• Taxol side effects

    Asked by Valentinegirl on Sunday, September 16, 2012

    Taxol side effects

    I finished 4 AC treatments two weeks ago, and was fortunate enough to have experienced minimal side effects. I had my first taxol treatment on Friday, and last night began having tingling in my hands. I knew that neuropathy was a potential side effect of taxol, but did not expect to have this the day after my first treatment. Did anyone else experience this? Is there anything that I can do about it?

    I have also heard that once you complete AC, and then moves on to taxol, your hair may start to grow back. Is this true?

    12 Answers from the Community

    12 answers
    • lynn1950's Avatar
      lynn1950

      Boy! I had tingling as a side effect, too. My nails were extremely funky. My chemo ended in August and I did not have an appreciable amount of hair until January! That was with dose dense AC and then taxol.

      over 4 years ago
    • nancibee's Avatar
      nancibee

      I can't speak to the tingling since I have had occasional tingling from my MS since 2002. It is minimal now and I am going through carbo/taxol treatments so who knows which is causing it. . I take gabapentin to supplement my insomnia ambien but I have heard it helps tingling if it really bothers you. You should speak to your oncologist.

      The only side effect that I do believe is from the chemo is acid reflux, not nausea. I take tums and zantac. I've heard that zantac can lower neutrophils though so I try not to take it if tums or not eating too much at one time or avoiding spicy foods works. I saw rantinidine on one list of drugs that can lower neutrophils but only one list. Since I had to delay one chemo cycle, I just decided to take the "when in doubt" approach.

      As far as hair loss goes, I have never heard of it not growing back.after treatment but not during taxol treatment. But maybe I am wrong since I don't worry about it because what will happen happens. .I am having carbo/taxoi and have gray stubble. I guess the gray hairs don't grow as fast as the ones with color. Chemo kills fast growing cells. Think of it this way - a positive aspect to chemo is that showers and getting ready in the morning becomes much easier. I don't have to shampoo, condition or shave my legs and armpits. I am in and out in no time.

      over 4 years ago
    • bjriise's Avatar
      bjriise

      I also had 4 AC treatments from Feb 2012 through April. I started 12 treatments of Taxol at the end of April and had my last one July 12, 2012 about midway through my Taxol treatments my hair started to grow back and is about an inch long now (September 17, 2012). So yes for some people it does start growing back :-) I was told that my hair would not start growing back until I was done with the Taxol so I don't think it is very common for it to start growing so soon. I did experience tingling in my hands and feet but it was not until after I had quite a few Taxol treatments. Good luck with your treatments!

      over 4 years ago
    • ticklingcancer's Avatar
      ticklingcancer

      GABAPENTIN!!!! I suffer from neuropathy due to 12 weeks of Cisplatin (I was also treated with Etoposide) Gabapentin is a miracle drug. I take 900 mg every morning. I hope your's gets better!!!

      over 4 years ago
    • Gibby's Avatar
      Gibby

      Taxol has left me with Nuropathy in my hands and feet, it also has grown all hair back even in places where no hair had been in years. Oh, did I say that after my 4th treatment (last one) my cancer has not returned, going on 3 years.

      over 4 years ago
    • KFH's Avatar
      KFH

      My hair started growing back before I was done with Taxol, but I also lost my eye lashes and eyebrows once I started Taxol. I also used tea tree oil on my nails to reduce the chance that the nail would lift off the nail bed. I only had minimal tingling and mine, too was when I got near the end of treatment. (I finished on August 31st). I would make sure to talk with your oncologist about the neuropathy. I was getting a smaller dose once a week, but I know other treatments people are on where they get a larger dose every other week. I recall the purpose of smaller doses more often was to minimize the neuropathy (but I may not have that accurate). Good luck. I wish you all the best. I turned 49 while going through treatment.

      over 4 years ago
    • debco148's Avatar
      debco148

      Hi Val,
      I had the exact same thing happen to me. I did pretty well on the 4 AC treatments, even did my Zumba on the days I felt better..usually wore off after the 3-4 days of fog. But, I had one Taxol treatment on 7/10 and it changed me completely. Now, I will say each of us is different so you must have a frank discussion with your oncologist and not take this as advice, it is only what my doctor felt was right for me. My oncologist took me off Taxol after the one treatment. Since there is no active tumor left after mastectomy she felt the risk far outweighed the reward. She believes that I had enough chemo to kill off any escaped cells with 5 total treatments. She said if I got such a strong reaction after just one, that I could risk further permanent damage. Please do what your doctor tells you to, but mine felt it was safe for me not to continue. She also told me that taking 200mg of B6 daily helps with tingling and it has. As of now, it is almost gone. If you have to continue with the last 3 doses, ask about the alternative drug available. I can't think of the name but it begins with an A. I also had terrible leg pain, since Taxol may effect muscles and the Neulasta (to keep blood counts up) effects bone. The combo was terrible for me. This is finally dwindling, but I stretch, exercise, and had Reiki treatments that helped a lot. As far as the hair regrowth, no.. actually I never lost it all during a/c but then it all fell out on the one hit of Taxol. Also, I lost eyelashes and brows as well. I will tell you that my friend gave me some stuff from Mary Kay that conditions eye lash and brow and wow it works, called Eyelash Serum. They have come back nice and thick now since I've had no more Taxol. Now I'm doing 28 rounds of radiation to insure all tissue around the breast is clear as well. It was explained that the chemo hits whats floating around, but the surrounding tissue and any nodes left need the radiation. Just make sure you tell your doctor of your side effects, concerns, etc. There are ways they have of changing things that will help you respond better. Each of us is so different, and we all have to listen, research, talk to our docs, and make decisions once we have all the facts. Wishing you well.. let me know how all turns out..
      Deb

