• Thanks and more questions

    Asked by jennjd00 on Wednesday, March 27, 2013

    Thanks and more questions

    First of all thank you all for your responses and genuine concern. God Bless you! My brother's case is a little difficult. He has VRE, he also has Miltonic Dystrophy. They have been unable to get his bone marrow back up, or his WBC back up. He is really not allowed out of his room due to the VRE. In fact when we all visit we have to put robes, gloves and masks on. He still does not eat much as they have to give him Chlorhexadine mouth wash to help him not get mouth sores and this makes food taste bad to him along with all the antibiotics they give him, his stomach gets queasy very easily. His muscles are very weak from his MD and now being ill from chemo etc. I am just so concerned, I want to help but am at a loss. he needs something other than cancer talk, death talk, medication discussions etc. What bit of life, or light can I be allowed to bring into his room he cannot leave? I know he must feel like he is in prison. Any suggestions are appreciated. :)

    3 Answers from the Community

    • LisaLathrop's Avatar

      Do you have a laptop, iPad or such? if so, sign up for an account at www.caringbridge.com. The messages from outside people who pray, care, love, and send well wishes was a Godsend to me. Also, even though visitors still need to "dress up" to come into his room, invite his friends, neighbors, kids, grandkids, etc. You husband sounds like he is in dire need of good conversation and company to take his mind off the obvious difficulties he is having. Short visits are best...but indeed will do the trick. How are YOU holding up? Be sure to get time to yourself, even if it is a short walk in the halls and by all means....get into a SUPPORT group. Many hospitals hold them regularly (mine does every Thursday - and I still go back to offer support to those who are struggling the way I did) - ask your nurses or PAs. God Bless and keep searching for the answers to make your patient realize that there are so many more people out there who are worse off then he is. STAY POSITIVE!

      over 3 years ago
    • Peroll's Avatar

      Does he have an iPod or MP3 player? A little music or an audio book may help him pass the time. When in the hospital I spend most of my time with ear buds in so I dont have to listen to the other noises and it helps in getting rest. Good luck and we will say a prayer for him and for you.

      over 3 years ago
    • jennjd00's Avatar

      We have all the electronics but he just has not interest in watch TV or movies etc. I did get him some old time country music cds and we do play them and he just lays there and listens or falls asleep. I do have a caringbridge account for him. I try to crack jokes and bring happy memories to him when I am there. I keep trying different things I guess that is all I or my siblings can do to help him. We just keep trying. Thank you both for you great suggestions :)

      over 3 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more acute myeloid leukemia (aml) questions.  Also, don't forget to check out our Acute Myeloid Leukemia (AML) page.