• This may seem selfish, but I hear so much talk about breast cancer (and I do feel sympathy for those with it) but what about us who have

    Asked by fightingintx on Tuesday, September 25, 2012

    This may seem selfish, but I hear so much talk about breast cancer (and I do feel sympathy for those with it) but what about us who have

    other forms of cancer. Are they all just lumped in with the breast cancer research?

    16 Answers from the Community

    16 answers
    • nobrand's Avatar

      Breast cancer is really a hot topic, and I think a lot of the fundraising and work done has rallied many people together and that makes news. I don't think it's selfish to want more focus on your type of cancer at all-- we're all like parched sponges looking for more information and others with similar cancer experiences.

      Before having cancer, I always thought of breast and prostate cancer, because those are the ones that come to my mind first. If you ask me now-- you're going to get an earful about lymphoma. :) Yes-- breast cancer has some amazing support, but research being done for that specific cancer does also help other cancers too. I feel confident that many medicines I take for my lymphoma and complications began its life via breast cancer research.

      There are many scientists and doctors out there today tinkering with new ideas for any type of cancer imaginable.. I just think the news has to be dug up :) I don't know how people did it before the internet.

      almost 8 years ago
    • ticklingcancer's Avatar

      I don't think it's selfish at all. When I was first diagnosed I had a hard time finding information on my type of cancer. Sure, there was plenty of information out there about testicular cancer but what about extragonaddal? My cancer started in my abdomen and worked it's way up to my chest. It never touched my testis. I'm not sure why breast cancer ends up in the spot light. Probably because of groups like Susan G Komen. I have a friend battling breast cancer so I'm glad there is so much support out there. Fighting any type of cancer is tough. I pray that one day there will be a cure for all cancers. Good luck with your treatments. I wish you all the best.

      almost 8 years ago
    • BuckeyeShelby's Avatar

      I occasionally feel guilty for having the same feeling. I know those suffering from breast cancer seriously don't ask for it, but it does seem to get all the attention. Sometimes I just have to sigh heavily. Even the book store has an entire shelf devoted to breast cancer and 2 or 3 books on uterine.

      almost 8 years ago
    • wvgal68's Avatar

      I get tired of seeing pink all the time, though having uterine cancer, some breast cancer treatments have proven helpful, since they are both hormonally driven. There is a wonderful lady that is promoting Together We Will Win, a non profit to raise awareness of all cancers.

      I find it frustrating having a rare cancer. I have been part of a gynological support group, which is made of mostly ovarian cancer survivors. My current cancer center has a support group for breast cancer, and one for all other cancers lumped together. I know you can't have support groups for every single kind of cancer, but you can breast cancer?

      almost 8 years ago
    • Devon's Avatar

      I feel the same way. When Party City started carrying pink stuff I will admit it made me a little bitter. I think people should brand out and acknowledge more cancers, or just a general "cancer sucks" theme =)

      almost 8 years ago
    • Cindy's Avatar

      I like supporting and raising funding for the American Cancer Society much more than charities that only support breast cancer. The American Cancer Society supports funding for a large variety cancers. See the following website for a list of cancer research dollars by type of cancer: http://www.cancer.org/Research/ResearchProgramsFunding/CurrentlyFundedProjects/current-grants-by-cancer-type . Also, our local American Cancer Society office had several books on my type of cancer that I checked out of their library to read and some booklets they gave me to keep.

      almost 8 years ago
    • leepenn's Avatar

      Gack - pink.... I had breast cancer and pink washing drives me crazy.... With October just around the corner, I have to remind my friends that I don't want pink things... I'd rather they give that money to a research foundation or a health crisis center .... I tend to give my bux to cancer charities and related.... Not just to breast cancer organizations....

      Anyway,,,,, point is.... I hear you!

      almost 8 years ago
    • nancyjac's Avatar

      The exact opposite is true. Even within breast cancer, research is very specialized since there are many different types of breast cancer.

