• Time to die

    Asked by AmyJo on Thursday, March 6, 2014

    Time to die

    A large dose of reality. As you know, I have stage IV colon cancer, mets to liver and lungs. Currently active in the lungs. Yesterday I was at the oncologist for a visit and chemo. I have a wonderful relationship with my doctor and chemo nurse and truly believe they have saved my life. I am very grateful for them. After going over some issues yesterday, my doctor told me that her and her team were pleasantly surprised that I was still alive, and that whatever time I have left is a precious gift. She told me that she believes that my attitude is what keeps me going. This wasn't a surprise to me, I knew that I was past my expiration or at least getting close. It was just hard to hear.

    However, I decided to make the best of it. Whether I have one month or 10 years left I'm going to do my best to be happy, have fun, enjoy life, dance, sing, relax on the beach, enjoy festivals (there are a lot in my area) go to concerts, be with my family, and just live the best that I can.

    H

    87 Answers from the Community

    87 answers
    • GregP_WN's Avatar
      GregP_WN

      I am sorry for the reality of your situation. But I understand all to well. My Mother was in your shoes about 3 years ago. We took her wherever she wanted to go, got her whatever she wanted to eat, even though she was a diabetic and we had a real hard time managing her sugar levels, we didn't care, she didn't either. It's sad to say, but true, those last 6 months with her in our house while we took care of her were some of the best moments and memories. I learned more about Mom and Dad in that time than the rest of my years with them. We sat and went through boxes of pictures and talked about who they were, where they were and I learned things I never dreamed. Another example of wishing I had done things differently years earlier.

      Enjoy your life, get the most out of what you can, I admire your attitude to go grab a whole handful of whatever you can find. I am truly interested in what you will be doing so please keep us posted.
      I wish you the very best.
      Greg

      about 5 years ago
    • amontoya's Avatar
      amontoya

      ~Never Lose Hope~

      about 5 years ago
    • MachTwoMax's Avatar
      MachTwoMax

      My husband has stage IV prostate cancer. It's in his bones (spine, ribs, femurs, skull) and is receiving palliative care. He's been told to get his affairs in order as there isn't much more the oncologists can do to extend his life with any quality of life. As his wife and caregiver, this has been harder for me to accept than for him. We have our affairs in order, but I'm not ready for him to leave me. It is hard.

      about 5 years ago
    • rebanne76's Avatar
      rebanne76

      I am also stage IV with mets to liver and lymph nodes. discovered all too late last summer, in july. of course was the bigget shock of my life. Now I am struggling with what to do... stay in school, get my degree or just eff it all and enjoy life? I don't knwo what to do. I don't want to continue with chemo because it lessens the quality of my life, but does lengthen it. a lot of mixed feelings here. I am 38 years old.

      about 5 years ago
    • Kathy1's Avatar
      Kathy1

      You are a treasure. I pray I have the strength that you have displayed when my time comes. I agree with you and feel you need to make the most of the time we have. Positive attitude has gotten me thru some very tough times. Keep smiling and going to concerts and outings. Do what makes you happy...wish I were there with you.

      about 5 years ago
    • FreeBird's Avatar
      FreeBird

      You have a great attitude, and we're wishing you all good things.

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      Before I ever knew I had the big C I wrote this song called "A TIME TO LIVE & A TIME TO DIE"...
      If you are curious you can hear it here below.

      http://www.youtube.com/watch?v=n-6hgagZYQ4

      We have to die from something as we can't get off this Planet without something called Death. In a strange way it is a release to a hopefully better place with no more illness....Who Knows. I delve into the topic a bit in my song.

