• Sun paranioa

    Asked by StrongSteph on Monday, April 22, 2013

    Sun paranioa

    Does anyone else feel really scared about the sun? I am a stage IV survivor and I put sunscreen on my calves (wearing capris) to walk 1/4 mile. I am very nervous about any bright sun!

    12 Answers from the Community

    12 answers
    • Clyde's Avatar

      Scared of it----no. Cautious---YES. I never leave the house without sunscreen, make sure I cover my head and wear sunglasses if the sun is going to be strong. But I don't obsess. I think a lot of it depends on how fair you are and how easily you burn. I'm mayonnaise boy, but with a 15-30 spf, I rarely burn unless I'm exposed for a long time, which I never allow to happen. I do take extra care if I'm going to expose tender skin that rarely sees the sun however.

      My research of Melanoma leads me to believe that the most serious damage occurred when we were young. I know my parents never used sun screen on me when I was growing up and the only reason I started using it was to prevent aging. I wish I had known then what I know now.

      over 7 years ago
    • derbygirl's Avatar

      I'm outside all the time in the summer at the pool or the beach. I can tell you though that it doesn't matter if it's summer or winter, I never go out without sunblock. Many people think that you can't get burned in the winter but with the rays reflecting off snow, it is just as bad. I use Coppertone Sport 50 SPF because it's sweat proof. I carry it with me wherever I go. Just be cautious and take precautions but don't be afraid of the sun. If you are afraid of it, wear the sunscreen and carry some with you to reapply, wear a hat, and remember to wear sunglasses that block the UV rays. If you have concerns talk to a dermatologist or your doctor who can advise you on what sunblock is best for you to use. Take care.

      over 7 years ago
    • SpunkyS's Avatar

      I use sunscreen when I am going to be out for any length of time. Short distances or times, no. I finished chemo a year ago. Was just in FL and had no bad effects from short doses of sun.
      Good luck.

      over 7 years ago
    • GregP_WN's Avatar

      I work outside a lot. My wife bought me a big ole floppy hat to wear when I go out, and one of those 5 gallon size sunscreen bottles to keep in my truck. I get fussed at by everyone for not wearing and slathering. They worry about it more than I do. At the same time, I can see the damage the sun does to everything else, so it's bound to be doing a little damage to us too. I'm sure it won't hurt us to be cautious.

      over 7 years ago
    • SueRae1's Avatar

      Yes. Chemo can make your skin even more sensitive to sunlight. Right now I'm in a bit of a pickle. I broke out in a grade 3 about 2 weeks ago, and the derm told me not to use anything on my body but Vaseline, No SPF no nothing, until we figure out what was the cause - so I walk around with large brimmed hats, and am covered from head to toe, and limit my out door activity, which is a bummer.

      Use sunscreen with mineral protection a)you don't have to wait for it to bind with the skin so you put on and can be out the door right away. My derm recommend vanicream spf 30 - which is very gentle. They have a whole line of skin and hair products for people with sensitive skin,

      over 7 years ago
    • lisapunkinhead's Avatar

      Oh my gosh, Steph, I went through the same thing yesterday. I am a runner, had my surgery in February and only medical followup is needed, but yesterday was a gorgeous, bright, high UV kind of day, and I wanted to go out for a run in the late afternoon/early evening and I just couldn't do it. I have sunscreen on every part of my body, and my melanoma was in my axilla, where the sun never shines!!

      over 7 years ago
    • acalltofaith's Avatar

      I am a two-time melanoma survivor and I understand where you are coming from. Lots of good responses on here to your question. I have sunscreen clothing that I wear when out for extended periods of time and use sunscreen when I go out generally. Like Clyde said, I don't obsess about it. I too have found that most of the sun damage was done to as as youths, whereby it can take decades to produce a melanoma.

      over 7 years ago
    • Dick_K's Avatar

      My melanoma situation is a little different than what you are asking about but here are my thoughts.

      I am on Zelboraf and one of the side effects is severe photosensitivity. I make sure I’m out with long pants, spf long sleeve shirt, and always my wide brim hat. As to my face, neck, and hands, I use sunscreen if I will be out in the sun for a period greater than 30 minutes. If I will be out for less time, I will not bother with sunscreen but the clothes are a must.

      This past Sunday I was at the Melanoma International Federation, Safe From the Sun run/ walk where it was a cloudless day, very sunny. I forgot my usual sunscreen and bought a substitute and I’m sitting typing this response with a very sore sunburned face.

