopped right away. They gave me some steroids and were able to continue my treatment. I had severe aches in my joints from day 3-7 after chemo. I was a little nauseous, but had drugs for that. As for the hats/wigs, my hospital had a wig loan program. I got my wig the same day I had my port put in, so I was ready when the hair came falling out. They also gave me a couple of scarves to wear.

      about 6 years ago
    • GypsyJule's Avatar
      GypsyJule

      I was treated with Carbo / Taxol also, and while chemo is no fun, it is something you get through. I agree with the others that posted - expect days 3 - 7 to be the toughest, but make sure not to overdue things the day after. You'll feel better than you expect, and it's easy to go a little overboard, thinking you will feel great! The joint pain and fatigue gets worse as treatments progress, but sooner than you realize, it will be behind you. Good luck to you!

      about 6 years ago
    • MPerrin11's Avatar
      MPerrin11

      Good luck Kat! I have several hats that I got here: http://www.cjhats.com This woman is a cancer survivor and makes all the hats by hand. They're super soft and comfortable (I like the slouch caps) and they're reasonably priced - most are about $12.

      Good luck on the port surgery and your first chemo. Hang in there, you'll get through it :)
      - Melissa

      about 6 years ago
    • kkelly111's Avatar
      kkelly111

      First thing to remember is that you are stronger than you think, staying positive and going in for chemo with a smile on your face will help a lot, remember chemo is the cancer killer. I never lost all my hair with this combo, but I lost all with Cisplatin (might of spelled that wrong). I found that wigs were really hot and itchy in Az so I went with scarves, you can go to utube for ways to wear them, there is a knack to tying them. Good luck on your journey

      about 6 years ago
    • LisaAnn's Avatar
      LisaAnn

      Good luck Kat. It's not as bad as you might think. The anticipation is sometimes worse. I did not get that sick from those drugs. Tired and achy for a couple days.....then your body rebounds. Your mind can play a great part in this ....... so keep telling yourself you will sail through it........that will help. Remember, when you're tired - take a rest (if you can with your 2.5 year old).

      I have worn a wig the whole time. Did not like the look of scarves/hats on myself. I have worn the wig almost a year now. I got it from Paula Young. paulayoung.com very affordable. I have had more compliments on my new "haircut" than I did with my real hair! It is itchy to start out with - but you get used to it. I just feel more comfortable with myself having some kind of hair on my head. Everybody has their own preference. Also, I could not shave my head .........I cut it very short - but just didn't have the heart to shave it. Again - personal preference.

      Getting the port in is a piece of cake. It has not bothered me in the least. Most people don't even notice it.

      I think the key to getting through chemo/cancer is surrounding yourself with positive people who support you. and, staying positive yourself. These blogs are a great sounding board - wish I would have found them sooner!! Best of luck to you!! Prayers to you.

      about 6 years ago
    • Ev1068's Avatar
      Ev1068

      Hello The American Cancer Society has programs in the hospital they donate wigs. Check with your Nurse coordinator. Also go on to Good Wishes website they send 1 free cap or scarf out to cancer patient s... I just received one. Also check your area for a program called Look good Feel better it is free and helps you with everything from skin changes to makeup and wigs.. Very very helpful. I am on the first round of chemo same as yours but for 4-5 hours. I am just starting to lose my hair 2 weeks to the day.. Neuropathy and being tired affected me the most... Its not the working tired it just all of a sudden comes on and the You need to rest.. I have not had a problem with foods.. Drink lots of water... I wish you the best and if you have any questions please feel free to contact me... Hugs, Evelyn

      about 6 years ago

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