      I don't mind dying I just don't want to be there when it happens.
      And as the great Yankee Baseball Player Yogi Berra said...
      IT AIN'T OVER TILL IT'S OVER...
      I think he also said WHEN YOU COME TO A FORK IN THE ROAD...TAKE IT.....LOL

      about 5 years ago
    • butterfly29's Avatar
      butterfly29

      amyJo It is because of people like you that share your story that gives me hope ! I have stage lV breast cancer and my first doctor never missed a chance to tell me I was going to die. I thought this was living with cancer. I finally got a 2nd opinion and although I am in treatment I have the support of my doctor and all nurses ! boy what a diff that has made. now I am slowly learning to live again. thank you small steps are big steps !

      about 5 years ago
    • PegC01's Avatar
      PegC01

      I thank GOD for all of your strength and courage....Don't give up hope for GOD heals...I would invite you to christbeatcancer.org....it is a great website that can help possbily...I recommend it for everyone rather it is stage 1-IV....Cancer is cancer and we all have to continue to fight. Have Faith, don't give up.

      about 5 years ago
    • RonV's Avatar
      RonV

      I am stage IV liver met to adrenal glands...nothing has any affect so no treatment . I have gone 4 years so far. It can be very hard to stay upbeat. I am now estranged from my wife after 35 years and my son is getting married April 6th...I will not be there. You have to stay awake every day and don't miss a thing no matter what. Those things you thought you could count on may disappear so don't wait for anything or anyone. Do what YOU want no matter what that is!

      about 5 years ago
    • Joachima's Avatar
      Joachima

      I love your attitude and the way you have chosen to look at life.... thank you for sharing and for inspiring me and others here whose lives have been touched with cancer. Many blessings to you as you along your journey .... and wishing your many days of sunshine, laughter, love, & music !!!

      about 5 years ago
    • bikerpat's Avatar
      bikerpat

      In a similar situation I have gotten comfort from the book Unlocking the Mysteries of Birth & Death, by Daisaku Ikeda. The Buddhist background is not important; the clear and sensible explanations are excellent.

      about 5 years ago
    • booboo's Avatar
      booboo

      I salute your courage and your spirit. Wishing you all good things.

      about 5 years ago
    • AmyJo's Avatar
      AmyJo

      I am overwhelmed by all of the wonderful responses to my post. Thank you all very much.

      In June of this year will be 4 years since I was diagnosed. I am a fighter, I am strong. I am NOT ready to just lay down and die!

      I will continue the fight for as long as I need to but ya know, there will always be that little nag in the back of my head telling me time is up. I'll fight that little nag with positive thinking! Ha! Take that ya little nag!!! ha ha ha .................... I've got to laugh or I'd be curled up in a ball crying!

      about 5 years ago
    • Shoeless' Avatar
      Shoeless

      So sorry to learn of your prognosis, but I love your attitude. Best of luck to you...and never give up hope. The cure may possibly be just around the corner. That is why I take part in the American Cancer Society's Relay For Life...there has to be a cure somewhere. I would like to invite all who read this to find your local Relay and participate. Together we WILL make a difference.

      about 5 years ago
    • Ron1961's Avatar
      Ron1961

      Keep putting up the good fight Amy Jo. Enjoy your life and cherish it and have a little fun along the way. Wishing you the best.

      about 5 years ago
    • Lirasgirl33's Avatar
      Lirasgirl33

      Love your attitude AmyJo! <3 Seems like you and I have lots in common. Keep up the good fight my friend. I'm right there along with ya. I say do what makes you happy. You've got lots of us cheering for you. Hugs.

      about 5 years ago
    • Samcharlie's Avatar
      Samcharlie

      I admire your strength and positive attitude. Sending you many hugs and best wishes.

      about 5 years ago
    • Gabba's Avatar
      Gabba

      You will be in my daily prayers...I admire your attitude and the fight in you...you are a true hero!

      about 5 years ago
    • cris' Avatar
      cris

      Love your attitude, live, love & laugh daily that's what I always say. Sending (((((HUGS)))) to you...

      about 5 years ago
    • Upnorth's Avatar
      Upnorth

      Yes, you might as well be happy! Or at least as happy as you can be. It's okay to have bad days, but I cannot imagine being down all the time. No point. Cancer sucks, but don't let it ruin your outlook on life. And the fact of the matter is, we don't know when or how we will go. I always feel like I should wear a helmet when driving thru a certain town here in Maine, cause I swear, one of those meatheads on the roads is going to kill me one of these days. Anyway.

