• Survivors !!! That's all you out there on WhatNext ! What are your plans for next year?

    Asked by BoiseB on Saturday, December 26, 2015

    Survivors !!! That's all you out there on WhatNext ! What are your plans for next year?

    There is this article in my Mayo Clinic Newsletter. That I thought very appropriate for this time of year.
    This article lists 5 key points
    How are you planning to address each point. Please share some of your strategies

    18 Answers from the Community

    18 answers
    • Carool's Avatar

      Thank you, BoiseB! These are good ideas for everyone, cancer survivor or not. I don't practice some, but it's good to know. Hugs -

      over 5 years ago
    • coco5253's Avatar

      Each of these five have been on my list. I decided to adopt one at home a time, starting with increasing exercise slowly. I'm still dealing with radiation burns and pain so I need to keep moving and yet not overdo it. Walking and yoga first, routine of sleep and wake and regular stocks and meals that are the most helpful nutritionally.
      We could form an online support group! :)

      over 5 years ago
    • GregP_WN's Avatar

      I still have 5 days left to decide what next year will be. What's the rush??!! I'll have it figured out by 11:50 New Year's Eve with lots of time to spare! As far as I know right now, I'll still be here helping anyone that needs help get through their individual cancer battles, in one small way. I plan on trying to exercise a little more, knowing that I've done far too little in the last couple of years. I plan on trying to do some more work on our house that Sweetie and I have been building for the last several years. It's time to do some more things that she would like to have done. Besides those, I'll figure the rest out before the bell tolls.

      over 5 years ago
    • Ejourneys' Avatar

      I already do all 5 on that list, so here are my strategies:

      1. Find support in other cancer survivors.
      Strategy: My local BC support group and Creativity Heals group, plus #BCSM (breast cancer social media) and you all! <3

      2. Nutrition matters.
      Earlier this month I passed the 2-year anniversary of maintaining my goal weight, with the help of fresh produce from our local, chemical-free farmer's market and by tracking everything at MyFitnessPal.com (free). For me, having my exercise equipment at home really makes a difference. My DeskCycle lets me pedal while I watch programs on my computer, plus everything I need (water, towel) is within easy reach. I make sure that everything is easy and enjoyable to do.

      3. Feed your soul.
      My e-reader and MP3 player travel with me, and I've been known to dance at my desk. I also use digital art as meditation.

      4. Look into the future for long-term survivorship.
      In addition to keeping up with medical appointments, I get what info I can online and through support groups. A recent blog post recreates a resource list (for both BC and cancer in general), based on a handout I provided to my BC support group in November. The list includes survivorship resources: http://csn.cancer.org/node/298159

      5. Address your fears and concerns.
      My journal notebook travels everywhere with me. The LCSW at my radiation center is available if I need someone to talk to. So, too, my BC support group, #BCSM, and you all!

      Plans for next year: Take it all one day at a time.

      over 5 years ago
    • BoiseB's Avatar

      When I was first diagnosed I was told I had 4 to 9 months to live. I actually believed the Dr.s. At that point I planned my funeral. Then my brother stepped in and called time out. He brought my nephew on board and that was the point when I decided to beat the odds and become a survivor. The odds at this time were 5% I beat them this year. Instinctively I did address most of the points listed
      FINDING SUPPORT. Everyone here has already taken that step. I do plan to get a membership in the YMCA next year right after my surgery. Our local YMCA has 5 different programs for cancer survivors
      NUTRITION MATTERS: True. As a course to my treatment, I had monthly meetings with a Nutritionist who sent me home with some perfectly awful recipes I discovered that TASTE also matters. So I looked up everything I could about the nutritional value of food. I also looked up the health benefits of herbs and spices. I took some basic recipes and bumped them up both taste wise and nutrition wise. My children claim that I went from one of the worst cooks in America to an armature gourmet cook. You gotta want "Survivorship.
      FEED YOUR SOUL. That was a no brainer for me. The prospect of mortality sent me scurrying
      back to faith. For 5 years I have been a member of two Bible Study groups and have embarked on my own bible reading challenge. I also pray every morning at sunrise and when pain awakens me in the night. Also whenever the Spirit moves me during the day.
      LOOK INTO THE FUTURE FOR LONG-TERM SURVIVORSHIP I have already done that I see my PCP twice a year for a general physical with blood work. I also see a nutritionist twice a year. I have my cholesterol under control.
      ADDRESS YOUR FEARS AND CONCERNS: When I was diagnosed, I lost my life-long fear of cancer.
      However there is one concern the article does not address that financial concerns. I have struggled with that since the day of my first diagnosis Is there any one who has had some success with managing the financial side of cancer?

