• suspicious growth

    Asked by KB2013 on Friday, March 5, 2021

    suspicious growth

    Anyone here have doctor who knows there’s something undefined growing but they don’t think it should be biopsied? I am stymied since it’s described in rad. report as most likely cancer.

    22 Answers from the Community

    22 answers
    • MarcieB's Avatar
      MarcieB

      I don't think I would feel very comfortable about that? (!) How long have you had this doctor? Does the doctor have a different plan - like a scan, or something? Or is he/she advocating to *wait and see*? Lots of questions, KB2013, but I think you need to know these things.

      7 months ago
    • legaljen1969's Avatar
      legaljen1969

      @KB2013, a doctor knew there was something in your chart that is marked as "most likely cancer" and it's been growing since 2018 and no-one has bothered to biopsy? That's definitely scary.

      Under what circumstance did you have the scan? Were they already looking for something or was it some routine scan?

      I cannot imagine a doctor letting something "grow" for 3 years without checking it out.

      Although my boss's brother is in a somewhat similar situation. He has seen at least 3 sets of doctors where one says cancer, the next says not cancer and the next says cancer. We still have no idea what is going on with him.

      7 months ago
    • legaljen1969's Avatar
      legaljen1969

      I hope you get some answers soon. I hope they are good answers and give good news.

      7 months ago
    • 2943's Avatar
      2943

      Time for a second opinion. While I have been I. The ‘active survalience’ a few times. Scans are frequent, tests are ordered OFTEN. Error on the side of ‘finding out’ not let it go ( and grow). It should not offend your doctor. Remember, you are the Captain of this team! Hugs!!!

      7 months ago
    • Teachertina's Avatar
      Teachertina

      Insist on a scan! I had to and it saved my life. Don’t wait any longer. My latest scan last week was clear after a suspicious spot was noticed 3 months ago. It just went away, maybe a small left over infection or something. It’s better to find out one way or the other! Keep us posted on what you find out.

      7 months ago
    • Shoeless' Avatar
      Shoeless

      Get a 2nd opinion. NOW!!

      7 months ago
    • po18guy's Avatar
      po18guy

      One small relief is that it has been there for almost 3 years. Does not sound particularly like LC. HOWEVER, with your history, it most certainly deserves further investigation. Depending on where it is, a biopsy, even if by needle, I would think is appropriate. It could be a cyst, lipoma or other object of little concern - but how to know?

      How many tests are done when the underlying cause is anxiety? Millions! How many prescriptions for an undetectable illness? Millions. But you HAVE something detectable, and a cancer history. Is your oncologist even listening to you?

      In the US, if you are not at such a facility, I say get yourself to an NCI designated comprehensive cancer center. If you are at one, ask for a different oncologist. https://www.cancer.gov/research/infrastructure/cancer-centers/find

      7 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I have something sitting on my right adrenal gland. However, my something is probably a benign cyst as it hasn't budged in 8 years. I hope yours is nothing.

      7 months ago
    • Paperpusher's Avatar
      Paperpusher

      I will join the others who are recommending a second opinion. My husband had this happen with SCLC. A shadow showed up on his post op 6 month PET scan that the radiologist said looked suspicious and should be checked out. The surgeon was so XXX sure that it was just a artifact from the surgery and refused to do anything. Ten months later my husband developed a cough. His PCP gave him an inhaler. Two months later he was getting chest pain and pain with swallowing. A simple X-ray showed a tumor in his RUL that was too large and poorly placed for surgery. More tests and then chemo and radiation followed. I've always wondered what would have been possible if it has been found sooner.

      7 months ago
    • andreacha's Avatar
      andreacha

      No hesitation here to recommend a new Oncologist A.S.A.P.!!!

      7 months ago
    • KB2013's Avatar
      KB2013

      Paperpusher—my fear exactly.

      7 months ago
    • EileenS's Avatar
      EileenS

      When in doubt, check it out. NOW. If the doctor has an issue with that, let it be his problem, not yours. Find another doctor. NOW.

