• still suffering tremendous joint pain, and numb & tingeling feet, 4 months after chemo & radiation, would like to hear from others .

    Asked by sunne on Thursday, October 25, 2012

    still suffering tremendous joint pain, and numb & tingeling feet, 4 months after chemo & radiation, would like to hear from others .

    how are patients dealing with this problem

    17 Answers from the Community

    17 answers
    • nancyjac's Avatar

      I am 7 months out from chemo and still suffering from peripheral neuropathy, joint pain from aromatase inhibitor, and arthritis in one knee that developed shortly after chemo. Exercise and frequent stretching and movement managed the neuropahty and bone/joint pain pretty well, and I had to be very carefully carrying things and walking because the hand and feet numbness would cause me to drop things or trip. But the last couple of months have been the pits because the increasing pain from the arthritis is really giving me mobility problems and I haven't been able to keep up my exercise. I've tried various treatments for the arthritis and none of them have proven to be a viable long term solution yet.

      about 4 years ago
    • ticklingcancer's Avatar

      I'm about 8 moths out from chemo and still suffer from neuropathy. The bottoms of both feet are completely numb. There are meds that help with the numbness. You should ask your Dr about gabapentin. It's a miracle drug. As long as I take this medicine, my numb feet don't bother me at all. Nor does any of the tingling. I take 900 mg (this is a low dose) every morning. Hope you feel better.

      about 4 years ago
    • JudyS's Avatar

      I'm 1-1/2 years out from my chemo and still have neuropathy in my hands and continue to take Gabapentin 1200mg twice a day. I also have spinal stenosis and osteoarthritis that I believe was aggravated and made worse by the chemo. I was referred to a pain management clinic since the lower doses of gabapentin were not helping me and also because of my joint pain. It has taken me quite a while to get moving regularly, but I agree with nancyjac that activity is very important. I started out per the Pain Clinic doctor's recommendation after 3 shots to my spine in physical therapy learning the right way to move again and how much to do because I kept re-injuring my back - that helped tremendously! Now I do the exercises I was taught and I'm walking more. I understand and know your pain - I'm so sorry. I really recommend you see a Pain Management Clinic for help. Many hugs and blessings sent your way!

      about 4 years ago
    • JudyS's Avatar

      Sorry - 1 addition to my comment. Remember that each person is different and your issues may resolve themselves far sooner than mine are - do not be discouraged. It's so important to remember to take one day at a time and stay as positive as possible that you can do this!

      about 4 years ago
    • FreeBird's Avatar

      My dad, for whom I am a caregiver, has the tingling and numbness in his feet, called chemotherapy-induced peripheral neuropathy or CIPN, but it is not to the point where it is painful or makes it difficult to walk. In the event that it did affect his walking or become too painful to tolerate, I was going to ask the doctor about Cymbalta. http://www.cancer.gov/clinicaltrials/results/summary/2012/neuropathy0612

      about 4 years ago
    • FreeBird's Avatar

      Dad has had chemotherapy before also, and it did go away after a while the first time. My understanding is that sometimes it eventually goes away on its own after chemo, and sometimes it does not.

      about 4 years ago
    • ticklingcancer's Avatar

      My Oncologist said it would probably go away but it can take up to two years of more. I hope that's not the case but as long as the medicine continues to work...It's no big deal.

      about 4 years ago
    • IKickedIt's Avatar

      Welcome to the club...It ain't over when it's over.

      I am one year out (today is my anniversary of my last chemo - whoo-hoo!!), and still struggling with a lot of side effects, including peripheral neuropathy, severe muscle stiffness and nerve damage. I am in PT (probably for life) and it is helping although I get very frustrated on some days.

      My neuropathy is improving. My hands are finally about 90-95% better. I can feel temperature, but my extremely fine motor skills still aren't there (like threading a needle, buttoning a snap, picking up small items). My feet are still about 50% numb although I have noticed some improvement over the past month. The only reason the feet bother me is that I don't have good control over my feet (I also have drop foot and gait disorder all due to the chemo), so I have unfortunately broken two toes on two different occasions and have been in a soft boot since May. Bones aren't healing very quickly, again due to the chemo. So, be very, very careful to protect your toes.

      I have been taking B12 and I think it's been helping. My oncology never suggested anything else.

      So yes, like others, I'm very frustrated and almost discouraged, but at least I'm here and cancer-free. I'm in a much better place than I was a year ago!

      about 4 years ago
    • NanaL's Avatar

      I also suffer from chemo induced neuropathy in my feet. I take 900 mg gabapentin but it doesn't really seem to help. It is always worse when I first get out of bed in the morning. I had a relaxtion massage about a week ago and she really worked on my feet and legs to help improve the circulation. My feet definitely felt better for a few days after the massage.

      about 4 years ago
    • theresemarie's Avatar

      I was on Thalidamide for along time and I have been off of it since 2007 and the numness and tingling is still there and I cant feel some of my toes so if the get a brusie I dont know about it right away

      about 4 years ago
    • Miriam's Avatar

      Wow... I am so glad to hear everyone's comments. I ended chemo in July and I still have neuropathy in my feet and hands. Also my arthritis has flared up and it is still bothering me. It is a little discouraging. I was told it would get better so I am hanging on to that. I am such an active person so it has been hard to not be able to be my old self. My new self is wiser but slower.

