• The waiting is killing me!

    Asked by Coloman on Friday, December 6, 2019

    The waiting is killing me!

    I have surgery coming up but not 7 to 8 weeks. The waiting for it is driving me crazy. How bad is the pain going to be? Will I still be able to have normal bowel movements, what is going to happen afterward? These and about a hundred other questions are flying around.

    6 Answers from the Community

    6 answers
    • Bengal's Avatar
      Bengal

      My hospital has on staff a "nurse navigator" and part of her job is to answer just such questions, try to put the patient at ease , if possible, and "navigate " you through the process. Find out if your facility has such a person or equivalent and talk to them. Otherwise you'll be driving yourself crazy by 8 weeks.

      You can also ask your questions here on WhatNext. I'm sure you'll find someone who's been through something similar to what you are dealing with and can answer some of your questions. Good luck to you.

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      I too am on the waiting bus. One week to find out when the surgery will be. Guesses are 3 to 4 weeks. That's a long time to sit and stew it over.

      4 months ago
    • myb's Avatar
      myb

      I had laparoscopic surgery so very small incision on either side of my belly button. After surgery, your 1st goal is to pass gas while only having ice chips. I suggest bringing chewing gum to hospital as this helps. It took me from Surgery late thur night to Mon morning for this to happen. Everyone is different. Then a liquid diet was added which I tolerated and then later that day food for dinner and breakfast which I had a small bowel movement the next day. This allows you to be released. You never realize your stomach muscles are used to just sit up and getting out of bed will be tough. No driving until your follow up with surgeon. No lifting items 10 lbs or above and avoid stairs.

      4 months ago
    • JaneA's Avatar
      JaneA

      I had robotically assisted laparoscopic surgery similar to myb for my rectal cancer. I had several small incisions, and my pain/discomfort was well managed with IV codeine and IV Tylenol. Didn't need strong opioids.

      The fear and the waiting were far worse than the actual experience. I had pelvic radiation before surgery. My surgeon told me that the radiation keeps working for 8-10 weeks afterward so they scheduled the surgery 9 weeks after my last radiation.

      I used those weeks to strengthen my body for the upcoming surgery. I always enjoyed walking, but I built up to walking 2 miles daily. Take this time to get your body in shape. The exercise helps with the anxiety and pre-conditions your body for the upcoming surgery. Best wishes.

      4 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I had a hysterectomy, so I did have open abdominal surgery. Obviously, different kind of surgery, since my intestines weren't touched. And I had to wait a long time, too. My cancer was discovered during a hernia repair, so I had to wait until I'd healed from THAT abdominal surgery first. It was about 6 weeks. I really think that was the hardest part. The waiting. Recovery from 2 abdominal surgeries in 6 weeks really wasn't that bad. The worst of that was the 10 lb lifting limit, as I live alone. I hope things go well for you.

      4 months ago
    • Bengal's Avatar
      Bengal

      How you doing, Coloman? Hope the waiting isn't driving you crazy. We've all been so caught up in Greg's unfortunate diagnosis, sure didn't mean to leave you out. You're playing that waiting game too. Try to find ways to distract yourself as hard as that may be in reality. I'm afraid I can't answer your questions (different type of cancer) but hopefully someone else can help you out. Hang in there.

      4 months ago

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