      over 4 years ago
    • lamyrasp's Avatar
      lamyrasp

      Hi Valentinegirl. I had 12 treatments of Taxol and do have some lingering neuropathy in my feet and the tips of my fingers. I have tried the B6 but cannot say that I can notice any improvement. Certainly, it is worth trying, tho.
      My hair did not start to grow back until after I completed the Taxol and had begun radiation. But I have heard of other folks who did start to have hair growth with Taxol.
      I wish you the best and will send good thoughts out for you. This treatment is not fun but it is doable, for sure.

      over 4 years ago
    • Irishwarrior's Avatar
      Irishwarrior

      Glad to hear minimal side effects with your AC. I had rough time with AC. I had tingling with 2nd taxol. Friends who had taxol said put ice packs on feet and hold ice pack in hands during taxol infusion,they did and had minimal/no tingling. I did this faithfully, it really helped! Did wrap up in warmed blankets during taxol as was cold from ice packs. Few times got tingling in feet/ hands at home, quickly put ice pack on for about an hour and tingling resolved! Wore socks so ice pack wasn't directly on skin. My hands were okay holding ice pack, but cold. After 12 taxol only had minimal tingling in few finger tips that resolved in several months. If you use ice packs ask your oncologist/nurse first and avoid frost bite. My hair slowly returned during taxol. So sorry for all your going through. Life does get better!

      over 4 years ago
    • tailor's Avatar
      tailor

      Taxol made my fingers go numb and start tingling immediately. So I was switched to Taxene. That made them burn. Since I'm a tailor and need to be able to pick up pins and needles, my doc let me quit that stuff. I drank lots of water to flush it out. Don't know if that made any difference, but I'm better now.

      over 4 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Everyone is different... but my hair stayed gone on Taxol. Ask your oncologist regarding taking anything for side effects. After I stopped doing Chemo I take
      Vit. B-12 The kind you desolve under your tongue. As long as I keep taking it my feet are less numb... but if I quit... they start to go numb again. My fingers and feed are numb, I say I walk on clouds and touch only soft silk. BUT it really doesn't stop me from living. No High heels, balance problems with no feeling in feet. But I danced at Grandsons wedding. My fingernails became week, but with a good acryllic manicure... still have nce nails. (Had these after completing Chemo) I didn't do anything but keep them very short when taking chemo. As for hair.... It all started growing back nicely all over my head after my first year of chemo. However I then did another year of once a month chem.... It didn't grow back thick enough to actually style and wear. I bought several PaulaYoung.com wigs and have the prettiest haIr now. I suggest getting ideas from your oncologist on what is acceptable with your treatment for symptoms. We got a page of instructions with each type of chemo and what it's side effects were/are and how to deal with them. I have taxol here somewhere if you don't have access I can send to you.

      over 4 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Everyone is different... but my hair stayed gone on Taxol. Ask your oncologist regarding taking anything for side effects. After I stopped doing Chemo I take
      Vit. B-12 The kind you desolve under your tongue. As long as I keep taking it my feet are less numb... but if I quit... they start to go numb again. My fingers and feed are numb, I say I walk on clouds and touch only soft silk. BUT it really doesn't stop me from living. No High heels, balance problems with no feeling in feet. But I danced at Grandsons wedding. My fingernails became week, but with a good acryllic manicure... still have nce nails. (Had these after completing Chemo) I didn't do anything but keep them very short when taking chemo. As for hair.... It all started growing back nicely all over my head after my first year of chemo. However I then did another year of once a month chem.... It didn't grow back thick enough to actually style and wear. I bought several PaulaYoung.com wigs and have the prettiest haIr now. I suggest getting ideas from your oncologist on what is acceptable with your treatment for symptoms. We got a page of instructions with each type of chemo and what it's side effects were/are and how to deal with them. I have taxol here somewhere if you don't have access I can send to you.

      over 4 years ago

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