• tamoxafin or not???

    Asked by roni on Monday, March 18, 2013

    tamoxafin or not???

    4 Answers from the Community

    4 answers
    • AlizaMLS's Avatar

      Dear roni,

      Hi, I'm Aliza a BC patient and Medical Librarian (retired). I do research and referrals for people on this site and elsewhere. Your question is too open ended to answer (I've answered lots of Reference questions in medicine and other subjects, so I know). You don't give enough information. You don't have any experiences (I've checked) so we don't know anything about your breast cancer, so no medical professional on the site could possibly advise you as to what to do re Tamoxifen and I believe you had an earlier question re a mastectomy. You need to put in the details of your illness before we can be able to help you.

      Please fill in your information and then ask your questions and we'll be glad to help!

      Best wishes,

      If you're having difficulty filling out the info and wish to chat with me privately, feel free to email me offsite.

      over 3 years ago
    • roni's Avatar

      ok- i had breast calcification that were tested and diagnosed with stage 0 DCIS.....in two spots. I chose to have a nipple sparing mastectomy with lymph node removal- all margins clear. No chemo or radiation but the Dr wants me to consider going on tamoxifen. Not sure if the risks of the meds will outweigh the risk of BC coming back

      over 3 years ago
    • AlizaMLS's Avatar

      Dear roni, That's good because it's a bit more background. You should post it on the "About You" part of your profile so we (the community here) can all see it each time you have a question (so we don't have to nag you...;))

      The question is whether you were ER+ (Estrogen Receptor Positive). I will tell you that as a Librarian, I don't/can't (choose your verb) offer medical advice (unlike others on this site). I can be sued if I do and I'm wrong. I came online in both patient, And (underline and) my professional capacity and in doing so I have to follow the tenets of my profession which are not to practice Medicine (or Law if I was a Law Librarian {I'm not Thank G-d!}]) without a license (dispensing medical advice [though it doesn't seem so] constitutes that]. It's unethical and technically illegal for me to do so. I feel that I compensate for that in my ability to be able to refer people to sources that others are unable to and to speak about medical matters in a way that gets people to think about what they need to do for themselves (I'd written my entrance essay for Library School about how I wanted to empower people to be able to learn from me how to research for themselves and think for themselves in a different way).

      Having said that, there are others on the site, including medical professionals (some who even are not patients) who I'm sure would be glad to give their opinions re Tamoxifen. I'm interested, you ask the question about Tamoxifen but is that because you've heard so much about it or because your Oncologist has advised it and you're considering it, weighing the risks against the advantages? In that case, I'd advise a second opinion (which is always an excellent idea regardless).

      What I'm able to do is to speak from my personal experience as a Cancer patient and those of my family members and friends with cancer (we number many unfortunately).

      As a BC patient, I was found to have Stage I last August. I had a skin sparing mastectomy in Dec. I am HER2-, ER+, PR+. I had Oncotype genetic testing that indicated my chance of recurrence was very low - as low as any person in the general public and it was determined that chemotherapy would not benefit me. So the only treatment my Oncologist wants me to have (I'm treated at Memorial Sloan Kettering in NYC, btw) is Tamoxifen. I'm very lucky as I was able to avoid having chemotherapy and as of this month, it will be 4 months that I'm Cancer free. I'm still considered a Breast cancer patient (a survivor) and I'm not "in remission" until I'm cancer free for 5 years".

      I'm compiling (if you look at questions under Breast Cancer or you "follow me (AlizaMLS) a bibliography of books that have helped people deal with their Breast Cancer - The title of the questions was "What books have helped you deal with your Cancer (I didn't restrict it to Breast , though the label I have sometimes does that-I'll have to speak with the powers that be re that, but a book I'd recommend that you get and read is "The Mayo Clinic Breast Cancer Book" By the Breast-health experts at Mayo Clinic Cancer Center. It's endorsed by doctors at Johns Hopkins, Memorial Sloan Kettering and MD Anderson. It's an excellent book as it covers everything from the moment of diagnosis through all phases of Cancer and treatment through Survival and even death. It has a complete listing of wonderful resources in the back of the book. Btw, in the purple box at the bottom right of this page is also a listing of resources that you may find very useful. Just click on that button.

      I hope you fiind something helpful in what I've said here even though I haven't directly answered your question. You do need to fill in your info on the site so everyone can see it - flll in those little virtual event stickers and move them into place. Provide details. This way, others can be of help and I, at least will know what sources and books to refer you to.

      Oh and you may want to contact CancerCare-the folks there offer counseling for Cancer patients and their caregivers and they're wonderful. Not like "regular therapy"/

      Wishing you a good outcome whatever path you choose (they caught it early),

      over 3 years ago
    • Nomadicme's Avatar

      Yes do go on it.

      over 3 years ago

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