• The "Triple Negative" part of the diagnosis concerns me. Anyone else have experience with this? Any relapse?

    Asked by fiddler on Friday, January 25, 2013

    The "Triple Negative" part of the diagnosis concerns me. Anyone else have experience with this? Any relapse?

    7 Answers from the Community

    7 answers
    • karen1956's Avatar

      TNBC is more aggressive than some other BC, but I know many gals who are long time TNBC survivors....one is 11 years another 8 or 9.....and I'm sure there are other gals beyond that......

      over 7 years ago
    • Loafer's Avatar

      Yes, there are a lot of people here with triple negative diagnosis. I just finished my chemo treatment and my onc said to consider yourself cancer free. This is a high risk cancer diagnosis with a high propensity for recurrence within the first three years. i will be vigilant and follow up again with my onc in three months. In the meantime, I will complete radiation and live my life to the fullest. Good luck to you!!

      over 7 years ago
    • Nomadicme's Avatar

      It's higher risk because other than traditional chemo there are no other tools to treat the cancer (those of us that complain about tamoxifen and AIs are lucky, as our cancer is hormone responsive which those pills can combat). Her2 positive was considered very aggressive, but with the introduction of Herceptin that has changed outcomes greatly. I'm hoping that soon they will find some other marker that can be treated, the more the better! And there are long term survivors for triple, many of them.

      over 7 years ago
    • Nomadicme's Avatar

      Chemotherapy typically reduces recurrence risk in 10 years by half. So if you had a 30% chance that your cancer would come back in 10 years, chemo brings it down to one in ten. We all face those darned stats.

      over 7 years ago
    • SusanK's Avatar

      When I first learned I had TNBC, I was very frightened because it is aggressive. I have only met two women who had TN as it affects only 10-15% of breast cancer patients, but they are both doing fine, as am I, and one one them is a 7 year survivor. I met a woman on this site who is a thirteen year survivor. That knowledge gives me hope, and I know today more research is being done on TN than ever before. Check out tnbcfoundation.org for more information.

      over 7 years ago
    • SueRae1's Avatar

      a 9 MM TNBC tumor was found in my Left Breast in September 2010. My case was complicated by the fact that I was and still am in treatment for advanced Kidney Cancer. I had a lumpectomy with extra wide margins , I was lucky that no nodes needed to be removed, followed by radiation treatment (which was compatible with the chemo for the the Kidney cancer. I received no prophylactic chemo because they did not want to muck with the kidney cancer treatment, as I was responding well to the Afintor, but had only been on it for 5 months.

      During my routine scans at the end of April a TNBC lesion of just over 1 CM was found on my liver (where my 2 small Kidney lesion reside), so far my cancers are only on my liver. I am about to start my third cocktail. The Breast cancer did not respond to the first set of drugs paclitaxel and avastin, though the kidney cancer remained stable. I was then put on carboplatin, gemzar and avistan, both my cancers shrunk, the breast cancer in particularly decreased by more then 50%. Unfortunately after being on this for 6 months, my bone marrow is shot, and my platelets are not recovering.

      I had a Bone Scan, Chest CT, and a MRI of my abdomen and pelvis, based on the results of these tests, and how well my platelets recover, my oncologist will start me on a new infusion mix within the next two weeks.

      Modern medicine is learning so much more about cancer and TNBC every day. I truly believe I can beat this

      over 7 years ago
    • barbaraanne's Avatar

      Like you, I was very very nervous about the TNBC diagnosis. Besides getting as much info from the onc & nurses, I also read up on as much info that I could find (reputable websites only)...I am stage 1, I just finished my 3rd chemo treatment and am so happy my Onc told me 1 more to go, then onto radiation. So far so good...Follow up is key. My last breast MRI, showed a little "something" on the right breast (drs said let's do chemo and we'll follow up on it). I also have a cyst on my right ovary, I did some blood work for my gyn recently, while doing other blood wrk for the onc, and he said my numbers were lower then on the previous test 11 down from 23, so I'm praying it is just that a cyst, that can be easily dealt. We must learn to stay positive..all the best to you:) oh I also spoke to a person referred to me by the ACS, who is a 14 yr survivor of TNBC, it felt so good to talk to her, she is doing fine....

      over 7 years ago

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