• Starting Round 5 Taxol

    Asked by Canto on Sunday, April 14, 2013

    Starting Round 5 Taxol

    Please tell me that 4 Taxol after 4 rounds of AC is easier. My Oncologist feels confident that I will not experience nearly the side effects as I did with AC. He also said that since my CBC counts were so strong, I may not need the Neuplasta shot. REALLY hoping and praying this is true. I don't think I could stand another phase like the last 4.

    10 Answers from the Community

    10 answers
    • mdc's Avatar

      The experience is different for everyone.

      I was Stage I when I was first diagnosed and had 4 AC treatments. I'd be sleepy the day of the treatment. Twice I was able to work out the next day. I had the treatments whenever possible on a Friday or Thursday. I did not get sick. I did need shots following the first treatment because of low blood counts but not later.

      I was on Tamoxifen for almost two years before finding out the disease metastasized. I started Taxol/Avastin. I cannot remember how many cycles I had of Taxol but it was many. I was on a once a week for three week cycle with a week off in between. I did lose my hair but not all of it like I did when I was on AC. At some point I tweaked my knee and it seemed the Taxol enhanced the discomfort I felt. I noticed it at night more so than in the day. It was not awful. I did have a little neuropathy in my finger tips and the nails on my toes and fingers discolored and were thick. I was able to work and workout during this time. A friend of mine has arthritis and she experienced more knee discomfort while on Taxol. She received a higher dose every 14 or 21 days versus receiving the drug in smaller doses once a week. I don't know if that makes a difference or not.

      I stopped the Taxol as I was stable and started on Femara. In less than a year the disease came back and I started on Taxol again. I had at least two or three cycles before receiving the Avastin this time. I had a port put in and had to wait on the Avastin. I did not have the knee issue again but did lose my hair and had the same issues with the nails. I think it might have been with this round I lost my eyelashes. My eyebrows might have thinned but I did not lose them until much later on a different drug.

      Hang in there and listen to your body. Take it easy when you need to. This is your new normal. My hope is you don't feel as bad as you did previously on the AC. The AC is tough.

      over 5 years ago
    • JennyMiller's Avatar

      It is not that one is worse or easier -- they are just different. I was told that Taxol would be easier but by that time, I already some cumulative effects from the AC -- and It was not the "breeze" that I expected. However, it was doable and I got past it just fine. I did take the Claritin (not Claritin D) for the Neulesta Shot to prevent bone pain -- and it worked for me. It has been a year since my Taxol treatment and it is now just a distant memory. You will soon have it all behind you and will be able to move forward. Stay strong and positive!! I wish you the best.

      over 5 years ago
    • CountryGirl's Avatar

      I had four AC and four Taxol. AC made my heart race. The Taxol caused more neuropathy. It has been two years since I finished treatment and I still have diminished feeling in my feet and fingers. I fell many times on taxol. I fell down a flight of stairs; I fell on flat ground when I turned to wave at someone while walking away. I don't fall as much now. I hated the steroids. They made me crazy--unable to sleep, anxious, irritated. (While on AC, I took no steroids.)

      I worked a little bit more on taxol than AC.

      My treatments were dose dense (double the dosage and every two weeks instead of every three), so your experiences may not be the same.

      over 5 years ago
    • MarS676's Avatar

      AC kicked my XXX! After my 3rd AC I was hospitalized with Neutropenia, even though I had the Neulasta shot after every treatment, because of the hospitalization I had to have the shot during Taxol as well. My blood counts never really went up much and I also needed a blood transfusion right before starting Taxol. During Taxol I was fatigued and although I didn't get neuropathy, my finger and toe nails did blacken and some fell off. Also, the combination of Taxol and Neulasta gave me terrible bone pains. Everyone is different however so hopefully Taxol will be a much smoother ride for you.

      over 5 years ago
    • Julie99's Avatar

      Like everything with this, I've found that each person has different reactions to the same meds. No two people respond the same.
      I heard the same thing about Taxol from my oncologist after 4 dose dense AC treatments. Last week I had my first of 4 Taxol treatments. On AC I had fatigue as my biggest side effect. I never got sick on AC which was great, but I just didn't have energy. My oncologist also said I may not need the shot on Taxol but she kept it with the first treatment to see how I am (my WBC was 13 when I went for the first Taxol chemo- she said to not be surprised if its up to 30 when I got for the next treatment, and will then decide about the shot). I didn't get bone aches with the shot but took Claridin the night of chemo then am/pm for 3 days after.
      Taxol? I expected it to be more of a breeze since all I heard was how much easier it was than AC. Within 2 days I started to have some minor neuropathy in my hands. It feels more like if I'm out shoveling the snow, then when I come in and my freezing hands start to warm up.
      I'm not sure if its neuropathy or muscle aches, but its targeted from my knees into my feet and hurts a lot more than I had ever expected. Like shin splints, but again, knees into feet. Not all the time, not everywhere at once, and not always with the same intensity. But sometimes? WOW! Sharp pain. I've been popping Aleve for now for the pain and researching some alternative options, like Glutamine, vitamin B & E, which I just started yesterday.
      Friday I had to take Vicodin for pain, which I had left from my bilateral in January, the pain got that intense.
      I'm hoping that it gets a little easier and I was told that within a week the muscle pain should decrease as well. Sometimes its painful to even walk.
      Good luck starting Taxol and hope that its easier for you than the AC was.

      over 5 years ago
    • debco148's Avatar

      It is hard to say how you will react to Taxol. So many folks do very well. I did really well on the A/C and had to be taken off Taxol due to severe neuropathy after one treatment. We are all different and the doctors know what to do for each of us. I haven't heard of any other folks who went through this at my hospital that had the reaction I did and there were 40 of us sort of going through it last year. We all met at a Day of Wellness that our hospital and a local charity sponsored and I was certainly an odd reaction, especially after sailing through the first 4 a/c. You'll proably do just fine as most do.

      over 5 years ago
    • Jaimebrie's Avatar

      Hi Canto,

      I found the 4 rounds of Taxol to definitely be easier than AC, specifically because I was deathly ill from the AC for months, but I had no nausea or vomiting from the Taxol. I did get Neulasta shots and for 4-5 days afterwards, I felt like I had the worst case of the flu, with severe body aches. But believe me, it was a million times better than being nauseous and vomiting. Stay strong and positive, and hang in there. It does get better.
      Best always to you,

      over 5 years ago
    • rlclark93654's Avatar

      My doc did not use Neuplasta shot for the taxol chemo and i have been just fine. The taxol was way easier and my hair has started to grow back not anywhere the joint/muscle pain or the nausea.

      over 5 years ago
    • mhc's Avatar

      As far as the Neulasta shots go, if you need to have them, take a Claritin every day and you will have no bad effects from the shot. Everyone I know that has done this, has had no side effects from the shot! There was a small study done about this. Now, some doctors are starting to recommend this.

      over 5 years ago
    • Anglav's Avatar

      I had 4 AC and 12 Taxol, I was definitely less fatigued with Taxol, towards the end I experienced mild neuropathy which is receding, my last chemo was Feb 28. I did not need the booster shots with Taxol. My nails took a beating but that's minor. My hair did begin growing back whilst on Taxol. I had chemo prior to surgery and had bilateral mastectomy 2 weeks ago. The pathology report showed that the ACT treatments had killed the cancer. Radiation & Tamoxifen is to follow.
      Wishing you the very best through this journey, you can do it.

      over 5 years ago

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