      over 5 years ago
    • BoiseB's Avatar

      My plan for next year is really just one step in a five-year plan that started in 2013 I plan to be a five year survivor of uterine sarcoma. That will be achieved on April 1, 2018. Of course I plan to live to be 100. This is if there is no "Super Volcano" or collision with a "Near Earth Object"

      over 5 years ago
    • LiveWithCancer's Avatar

      Find support ... I love WhatNext. I also participate with several lung cancer groups that I also greatly enjoy.

      Nutrition matters ... I will have to work on this. I do not necessarily eat all that healthy.

      Feed my soul ... ahhh, my favorite! I have sooooo many things I love to do. I have just paid for 3 yearlong memberships to the zoo, the Arboretum, and Texas Discovery Gardens, which includes a butterfly house and garden. I love all 3 places! Of course, activities with my dogs feed my soul as does time spent with friends. Overriding it all, my faith feeds my soul.

      Long-term survival ... I am achieving that daily. I was supposed to live 4 months ... back in Dec 2012. I hope to keep on survivin and LiVING for many more years to come.

      Address fears and concerns ... I have very few fears or concerns. I think that's because of my faith.

      Happy New Year's, my WhatNext friends!

      over 5 years ago
    • IronMom45's Avatar

      I don't know what I am. I survived stage 3 to only go out of remission and now stage 4 but going thru chemo again. So what does that make me? Current patient? Survivor? Hmmm.

      over 5 years ago
    • BoiseB's Avatar

      Iron Mom you were a survivor from the day you were diagnosed. You have only to take steps to own your survivorship. If you reread the five areas. I believe you will see that you have already taken several steps toward survivorship. I also believe that you will see other steps you can take to own your survivorship. They may only be baby steps but lots of baby steps can equal a giant leap.

      over 5 years ago
    • Lynne-I-Am's Avatar

      When I was diagnosed stage IIIC ovarian in 2013 I thought I was dying with only weeks or a few months to live. Then as I started feeling better after initial chemo and debulking surgery, I started to set two goals for the future. To make it to my fiftieth wedding anniversary, and to take my family to Disneyland. Both of these goals will be accomplished in 2016, so much to look forward to. As far as the key points, I have already made many dietary changes and increased my excercise habits but continue to gain a pound every three months. With the arrival of 2016, I am setting a goal of losing a pound every three months instead with a few minor adjustments to my diet and excercise routine. I feed my soul through meditation and becoming one with my surroundings, it is very oeaceful and relaxing. Setting goals for the future, I see more road trips with my husband and visits with my grandchild. As for addressing my fears and concerns, I will always be a little fearful around exam or blood testing time, it comes with the diagnosis. I have accepted the fact that I may very well have a recurrance. I am married to someone from whom I have no secrets, I share my fear and concerns with him, and sometimes with my WhatNext family, who have given me such great support these past two years.

      over 5 years ago
    • meyati's Avatar

      I don't plan. A good share of my medical world thinks that I was getting 'lock jaw'. My plan is to get a tetanus shot every year. I'm planning on getting one after New Years. I put bad screws and bent nails in my pant pocket. With squatting, the dirty screws punctured my skin. In about 2 weeks, my ear and neck started hurting-lots of fever. A Dr. lectured about tetanus and gave me an antibiotic to cure tetanus.
      OK-1- Get a tetanus shot every year -again. I still have the sore on my thigh from the screws-since October
      TWO--See my dermatologist on Tuesday about my thigh.
      THREE- Start trying new stomach meds. Dr. said that she'd call with a prescription in a few days-I hope she's not having trouble.
      FOUR--try to get my bills paid down-That's hard-I just paid the down to hold Levi's classes for next semester. I'm getting maxed out.I can't keep having an unstable price for my med-

      NEXT--How do you get a male to listen to you? You all know that I asked for long johns, I want long johns, I need long johns, I got too fat for my old long johns- My son and Levi got me a fancy DVR that showed my son's pruient video choices, didn't have a clock, when I ttried to look at the guide I entered channel 13 and it jumped to 600 something. I pushedI couldn't read the font. I finally cursed and ranted for an hour to reps, and they finally said to connect my old DVR up, and they'd take the new one back. I had movies and shows on it. My son accidently set it on fire, so I have his old one. For some reason-his new DVR has all of my shows that he doesn't like, but I don't have his.