      Here is some info specific to colorectal cancer research: http://www.cancer.org/Cancer/ColonandRectumCancer/DetailedGuide/colorectal-cancer-new-research

      almost 8 years ago
    • packerbacker's Avatar

      I agree that there is SO much about breast cancer available to the public and not as much about other cancers. I only hope that all the time and effort in breast cancer research is benefiting all the other cancers, too. I got a neat sweatshirt-jacket at the hospital where my cancer center is. On the front is a flower made of ribbons of all different colors and the caption says: "live for life...HOPE FOR ALL." And on the back are rows of the different color ribbons and above the top row it states "HOPE FOR A CURE." I get more compliments on it-- I wear it mostly at the cancer center. I love it!

      almost 8 years ago
    • Meri43's Avatar

      I felt the same way after my diagnoses. I have been cancer free now for almost 10 years, and at the time I was 34. I, like you, had colorectal cancer and honestly talking about it was embarrassing. I don't know the reason breast cancer research is the one everyone talks about ; perhaps it is because that part of the body in general is talked about more than others, and because when a masectomy has to be performed it is more noticeable than having other parts removed. I know after my diagnoses I was the first one to say if there was something going on when you go to the bathroom to go have a colonoscopy, but honestly it is not as common to hear as having a mammogram. I have noticed, however, that all types of cancer seem to be talked about more often now then when I first became a fighter.

      almost 8 years ago
    • Rosa's Avatar

      Not selfish at all. We all feel for our own needs. But it is much easier to talk about breasts that rectum. I used to tell people that this is a "very little dignified" place to have cancer and that mine was " where the colon looses its name".
      As far as I know there are many investigations on all types of cancer, but some are more common than others, so people are more conscious of them.
      Let's keep fighting, living, laughing, trusting!

      almost 8 years ago
    • IKickedIt's Avatar

      I don't feel selfish or angry, just a bit disappointed that people just assume I had breast cancer. It's a bit ignorant on their part to assume that just because I'm a female, it must have been breast cancer. I'm using it as an opportunity to educate my friends because prior to discovering a toilet bowl full of blood, I swore I'd never, ever have a colonoscopy and I know too many people who think that way. It's interesting to see people's faces when I tell them I had colon cancer since it's not as common at my age as other forms of cancer, especially breast cancer. I take pride, however, in knowing that I have already inspired at least 2 dozen people to get screened...and those are only those who have told me. I'm sure it's been many more so I am doing my small part in educating people and hopefully, my experience will lead to saving other people's lives (now I just need to figure out how to turn this into a career!).

      almost 8 years ago
    • SueRae1's Avatar

      When I got my breast caner diagnoses DH asked the same question you are. Instead of having to go searching for support, as we had done with my Kidney cancer, it was almost literally being thrown at us.

      Breast cancer has so much more awareness, support and research thanks to great PR . That said, all lot research is being done on all types and forms of cancer. The oral chemo I was taking form my advanced renal cell carcinoma is part of R&R being done for it Kidney, Pancreatic & Liver cancers. There is also lots of research going on the Colon cancer front as well. genetic decoding of specific cancers and gene mutations that can trigger cancer are just beginning to show promising results.

      almost 8 years ago
    • Gena's Avatar

      I think it is because so many more people get breast cancer or know someone with breast cancer. Prostate cancer is actually number one. However, you would think with all of the money going into breast cancer research there should have been a cure by now. My mom had it over 30 years ago and my protocol for treatment was the same as hers. But I have heard of a vaccine for ovarian cancer and a possible cure for HIV. Too much money being made off of chemo and research.

      almost 8 years ago
    • fightingintx's Avatar

      I really appreciate hearing from all of you. In some ways you've helped me to not feel so guilty about the Pink" side of cancer and in another I should have realized that there is research out there for other cancers. Sometimes in the business of surviving this affliction has strange effects on you mind. Hopefully we will all get through this together and come out a better person. I know my perspective on life changes daily. Prayers for all!!

      almost 8 years ago
    • myb's Avatar

      I can relate when people heard I had cancer, they asked if I was going to lose all my hair. I would say, no and that with colon cancer there is the potential for only a partial hair loss.

      Or they would say I looked good, like they expected me to be deformed somehow? I just answered my insides are screaming at me so you can't see it on the outside.

      I was 50 going for my 1st colonoscopy in February of this year with no symptoms and diagnosed with stage 3c. Once I got past the shock of it all, I began telling folks my story and inspired at least 8 friends to get their 1st colonoscopy.

      My son had done Relay for Life at his college last year and raised $300. This year it took on a whole new meaning with my diagnosis. I asked my friends and family to not buy me flowers or gifts that I didn't need but to donate to RFL. He raised $2,800 and was 12th out of 5,892 students at Va Tech who raised over $580,000. Really made me feel proud of my son to be a part of such a giving community in this fight against cancer. There was a live video stream of the event online, where some of the students talked about their own battle or their close family member's battle. I cried watching it, but I did get my new mantra from an ACS commercial, "I had cancer, it never had me!" More Birthdays for all!

      almost 8 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more colorectal (colon) cancer questions.  Also, don't forget to check out our Colorectal (Colon) Cancer page.