• The Cost for Revlimid-a multiple myeloma chemo drug, has skyrocketed to over $16,691.00 a month.

    Asked by GregP_WN on Monday, January 28, 2019

    The Cost for Revlimid-a multiple myeloma chemo drug, has skyrocketed to over $16,691.00 a month.

    Has your chemo drug cost shot up dramatically? What are you taking and what are the recent costs? How are you able to pay for it, insurance, financial aid from somewhere or are you fortunate enough to be able to pay the costs out of pocket?

    Our blog post today focuses on Revlimid and Multiple Myeloma and the skyrocketing costs, mostly due to no competition for that drug. Click here for the article>> http://bit.ly/2COg7u1

    9 Answers from the Community

    9 answers
    • ticklingcancer's Avatar
      ticklingcancer

      Does it really cost that much to create a drug to treat people? It’s ridiculous. Getting wealthy off the sick.

      over 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      My immunotherapy drug is over $30,000 a month. I can't remember exactly what the drug costs, but it is a lot. It was even more when I got the infusions twice a month instead of monthly.

      Fortunately for me, insurance covers most of the cost of my treatments.

      over 1 year ago
    • po18guy's Avatar
      po18guy

      Well, let's see... the clinical trial drug KD025 was guesstimated at $49/mg. I took 400mg daily, therefore, I walked out of the facility each month carrying a plain white paper bag with $588.000.00 worth of drug in it. That one was free for risking my life. Current drug (Ruxolitinib/Jakafi) is only about 13K monthly, but thanks to the blessing of good insurance, it costs us only a $60 co-pay.

      over 1 year ago
    • andreacha's Avatar
      andreacha

      I'm one week on and one week off with my oral drug, Sutent. So that is 14 capsules at close to 9,000 a month. My insurance covers most and the copay of 1200 or so is paid by a wonderful do-pay foundation. Compared to the rest of you I am very fortunate.

      over 1 year ago
    • Bankerpat52's Avatar
      Bankerpat52

      Well being retired and on Medicare if I needed a drug like that I'd probably have to die since with the donut hole and no cap I'd be bankrupt in no time. This country is ridiculous when it comes to health care.

      over 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Bankerpat52, I too am on Medicare. So far, no issues whatsoever. I've been on the very expensive treatment with them paying for it for about 1.5 years now. I was in clinical trial prior to that which saved them an incredible amount of money and also saved my life.

      I have been very fortunate with our country's health care system so far.

      over 1 year ago
    • Molly72's Avatar
      Molly72

      I add my voice to most of the stories above. The price of Retuxin was laughable.
      I had to apply for financial help for Rituxin for my R.A. The process I went thru to get this help was unbelievable--- then all the papers containing my S.S. # and other private information was lost by the drug company handling this fiasco. Months went by before things were settled, by this time, my condition had reached the point of no return.
      I finally started the drug, and was totally unable to continue it as it made me terribly sick. It did nothing for my R.A.
      Come the Revolution!

      over 1 year ago
    • po18guy's Avatar
      po18guy

      High drug prices. Everyone is incredulous when seeing the retail prices.

      Having said that, the cost of development of a drug from beginning to FDA approval ranges from two to five BILLION dollars. And, the majority of new drugs fail in clinical trials. Someone has to front the development money at great risk before any research takes place. Investment firms and private investors fuel drug development. In some cases, government research facilities and grants help along the way. But government has neither the time, energy nor the will to fund as many treatments as are needed. And partisan (D and R) politics can shut off or delay funding.

      Government tilts toward re-election of those who voted for funding - a corrupt process. Private funding looks for profit - a necessary evil if progress is to be made. However, there is no perfect funding mechanism. And US drug prices? They are in the stratosphere mainly because the US funds drug development fo the rest of the world - which then benefits at much lower cost. But, that is not the entire story either.

      In 2012, I interviewed with LymphomaCanada regarding their lobbying Parliament for approval and acceptance of a new inhibitor class drug used against non-Hodgkin's Lymphomas. That drug had been approved and available in the US for three years at the time. That is a lot of cancer deaths while waiting for Parliament to get off the dime. And LC advised me thast it is a regular process for them. What if they did not exist?

      Everyone wants single-payer. It sounds so good, so alluring, but it is clearly not the answer, as it moves too slowly and requires a massive bureaucracy. How does bureaucracy help anything? It helps 95% of cancer patients 95% of the time. I was in that other 5%.

      It all remains a very complicated picture, but I am thankful that the development of drugs and other treatments continues at a fast pace. I am alive because of that, actually.

      over 1 year ago
    • Allisonsue2's Avatar
      Allisonsue2

      I’m on 14 days on 28 day cycle but I get assistance through Celgene so my co-pay is only $25. Worth asking about

      over 1 year ago

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