• Starting Gemzar tomorrow as third round treatment. Any warnings about side effects? Any positive results with Gemzar?

    Asked by billwebster on Monday, October 17, 2011

    Starting Gemzar tomorrow as third round treatment. Any warnings about side effects? Any positive results with Gemzar?

    Did 3 months Cisplantin/Etoposide/Radiation with a slowed tumor growth result from March-May 2010. Side effects made me bed-ridden, renewed near normal activities by July 2010. Then, CT scans every two months. March 2011 scan showed renewed tumor activity in lung AND tumor on right kidney (now Stage IV), began 2nd round chemo with Carboplatin/Alimta (21 day cycles) until July 21st scan showed no improvement or slowing of tumor growth. No treatment in August or September to allow body to recuperate from side effects. Lung infection/Flu post-poned further treatment until Oct 18, 2011.

    6 Answers from the Community

    6 answers
    • KarenG_WN's Avatar
      KarenG_WN

      Hi Billwebster,

      Just wanted to let you know that while the WhatNext network is growing, we're reaching out to find some people with Gemzar experience to weigh in and give you some insight. We hope to find someone real soon who can help.

      We support you every step of the way!

      Best,
      Karen

      over 5 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      Hi Billwebster,

      Just wanted to circle back with you. I found someone on Twitter who has experience with Gemzar. He emailed me the following below. I hope this helps! If you have any questions please let me know and I can share his Twitter handle with you. I hope you're doing ok with it, please keep us posted.

      Thanks!
      Karen

      My wife is 42 yr old 3 yr survivor. Adenocarcinoma, never smoker, w/ egfr +t790m +PIK3CA.

      Had progression last August w/ brain mets. Surgery and rad to head. Then Alimta/carboplatin for 2 months. Switched to Gem/Cisplatin in December. Stayed on it until May. Great scans in Feb and May. Now on maintenance Tarceva and Avastin

      Wife did better on Gemzar/Cisplatin combo than any other treatment. Cisplatin was tough, but that's normal and can be mitigated with Emend.

      over 5 years ago
    • Richard's Avatar
      Richard

      Hi Bill. I'm currently on Gemzar as a preventative after a metastasis in December. I've experienced no unusual side effects. I take it 3 weeks on, 1 week off so by the third session I'll be tired for a few days but not wiped out. No nausea at all. Gemzar is normally tolerated well from what I hear from others.

      Good luck!

      almost 5 years ago
    • DavidandMarty's Avatar
      DavidandMarty

      Taking Gemzar everyweek and never have had any ill effects. Do get anti nausea meds with it however.

      over 4 years ago
    • Metalneck62's Avatar
      Metalneck62

      Had Gemzar as 2nd round of chemo, tolerated O.K., as said felt tired for few days, loss of hair, meds to help with eating, not to bad, no worse than the others.

      over 4 years ago
    • nanrex's Avatar
      nanrex

      I had a combination of gemzar with cisplatin. gemzar seemed to have less side effects. I did have to get two shots of neupogen due to very low white blood counts. the shots do cause quite a bit of pain in the bones. if you end up with a shot of neupogen, get a prescription for the discomfort. Also with the low white blood count you can't be exposed to germs. some fatigue is also involved. get lots of rest and eat as healthy as you can. it helps with the low energy. b vitamins seemed to help a little, but check with your onocologist about that. Best of luck

      over 4 years ago

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