• Swollen lymph nodes and thyca

    Asked by Wega on Thursday, August 28, 2014

    Swollen lymph nodes and thyca

    I was diagnosed with thyca on July 2013, had full thyroidectomy + left modified dissection of the neck to remove lymph nodes cuz metastasis. Had RAI on August. Check up on February showed clean scan but some antibodies left. Since January I got some swollen lymph nodes on the left side of my neck. Ultrasound in April showed 3 swollen lymph nodes on the left side, all looking benign. I did second US on Monday, got results today. I got 17 swollen lymph nodes from 3 to 14mm in both sides of the neck. They still have benign characteristics: hilium, no blood vessels.

    I'm feeling quite frustrated here, my doctors tell me I shouldn't worry they are looking benign, but they told me the same for 2 years since I started growing nodules on my thyroid, they assured me getting cancer was almost impossible cuz i was 27yo, healthy girl. All US showed benign characteristics till they did a biopsy. This feels like a déjà vu. I guess there's no question here, I'm scared cancer is still there...

    7 Answers from the Community

    7 answers
    • donnatu9122's Avatar
      donnatu9122

      Wega, I am so sorry you are going through this. No doctor or Radiologist can tell if it is cancer without a biopsy. I can't believe they told you it does not look like cancer after what you have already been through. If it is cancer, you will do what has to be done with the courage you had In 2013. We are here for you, any time of day or night.

      over 7 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Have you reminded them that they thought your first tumors were also benign? What are they trying to save by not doing biopsy? I would surely think better safe than sorry but that's just me!

      over 7 years ago
    • cam32505's Avatar
      cam32505

      I also had thyroid cancer in Aug, 2012, completed treatment by Dec, 2012. Even when the doctor had a needle in my neck, he told me that it probably wasn't cancer and if it was, this was the best kind to have. I think maybe he needed a few needles in his neck. Anyway, there's no way to know for sure from a scan. If you don't feel confident in your doctor's opinion, seek a second one. You already know they were wrong the first time. This is your life you're talking about and nobody but you cares about you. You have to be your own advocate. The insurance companies like to deny tests because they're expensive. Doctors think they know everything, which we wouldn't even have cancer if they knew everything. Take care.

      over 7 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      You may want to seek out a new team of doctors. I would think they would biopsy the ones greater than 1cm. I had some whoppers over 3cm. I then went on to a TT and a right and central neck dissection. The treatment all ended in June with the RAI. Checkup in October.

      Sending you only the best thoughts.

      I'm 56, but it seems there are more cases of people your age getting thyroid cancer. Check out the thyroid cancer board at inspire dot com.

      over 7 years ago
    • jollymon's Avatar
      jollymon

      I agree with Crazy Harry, it's time to find a new team of doctors. Don't know where you live but I have a great endo I wish you could see in NC.

      over 7 years ago
    • Wega's Avatar
      Wega

      Thank you all of you who take time to respond. @donnatu9122 @LiveWithCancer @cam32505 @CrazyHarry @jollymon It's been such a nerve raking weeks... my endocrinologist wants a biopsy but my oncologist think it's not necessary cuz my thryoglobulline is undetectable and my antibodies (which I still have) are going down. I do feel quite frustrated because everyone thinks I'm overreacting. Also I had some change in dose of levothyroxine, oncologist want me to put out of supression theraypy and since they are lowering my dose I feel so hormonal, a lot of mood swings, tiredness, exhustion, a bit of nausea, but everybody thinks I'm just overreacting, that I'm moody and I'm not grateful to be cancer free, when I have so many lumps in my neck and I just feel like a ticking bomb. It's good to have you all as a support.

      about 7 years ago
    • jollymon's Avatar
      jollymon

      I would call my endo and ask that I have a prescription for Synthroid-Brand name only or better yet Armour. I feel so different on Armour than even Synthroid and the doctors all poo-poo Armour, but I personally love it. I have tried levothyroxine twice and had some of the same problems you are having. My daughter and sister cannot take that stuff either. So before you jump into anything please request a change in meds. I truly think you will see a difference.

      about 7 years ago

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