      Try to avoid the odd. Monday I woke up and couldn't open my eye--ON FIRE---Levi got me to URGENT CARE in 40 minutes. An eyelash or something cut my cornea. This is my first day on the computer. I've been using eye antibiotics and ice packs on my eye. No TV, no light, no stress- just sleep and different alarms went off for meds, for ice pack, to take ice pack off. I'm grateful. I don't think that my vision is ruined. There was a time, not too far in the past where I would have had my vision damaged or gone blind. Now to let the hounds back in.

      over 5 years ago
    • LKCraig67's Avatar

      I am 4 years into my "life after diagnosis" and am happy to say I am FINALLY doing all 5 of these. It took me a while but here is my update:
      1. Find support in other cancer survivors: I have been mentoring others as they are diagnosed but really didn't start reaching out until recently. Signing up with this site was designed to help me help others but I can already tell it is going to help me too.
      2. Nutrition matters: AMEN. I follow the Blue Zones. I figure if they can live to be over 100 years they must know what they are doing.
      3. Feed your soul: My inner soul is fed by nature. I walk, smell, look, explore. It helps me feel connected. I also LOVE yoga and am looking forward to adding this back into my routine.
      4. Look into the future for long-term survivorship: This next year is all about getting back my strong healthy body. I feel wrecked after all the surgeries, treatments, etc.
      5. Address your fears and concerns: I did not get my head around this one till recently. I was always waiting for cancer to come back. Now, 4 years later, I am not thinking about it as much - thank goodness!

      over 5 years ago
    • Carool's Avatar

      Meyati, I do hope your eye heals - and quickly. When I was in my mid-twenties I awoke and couldn't open my right eye. It turned out that I had a corneal ulcer - not what you have, of course. I suffered for months until my ophthalmologist took a culture and discerned what meds could heal it, and it then cleared up almost immediately. Sorry for the blah blah blahing.

      over 5 years ago
    • meyati's Avatar

      I spent Christmas listening to Joe Kenda. The lights were off, curtains closed. I took over the couch and lay facing the back of the couch. I also had a throw and blanket over my head for a couple of days.

      over 5 years ago
    • Razmataz's Avatar

      oh gosh...
      Finding support: I have a great circle of professionals and everyone on here helping me deal with the effects that cancer has had on me
      Nutrition Matters: I am struggling with this one as I swear I'm addicted to sugar and can't stop eating sweet things. However, I have increased my fruit and vegtable intake alot. So I want to continue working on this one.
      Feed Your soul: Will continue to work on this...
      Address your fears and concerns: Not sure where I really am on that. Whenever I try to express what is going on inside people tend to just say...thats not going to happen...and it makes me feel that my thoughts, fears and concerns are not important.
      For 2016, I am hoping for more strength in my bones and energy. While I know that I will have to accept this "new" normal in order to move forward...it has been a huge stress to me. I hate the thought of not feeling young again...I use to be able to do soooo many fun things. Now it is inhibited by bone pain that started during chemo... Been doing physical therapy 2x's a week for 4 months. Coming to realize that maybe this is just the result of chemo and that it won't get better... So my goal is to increase in strength or complete acceptance of my challenges.

      over 5 years ago
    • JAYCC's Avatar

      Hi All,
      Maybe you can add "stay on the list" if you haven't already join the EC Survivor's List. This is a list of Survivor stories sending hope to all. Some people even bring it to their doctors.
      Keep on star light shining.

      over 5 years ago
    • BoiseB's Avatar

      Raznataz. Have you thought about using nutrition to strengthen your bones and also reduce pain. You might make an appointment with your PCP to discuss this and possibly get a referral to a nutritionist. Of course you can't just leave it there you will have to do research on what you personally need. This can become a very pleasant challenge. You can also find ways to satisfy your sweet tooth in a healthy manner.
      Secondly do you have a YMCA in your neighborhood? My YMCA has five programs for cancer survivors. Some are programs geared specifically to cancer survivors.

      over 5 years ago
    • BoiseB's Avatar

      Jay. Thanks for the link I am going to review it. May even post my story.

      over 5 years ago

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