• Taxotere and hair loss

    Asked by whatnext54 on Saturday, October 27, 2018

    Taxotere and hair loss

    I have read about taxotere and permanent hair loss so I used the Dignicap with my first treatment. I have started losing hair and was wondering if anyone else has had to use taxotere and suffered permanent hair loss even with Dignicap?

    10 Answers from the Community

    10 answers
    • cllinda's Avatar
      cllinda

      I did not have this when I went through BC. But a lady in my art group had it and she lost about 40% of her hair. It's not a guarantee that you don't lose any hair but it is supposed to help so you don't lose it all.
      I would ask the doctor about the hair loss.
      It is such a tough part of cancer treatment. The chemo kills fast growing cells, like cancer cells but it also kills hair and nail cells. I lost all my hair, and it was rough. Wore lots of scarves and hats. Hugs to you for this part of the journey.

      6 months ago
    • whatnext54's Avatar
      whatnext54

      Thank you so much for taking time to respond. The hair loss would be fine if it wasn't permanent. That's the part that scares me. A forever, daily reminder.

      6 months ago
    • beachbum5817's Avatar
      beachbum5817

      I had Taxotere in 2014, and I started losing my hair after my second treatment. I had my husband shave it, because I didn't want it falling out in public. I had never heard of a cap that could be worn to reduce hair loss. I hated losing my hair. For me, it was the worst part of my treatment. I also didn't know until I saw ads about law suits against the maker of Taxotere that hair loss could be permanent. I'm sure it must have said it in papers I was given, but I didn't read everything. My hair did come back. I don't have as much hair as I did before treatment, but I do have a full head of hair. My decrease in hair also could be somewhat due to the aging process. If I ever have to do it again, I would definitely use the Dignicap. I hope that the little bit of hair that you have lost will be all that you do lose. Keep us posted on how you are doing. Good luck. Take care.

      6 months ago
    • junie1's Avatar
      junie1

      my daughter, had taxotere,, and she lost her hair, but like most, she shaved it after the first bit stated falling out. it's easier to deal with loosing, it you shave all at once. She didn't know at the time that the taxotere could cause hair loss and it might be permanent. Now 6+ yrs later,, she has very thing hair. ( she had a full head of hair before,, and thick also),, But she is ok with the fact that hair is just part of your being,, She's just happy to be here, alive, and can spend time, and more years with her girls. She found out that the taxotere was the reason for her hair Not coming back as good as it originally was,, and nothing she has used on her head, or taken as a supplement, has worked.
      With my girls and I going thur BC, we all know that life is the most important thing. I lost breast,, so did my 2 girls and my mother,, Hair loss,, No big deal.
      Sorry, for you having to go thur this,,, both the Cancer and dealing with the hair. Stay strong,, Bless all of us.

      6 months ago
    • Helayne411's Avatar
      Helayne411

      I just completed chemo last week. The suggested protocol was Cytoxan and Taxotere. After reading about the possibility of permanent hair loss from Taxotere I told my oncologist I refused to take it, even if there was only a very small percentage of people that experienced this side effect. She allowed me to switch out the Taxotere for Taxol. I advocated for myself all the way through treatment. I read and researched a lot. I sought out a dr at Memorial Sloan Kettering that was knowledgeable about herbs and supplements and added his recommendations to my treatment. I worked with an integrated health team that suggested acupuncture to help with nausea and neuropathy. Another survivor taught me about keeping my hands and feet on ice during treatment so I wouldn’t lose my nails. I am happy to say I had no neuropathy, and have all of my nails. The nausea was isolated to day 3 after treatment. I have hair loss but look forward to regrowth in the near future. Good luck!

      6 months ago
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      I know all too well the trauma of losing hair tochemo. I cried a lot when it happened to me, and I dreaded the thought of baldness being permanent. Unlike the aforementioned posts, I refused to shave my head because it was still a way cancer could take my hair. OK, I had to accept losing most of it, but what was left of my real hair was my way of saying cancer picked the wrong person. That head of baby fuzz refused to fallout, and I babied it in order to let it go or stay naturally. I can surely thank God for this, but my hair returned just the same as it was before cancer. Like Beachbum5817, I never was given any caps to reduce hair loss. I do hope you don't lose all your hair, and I hope it all grows back just as nicely. HUGS and God bless.

      6 months ago
    • msesq's Avatar
      msesq

      I had Taxotere chemo July-November 2014 just as the cooling caps came out and before the news that Taxotere could cause permanent hair loss. My hair started falling out two weeks after the first infusion and like others I shaved my head. By March 2015 I had enough hair to ditch the wig which was uncomfortable. Weirdly my eyebrows and lashes fell out in February 2015 well after treatment stopped. The hair on my head grew back just fine but I had my eyebrows microbladed several months ago because they came backbsparse. The eyelashes on one eye are uneven and I have to use more mascara to make them look even. Despite that I am happy to be cancer free.

      6 months ago
    • MLT's Avatar
      MLT

      I had taxotere in 2009. Shaved my head as soon as my hair srarted coming out. Wore scarves, didnt like wearing my wig. My hair came back thick and wavy.
      Now I am on Adriamycin. When my hair started falling out, I had grandkids and family members shave my head. Hair was coming back curly, but now it is falling out again. If it continues, it will be time for the razor again. Chemo nurses told me the cooling caps are not real effective, but some do have good results.
      Hope yours works for the rest of your hair! Best of luck with your treatments.

      6 months ago
    • banditwalker's Avatar
      banditwalker

      I guess it comes down to deciding, would you rather be bald the rest of your life or take the chance of cancer coming back which may have been the result of not doing treatment.
      I didn't think twice about losing both breasts and losing my hair. My mother is still alive. Dying before her was my biggest scare.

      6 months ago
    • lynn1950's Avatar
      lynn1950

      Lost my hair to chemo. I had my head shaved when it started falling out. Friends gifted me with beautiful hats and scarves. I saved the soft ones for bedtime. Who knew a bald head would be so cold.

      My hair grew back, except half way up my shins. Except for summer I rarely shave my legs!

      6 months ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more invasive (infiltrating) ductal carcinoma questions.  Also, don't forget to check out our Invasive (Infiltrating) Ductal Carcinoma page.