• Still fighting against swelling and pain

    Asked by krbrowndog on Tuesday, August 14, 2012

    Still fighting against swelling and pain

    The docs say I don't have any indication of cancer anymore, my last biopsy was negative and my last PET scan showed no change from the original (which is neither good nor bad) They (the docs) are as confused as I, as to why I have all this swelling and pain in my mouth and tongue. I contend that most of the swelling is due to having most of my lymph nodes removed (72 in my neck) and then the subsequent radiation further damaged the ones in my mouth, but they say that new pathways for the lymph should develop, but so far that hasn't happened, my question is this: anyone else experiencing this and if YES, what is causing it for you and what have you done to deal with it. Thanks Keith

    2 Answers from the Community

    • GregP_WN's Avatar
      GregP_WN

      I had SCC, a malignant tonsil. Had radical neck disection 29 lymph nodes removed, radiation treatment. My throat has scar tissue, have trouble swallowing, but I haven't had tongue swelling. My surgery and treatment was almost 4 years ago I still have swallowing issues, but now swelling. Probably no help to you, just wanted you to know how mine went.

      over 4 years ago
    • Thanks4Mayo's Avatar
      Thanks4Mayo

      Similar regimen (surgery and radiation) for base of the tongue + 31 lymph nodes. Still have some intermittent swelling of the neck. Oncologist recommended lotion massages (I use Pruvent) and my physical therapist gave me a series of neck and throat exercises to do - all of which help a lot. Like other posts here, pain ebbs and flows, swallowing is tough and recovery is not quite the straight path to "normal" that I expected. But it's better than treatment! Good luck.

      over 4 years ago

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