• Suggestion?

    Asked by vbright on Thursday, March 21, 2013


    This site is wonderful, but...I wonder if it wouldn't be nice if people wrote articles on their journey's, or each part of it. It may make it more helpful and personal than little prefabbed updates. Just a thought. I realize I'm new, but I have been on a lot of sites, and overall, this one is sort of difficult to navigate.

    5 Answers from the Community

    5 answers
    • AlizaMLS's Avatar

      Dear vbright,

      Hi, I'm Aliza a BC patient and also a Medical Librarian (retired) who offers research and referrals on this site and elsewhere. I'm also a former technical writer and editor. I hear what you're saying and it seems to be you want something that would be more in the style of a blog.

      It's true we don't have a blog here, but there are options here that aren't available on a blog in terms of searching. It's awfully difficult to index a blog so that you can put in a search term and be referred to lymphosarcoma for example.

      You can certainly Google to see if there's a blog on Cancer in general (I'm sure there is), but I've got a fairly extensive medical background-have edited for some of the medical journals, veterinary medical journals, my ex husband's a physician, my daughter's a Paramedic becoming a Nurse. I've been learning a lot about other types of Cancer besides BC here. It's enlightening to me-Cancer is rampant in my family (just not BC).

      You can also message Greg P to tell him what you mention here. I'm not in Tech Support so I have no power to make changes, but I love this site.

      If you want to blog on your own, you must know about wordpress.com if that helps and you can then refer people on the site here to your blog.

      I hope you stay on the site and ultimately find a compromise that suits you.

      If I can be of further help to you, don't hesitate to message me or email me offsite.

      Best wishes,

      over 4 years ago
    • nancyjac's Avatar

      So is your suggestion about adding features to the site or about it being difficult to navigate?

      If the former, the features you mention are already there. You can click on "blog" at the top any page and read their articles on their journeys. You can also click on anybody's username and go to their home page and read their Experience and Status Update entries. Some people find blogging therapudic and others do not. Here, everyone has the choice to share as much or as little as they care to,

      Please let us know of any problems you are having navigating the site and we will be happy to help.

      over 4 years ago
    • SueRae1's Avatar

      I like the idea of writing articles. I have a blog on the weight watchers site and many post talk about my cancer journey, I guess I should upload them to this site as well. Thanks for the idea.

      over 4 years ago
    • GregP_WN's Avatar

      Yes, we do have a blog, and invite anyone to submit a guest blog post if you would like. Some people actually use the updates section of their own home page here as a blog. After all, a blog is nothing but regular updates on your journey. That can be done on your home page. If a person has a blog they can synch it to their home page here so every time it updates, it will post here.

      Let me know if you would like to submit a post for our blog. Click on the "blog" link at the top of the page to see our previous posts.

      over 4 years ago
    • created's Avatar

      vbright...Just to share a little on the bright side(it wasn't at the time). I was a week or two into remission and finally able to go back to church and sunday school...yeah! Stopped at the pharmacy to pick up my prescription. I was eating whole grains and drinking tons of water to keep my pooping normal. They had to check on my prescription and were taking their own sweet time..not knowing a ticking time bomb was standing in front of them(dressed very nicely, too, I must say). And then it started...no control...poop flowed! It flowed down my lovely, brown dress slacks..puddled in my nice dress shoes...and onto the floor!..It flowed and flowed and FLOWED!!! The nice, SLOW pharm. asst. said"Do you smell something?" I very sweetly said, "No." I waited on my prescription(no need to run now) with a pleasant smile. I then held my head high and proceeded to the front of the store, scrip in hand, and left. That was 2011 and I have NEVER been back! That was awful in 2011, but today it is quite hilarious.

      almost 4 years ago

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