• Support groups

    Asked by Johneen on Sunday, March 3, 2013

    Support groups

    I don't have any support groups in my area, I did go to one but they were all survivors and cancer free. While I am so happy for them, I am not and my cancer is growing. It would be nice to be in contact with someone around my age dealing with kinda the same thing. I am stage 4 and in my early 40's. my family and friends are wonderful and super supportive but they don't understand and I don't expect then too. Before I was diagnosed of course we all know people who had cancer and you felt so bad for them but its a different ball game when it's you, unless you have it you just don't get it.

    9 Answers from the Community

    9 answers
    • AlizaMLS's Avatar

      Dear Johneen,

      I myself am hopiing to find something akin to what you're seeking though we're in different stages of cancer. Btw, I'm a (retired) Medical Librarian. I have Stage I breast cancer and had a mastectomy back in Dec. One of the books I purchased before I had it was one called "Crazy, Sexy Cancer Tips" by Kris Carr and Sherryl Crow. It tells you how to form your own "cancer posse" as it were ( think craigslist) or even here for people in your own city -those going through the same thing or try going to CancerCare meetings and see if you click with anyone who has what you do. Just some random thoughts. But it's a start.

      I also bought "Crazy, Sexy Survivor Tip" by Kris Carr and "Crazy Sexy Diet" as well to help me to get into a healthiier way of eating in a fun way. I hope some of these ideas are useful for you.

      As a Librarian, we don't offer medical advice (against our code of ethics) but we do offer referrals to books (naturally), websites, and other media. I also like to offer many people I answer the opportunity for a distraction from their cancer by telling them about an online bookgroup (if you happen to like books). If there's no bookgroup in your area especially, you may really enjoy this. It's called www.goodreads.com. You can go there and keep track of all the books you read, write book reviews, join boook groups in all kinds of genre lit, find new titles, read others' book review and make new virtual friends. I think it's really important not to let cancer dominate your world. This is a small step.

      If you have any other questions or think I can help you in any way, don't hesitate to contact me.

      Warm wishes,

      over 4 years ago
    • nancyjac's Avatar

      If you can't find a support group in your area that meets your criteria, why don't you start one? Ask if you can put up fliers in your oncologist's office and chemo center.

      over 4 years ago
    • GregP_WN's Avatar

      Have you checked the resources tab at the top of each of our pages? www.whatnext.com/resources this page is loaded according to your zip code, so different resources come up depending on where you live. If there aren't any listed there, click on the American Cancer Society link, get their 800 number and give a call. They have a large database that might have something listed in your area. They are great to work with. I hope you find what you need.

      over 4 years ago
    • SueRae1's Avatar

      I see that you live in NJ - but not exactly where - if you are close to NY city or Philadelphia you will find support groups there. Also speak to a social worker at the center/hospital where you are being treated they may have information on where you can find a support group near by.

      While you are searching for a live group, remember we are here to help and support you. This group is full of the best people, who have been of great help and comfort to me.

      over 4 years ago
    • Leung's Avatar

      I understand how you feel! I also have lung cancer, stage 4. It's in my kidney, throat, lung, and bronchial tube. I thought about going to a support group, but I just haven't gotten that far. My family is very supportive and they are great listeners. Good luck to you! Hope you find what you are looking for!

      over 4 years ago
    • maralyn's Avatar

      I used to be one of those that really "didn't get it",,, well i "got it" and i am in between surgeries now, and i have found talking to a therapist has been a great release for me, even tho she hasn't had cancer herself, she listens to me and helps me see what is "really" going on inside!!! This site has also been an AMAZING support for me, it helps me to get out of "myself" and see how others deal with what they are going thru, and i always end my time on here feeling SO much better than when i logged on!!! I hope you can find the support you are looking for!!!

      over 4 years ago
    • CAS1's Avatar

      I am in complete agreement with you. Only someone with cancer "gets it". And only someone with your type/stage of cancer gets it. You are completely right.

      If you check the cancer centers in your area they may offer support groups and if you contact the leaders of those groups they might know of someone with a similar case as yourself. The Lung cancer alliance offers buddy phone partners..not the same as in person. I know but its something.

      I want the same thing..someone to just have a coffee with from time to time. But they might know of people too.

      I would call a social worker from MSK becuase they see so many people from all over, maybe she/he can put you in touch with the support manager who might know of someone in their group who might live close to you.

      All the best...

      over 4 years ago
    • CherylS@StF's Avatar

      The Lung Cancer Alliance has telephone support and online support, there web site address is: http://www.lungcanceralliance.org/get-help-and-support/lca-services/ and the American Cancer Society offers several online and phone support groups, their link is: http://www.cancer.org/treatment/supportprogramsservices/onlinecommunities/index
      I can only imagine how hard it must be have cance and not be able to sit down face to face and speak with someone who is sharing you same thoughts and feelings. I hope that you can find support through one of the listed sites and wish you all the best in your journey.

      over 4 years ago
    • Leung's Avatar

      Hi Johneen, just want to say if you ever need to unload, talk, or whatever, please feel free to contact me. I am fairly new to this site and I like it. I have the same thing as you. Stage 4 lung cancer and I never saw it coming. I went into u of m for a free throat screaming. Thank God they cought it when they did. Radiation, and chemo, all the fun stuff I've done. I have 7 to 11 months and I'm going to pass the 11 month mark in April and for now I feel good. Take care! Linda

      over 4 years ago

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