• Support group for ALK positive patients

    Asked by cheryncp on Tuesday, March 20, 2018

    Support group for ALK positive patients

    If you have been diagnosed with ALK positive lung cancer there is a website alkpositive.or as well as a Facebook group: https://tinyurl.com/alk-pos-reg-form
    Where you can get informationspecific to your disease. The Facebook group is a closed group for ALK positive patients only. They are a great group of people who can offer so much wisdom, information and support on this fairly rare lung cancer.

    4 Answers from the Community

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I think the url is https://www.alkpositive.org/

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      The other URL goes to a registration questionnaire page to enroll.

      4 months ago
    • cheryncp's Avatar
      cheryncp

      Greg you are required to fill out the registration form to join the group but thank you for sharing the Facebook group url

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @cheryncp, are you going to HOPE Summit in DC next month? I saw a couple of ladies on a FB post saying they both have ALK+. They are going to be at the Life and Breath Rally and then at the Summit.

      4 months ago

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