      Like others have said, my advice is to be smart but don’t obsess.

      over 7 years ago
    • AlizaMLS's Avatar

      Dear StrongSteph,

      Hi. I'm Aliza, a BC patient and the site's unofficial Medical Librarian. I answer questions - usually non Medical ones*, offer referrals to doctors, hospitals, institutions, agencies, websites, books, media, etc. I also do research when requested or required. *Librarians tend to shy away from Medical questions - our Code of Ethics and because answering medical questions happens to be a bit illegal since it's practicing medicine sans license. Having said that, I am permitted to speak from my own experience and those of my family and friends who've had Cancer (we number too many).

      Besides being a Breast Cancer patient, I have the distinction of being a Lupus patient as well (diagnosed with Lupus for about 20 years). I was only diagnosed with BC less than a year ago. Us Lupus patients (on FB we've somehow adopted a sketch of "House" (Hugh Laurie) as our symbol of pain. I enjoyed looking at Hugh, but didn't vote for him in this, anyway all of us with Lupus, avoid the sun like the plague or should because it can set off a Lupus flare (cause fevers, make us ache, generally make us feel terrible and need to have some of us end up on prednisone which can make you have horrible side effects, so the sun is B-A-D, without sunscreen, for me, and I try to keep out of direct sun, wear a hat as protection, don't go to the beach (certainly not a midday [if I were to go it would be in the evening on a hot day for a dinner picnic]) and I wear a high SPF sunscreen all over. Neutrogena's my fave as they make so many variable type sunscreens - dry touch, moisturizing, moisturizer, etc.

      The other thing about me is that both my late parents had skin cancer - my mom had a melanoma they caught very early on her hand (she had a bit of surgery and that was it-nothing else was needed [she really lucked out) and my dad had basal cell carcinoma, so he needed to have painful Moh's surgery on his legs. I know you probably know all the details about this and/or can research it. Suffice it to say, it was very unpleasant and painful.

      The reason for all of these skin cancers was that my grandfather had a cabana on a beach on Long Island, NY (I live in NYC). I used to spend my childhood (up to about age 10 (from age 3 going to the beach there). Those were in the days before anyone knew the sun could do anything bad to people and suntan lotion was to help you tan or you wore baby oil and used a reflector made with aluminum foil to help you tan.

      I think you should feel nervous about bright sun if you're not protecting yourself by wearing as high an SPF sunscreen as you possibly can, wearing a sunhat or visor, wearing sunglasses, etc. Like us Lupus folks, if you can plan to be out of the noon sun, do it (in hot weather, it's not so great anyway). Also be sure and cover up. They have SPF rated clothing as I'm sure you're more expert on than I am!

      I just noticed your question and it spoke to me on so many levels that I felt compelled to answer. I hope that I didn't say anything to upset you, that's not my intent. My intent is that you should be the best you can be (don't mean to sound like an Army ad)...;).

      Btw, I would be remiss in my duties as a Librarian if I didn't refer you to a book I've enjoyed that I refer to many people and that is "Crazy Sexy Cancer Tips" by Kris Carr and Sherryl Crow. Kris Carr is this amazing actress/writer who was diagnosed with a rare slow moving Stage IV Cancer. It tells how she came to terms with it, got her life back on track, learned to eat healthy, she even got married. She's amazing. I hope you get it and enjoy it!

      If there's anything I can do for you don't hesitate to ask.

      Warm wishes,

      over 7 years ago
    • Cricket's Avatar

      Hi Steph I am definitely worried about sun exposure, but it is mostly because of the adverse reaction I have from taking my meds. I am on zelboraf and will be on it indefinitely. I use sunscreen every day and reapply and wear a hat when I am going to be outside for any length of time. I also wear sun protective long sleeved tops most days too! I live in Colorado so we haven't really gotten into capri wearing weather yet,but I would definitely wear sunscreen on my calves too!

      over 7 years ago
    • StrongSteph's Avatar

      Thank you everyone!! I definitely take precautions, ALWAYS wear a hat, I have a sun protecting driving scarf, I have sunscreen in all my bags, in my car and on my desk. I have read Kris Carrs book, Aliza, it is GREAT! THANKS EVERYONE!! <3

      over 7 years ago
    • daca1964's Avatar

      Wow Stage IV I was Stage IIIB. I wear sunscreen and try to stay out of the sun. I wear a hat and a body glove shirt if I'm out on the boat for extra protection. It's pretty comfortable it breath really well and dries pretty quick. I got mine from tanning beds at the gym. I'm a 4 year survivor now.


      about 7 years ago

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