      7 months ago
    • KB2013's Avatar
      KB2013

      2943, I don’t feel like the Captain, I feel like I’m standing blind-folded on the ship’s plank.
      I also am with their palliative/hospice center doc but for sleep, not cancer. Could it be insurance sees that and tells doctors to not treat me for ‘growth’ ? I know I sound paranoid but I’ve got chest pain now and depressed. My face has aged five years in one year and it’s from stress.

      6 months ago
    • 2943's Avatar
      2943

      Kb2013, while you are in overwhelmed place right now, YOU ARE THE CAPTAIN, if you want. My team sought answers thru tests, exams, compared ideas with others and presented me with facts and options for treatment. I had kidney removed, 9 days later left breast .. two primary cancers. 14 months later I had a partial lung resection due to 3rd primary cancer. I started this journey with a breast surgeon that did not make sense so went to a big, teaching hospital that ended up ranked in top 10 in nation for a second opinion. They saved my life! I never went back! I am close to a 5 year anniversary to this journey. Take a deep breath. Share with medical team your feelings. It is ok. Hugs!

      6 months ago
    • EileenS's Avatar
      EileenS

      KB2013 - I believe in God and the power of prayer. I am walking proof of that power, having survived two breast cancers in seven years (the second led me to bilat mastectomies and TRAM flap) and then two lung cancers, two years apart (not a surgical candidate). My second chemo drug was keytruda and I took it for two years, only to develop chronic ulcerative colitis. My lung cancers are in remission and my current biologic for the UC has reached total efficacy so I am going to a major med center to be re-tested and hopefully find a new and better treatment. I am 25 1/2 years from my first breast cancer (at age 50) and almost six years from my first lung cancer (at age 70). I AM NOT FINISHED WITH MY LIFE YET. I hope you (and family/friends) also believe in the power of prayer and are asking God to guide you to a physician who can truly help you--emotionally and physically. You need some answers - NOW. You are on my prayer list. :)

      6 months ago
    • KB2013's Avatar
      KB2013

      Thank you everyone for confirming my suspicion about the need for further evaluation. I had a simple chest xray which showed nothing (no surprise) and the onc’s office said due to Covid precautions, I will have a scan at the end of April. This time I’m telling the dr. I want the thing biopsied. Thank you everyone.

      6 months ago
    • EileenS's Avatar
      EileenS

      KB2013 - hang in there. Lots of prayers going out for you. Please keep us posted. Hugs....

      6 months ago
    • KB2013's Avatar
      KB2013

      Thank you, EileenS.

      6 months ago
    • cards7up's Avatar
      cards7up

      What size is it now after growing for 3 years? they don't usually biopsy until it reaches 10 mm or 1cm.

      6 months ago
    • 2943's Avatar
      2943

      I have had biopsies on smaller tumors and was able to start treatment that much sooner. Most recent was .6 lung tumor. They have to be skilled which is why going to a major cancer center important. I travel over an hour ( covid time, non covid it was 2.5) each way to go to a top 10 in the nation. It has saved my life. I started at an area hospital. When I went to this second and had a scan they found issues that a week before had not been seen. They are more experienced and it is beneficial to me. Hugs!

      6 months ago
    • Shoeless' Avatar
      Shoeless

      A large teaching and research hospital associated with a major university is always your best bet. That's where you will find the latest techniques and the most experienced doctors working with the largest and most knowledgeable teams. Never stay small and local when your life is on the line. I drove 3 to 3 1/2 hrs. each way for my treatments after the local doctors told me to go home and spend my remaining time making quality memories with my family. That was 20 years ago.

      6 months ago
    • 2943's Avatar
      2943

      Shoeless, exactly! We are not being snobs. They work in world seeking solutions to this ugly disease. I have been in clinical trials right as they started, the equipment in state of the art, etc. saved my life. Five years ago, I had a 20% chance of being here now. And I am showing no cancer!!! Hugs

      6 months ago

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