      I have found this site to be so supportive and informational. Thanks to all of you!

      about 4 years ago
    • liznparadise's Avatar

      I finished chemo/radiation mid February and have been having a lot of aching in my hands since. I hadn't associated it as being a side effect of the treatments, just old age arthritis. Looking at the posts, I think that it must be related.

      about 4 years ago
    • Carol-Charlie's Avatar

      Hi Sunne, I had two years of chemo. They told me my feet would probably go numb... that feeling would not come back. I had neulasta shots to enable me to have the proper blood count to enable the complete course of chemo. Thanki God I made it through all. I had joint pain as my bones were pushed into making more white cells to enable me to live. The oncologist told me to take Benedryl in the evening and Clariton in the day. So Mornings Clariton.. prior to bed Benedryl. I helped tremendously with the pain. I would think it would be worth it for you to give it a try. As for the numbness. My fingers are also numb. I learned to live with that, and haven't dropped anything lately. However.. my feet.... they are really numb, if I roll over and one foot touches the other.. It's like someone hits my foot and wakes me... I just smile and head back off to dreamland. I take Vit.B12 and it really brings a good bit of feeling back, but not all. I find balance a problem.. but I bought the coolest walking stick. It has a brass Eagle's head on top for a handle and a rubber tip on the other end. with Brass embedded in the walnut wood. It is a bit pretentious, but it starts some fun conversations with nice people. I pray all goes well for you. I'm just over five years past chemo, and still cancer free.

      about 4 years ago
    • stillhere's Avatar

      I first received chemo and radiation in December 2010. Two days later I was already suffering from severe nerve pain at the base of my spine. Next came the numbness and tingling in hands and feet and severe bone pain. I have been treated with hormone, radiation, or chemotherapy of one kind or another since then. I now wear a 25m fentanyl patch and take gabapentin daily in order to live a somewhat normal life. My hands are much improved, but my feet another story. But the pain and nerve meds help a great deal and I'm able to do most anything I put my mind to. You may want to speak to your oncologist about these meds. Hope everything works out for the best.

      about 4 years ago
    • debco148's Avatar

      I finished chemo in July and still had isses as well. I say had because what I'm doing seems to be working! Initially, my onc prescribed gabapentin as well, but I stopped it, because it made me feel too drowsy.. I am overly sensitive to medications anyway. It does help others very well. Also, it helps get rid of hot flashes, so ask about it for you. She also told me to take 200mg of B6 daily (not B12).. that has helped a lot. I also think a warm pool or other physical therapy will help with the pain. Warm epsom salt baths (they have them scented now with lavendar and green tea) Also, I find keeping the joints moving and then a good stretching sessions after is very helpful. With arthritis, the more you are idle the worse it gets.. even a slow walk every day 20 mins and then stretch every day, you will notice a big difference. Also, I take magnesium each day to help relax the muscles.. some of the pain you feel may be spasms, they can be nasty. Try talking with a good nutritionist as well or a chiropractor who understands these things. Many chiropractors are trained in nutrition and are extremely helpful for this type of thing. Mine has helped me a lot. Caution against herbal cures, so only use supplements etc that are whole food and someone is guiding you, don't self prescirbe. Hope we helped you! Better days ahead!

      about 4 years ago
    • JointHealth's Avatar

      Exercise is essential for natural joint pain relief. You might think that moving a joint will only make the problem worse. However, using the right exercise options, it will actually provide short and long term natural joint pain relief. Joint pain often is a combination of pain from the bones, tendons, and muscles. For example, with osteoarthritis, natural lubrication between bones is no longer working. Bones grind. Nevertheless, many times pain is coming from surrounding muscles due to the breakdown in the joint. Building the muscles will provide natural joint pain relief.

      Warm water is your best friend when it comes to natural joint pain relief. Warm water helps in several ways. The warm water soothes the muscles around effected joints. It relaxes the stiff muscles. By alleviating the stiff muscles around affected joints, the pain levels will diminish. Many use this form of natural joint pain relief as an exercise option. Many gyms and rehabilitation have warm water pools that are great for hydrotherapy and exercise. It is something to consider for natural joint pain relief.

      almost 4 years ago
    • DaveWaz's Avatar

      Thank you for all the valuable input you have given each other.

      Conversation around this topic inspired a blog article on our site that you may find helpful.

      Chemotherapy-Induced Peripheral Neuropathy - What, Why, and How

      This article might help you and others gain insights on what is happening; it also points to related questions about neuropathy on the site.


      about 3 years ago

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