• symptoms that cancer has spread

    Asked by carmeldean on Friday, December 19, 2014

    symptoms that cancer has spread

    My triple negative breast cancer has returned, at least locally. I am waiting on insurance to approve pet scans to see if it has spread further. I know I shouldn't torture myself, but I have to know. Every pain I have I feel like it's the cancer. I had extensive reconstruction surgery that included abdominal surgery so that area is always bothering me, but now I keep feeling a constant pressure on my incision area. Is that what it would feel like if the cancer is in my liver and spreading? I have no constant pain. I'm also not sure if my extreme exhaustion is the cancer, the stress, or the valium! Any input, even scary input is requested. Thank you.

    9 Answers from the Community

    9 answers
    • GregP_WN's Avatar
      GregP_WN

      I'm sorry you are having to go through this again, these times of waiting on tests and waiting for the "other shoe to drop" are tough. Rather than worry about where it has spread and how much, if it has, etc. I tried to just concentrate on the fact that I had it again, and whatever it is, it's just cancer again and I had already done it twice before, so I knew what was coming. I just told myself that I did it before, I can do it again! So let's go!! It helped me keep from freaking completely out. I wish the best and very little spread for you. Please do let us know once you get the PET done.

      over 6 years ago
    • cam32505's Avatar
      cam32505

      I know you're anxious, but it will take time to get these tests scheduled, complete, and results. Since you already know your cancer has spread, you know you will need some type of treatment. I'm not sure if surgery would be an option, but I would imagine that chemo and/or radiation would be in the picture. As for how it feels when the cancer spreads, it's different for many people. My friend had breast cancer recur and she felt like she pulled a muscle. They found the cancer in her rib, lungs, and liver, yet she only felt the pulled muscle.

      over 6 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Every case is different, but i suspect many of the aches and pains and exhaustion are caused more from worry and stress than anything else. I hope so! It is tough to have to fight cancer once, the thought of doing it again would be scary and exhausting. I hope your PET scan is approved quickly so that you will know what you are up against and can get to the business of winning the fight against the cancer again. Best of luck and let us know!

      over 6 years ago
    • cllinda's Avatar
      cllinda

      I had no symptoms. I just went for my normal, yearly mammogram and there it was. And just a couple months before, my son was seriously hurt in an accident and I was his caregiver. So we had a double whammy hit out family in 2012. Things just happen.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Why do you think the pressure on the incision is from a spread to your liver?
      Is there tangible evidence NOW before the Pet Scan that it has come back or are you just guessing?
      The extreme tiredness can be from a lot of things. You may be anemic....what do you eat everyday?
      What dose of valium do you take and have you changed the dose recently?
      It's Normal to think every new pain is the cancer back or spreading.
      Have you stopped drinking coffee or tea lately?
      If you drink coffee when you first wake up you should also take another cup after lunch or you will drop...ALSO check your blood sugars....very important. GOOD LUCK and keep us posted.

      over 6 years ago
    • msesq's Avatar
      msesq

      I had zero symptoms of Breast cancer and it was picked up by. Mammogram and ultrasound. I can't tell you how many MDs did Breast exams and felt nothing. I ended up with 2cm invasive tumor and 7cm DCIS which wasn't even picked up by an MRI.

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      I’m so sorry that this has happened to you!!! And I hope that the PET Is approved quickly so that you can get that over with and at least know what you are dealing with! Because you don’t know until you know! And the waiting part is always awful!
      Pain is always scary for a cancer patient because it could be a sign of the cancer, or it could not! I’ve had a few scares myself recently with pain. One turned of these episodes turned out to be the cancer termites chomping on my spine, and the other pain episode turned out to be absolutely nothing- or just regular muscle aches. UGH! It is so scary and so confusing sometimes, but hopefully the pain that you are feeling is not from the cancer.
      And the fatigue could easily be caused by the valium or the stress, because if you are stressed you probably aren’t getting enough sleep.
      Just be sure that your doctors check into everything for you! Leave no stone unturned and make sure that you get solid answers. Cancer pain is usually ( not always ) constant pain, but the pain near the incision site could also be caused by healing muscles, again you don’t know until you know. Good luck with this and please keep us posted! God bless!

      over 6 years ago
    • gwendolyn's Avatar
      gwendolyn

      I suspect your exhaustion is from the stress (or possibly the Valium.) I hope you get answers soon. Meanwhile, try to distract yourself from feeling every ache and pain and imagining the worst. This is easier said, than done, I know. Hang in there.

      over 6 years ago
    • carmeldean's Avatar
      carmeldean

      The good news is my brain scan and PET scans were clean. They went back in to get better surgical margins where the new lump was found and another nodule was found and sent out to be tested. I see the oncologist today to see what my course of treatment and prognosis will be.

      over 6 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more triple-negative breast cancer, ductal questions.  Also, don't forget to check out our Triple-Negative Breast Cancer, Ductal page.