      Keep your chin up! Make the best of it.

      about 5 years ago
    • Sian's Avatar
      Sian

      I am also Stage IV Leiomyosarcoma with mets to liver, bladder and bowel, and was given twelve months to live at Christmas time. After almost three years fighting and nothing working, I knew it was coming, but I still sobbed all the way home. Like you, I decided there and then to live every single day to its fullest, to love, laugh and cry with vigor, and to do as many of the things I've always loved, or wanted to try, as I could. Creating memories for my children has become my main priority. They are only 11 and 8, and I worry that they won't remember me. That kills me. So, I'm working on memory boxes, journals, and recordings of me telling some of their favourite stories. It's given me something to focus on besides what comes next, and is oddly comforting. Good luck xxx

      about 5 years ago
    • Carol1286's Avatar
      Carol1286

      Enjoy every day, every moment. Praying for you.

      about 5 years ago
    • Noureen's Avatar
      Noureen

      Love your attitude! Thank you for the inspiration! Wishing you years of love, laughter, health and prayers!

      about 5 years ago
    • leesburger's Avatar
      leesburger

      Dear AmyJo,

      I'm new to this community. I have Stage IV colorectal with mets to the Liver, Lungs and Illiac artery. My oncologist, who I really like, has told me that I'm going to die within 3-4 years. I don't believe him. I'm doing acupuncture, changed my diet to vegan, doing Vitamin C IV. All this is helping. I truly believe that a sense of humor and positive attitude are the way through things. This is my second battle, the first in 2012: chemo, surgery, near death infection, illeostomy, reversal, and recovery. I was given the news that the cancer was back right before Christmas. What a shock.

      I totally agree with you!!!! No one knows when their end date is!! Laugh, love, dance-I'll meet you at the beach!!!

      Joanne

      about 5 years ago
    • marinasala's Avatar
      marinasala

      Hey there Amy Jo! I don´t know if this might help... or not. I lost my dad to colon cancer. He was given 6 months, lived 2 years. BUT eventhough that alone is proof that sometimes prognosis aren´t accurate (are they ever??), what I wanted to tell is: We did not know. My dad did not know he was going to die. He was in denial and his doctors let him be, considering it was the best for him. He died thinking he was going to live. The day before he was asking for a physical therapist. We could have had talks, serious talks, we could have said goodbye, we could have put affairs in order (things only he could have done), he could have asked to see people he wanted to see, he could have kissed me, my mom and my brother one last time. But he did not know.
      Knowing gives you power. Informations is a very powerful thing. We all leave this world in the end, but you have a carte blanche to go out there and grab the bull by the horns and check every last item on your bucket list. Because YOU KNOW. You are powerful. You can make everyday count, as we all should. But we are hoping you redeem us but being carefree, as happy as you can be... we all are counting on you. You and your kick XXX attitude might prove everybody wrong and you might end up outliving many people who didn´t have to hear those nasty words.
      Light, peace and love from Argentina.

      about 5 years ago
    • slatebreak's Avatar
      slatebreak

      AmyJo,

      The other day when you mentioned that you were having a tough time shaking a 'down' day, I began to write a response to you that I never finished. But what I began writing was that when I recently came on to this board I ran across your story. You inspire me. Your attitude has already helped me enormously. You've lived the last 4 years confronting the pain and fear associated with your diagnosis. I've had 6 months of this and am already exhausted. Fear of the unknown is the worst. But I'm learning...from you and others that you CAN live under these circumstances. Your oncologist wanted you to know something..there are no coincidences. But I think what she wanted you to know is that your strength and determination has taken you places that medicine has not been able to do. So keep doing what you're doing. It's working. And do whatever else you want to do because no one on this planet knows when their last moments will be. Enjoy your life...you've helped so many...thank you. And let us help you...whatever and whenever you need. Big hugs...

      about 5 years ago
    • sherry2001's Avatar
      sherry2001

      Hey Amy. I'm glad you value life now and see it as a gift. For each of us every day is precious, once lived it can never come back. I believe God has a special purpose and plan for each one of us and until we fulfill it we will not leave this world . Believe in the power of miracle and healing . Eat we'll. listen to your body and overcome this difficult trial. Pray for your complete healing

      about 5 years ago
    • spdsgrl's Avatar
      spdsgrl

      AmyJo ~ I wish I had words for you. Just know that you have defied the odds and do every time you smile, so smile. Enjoy your life. Live it and not your cancer. You are so inspirational to many people. You are brave, you are strong and you are loved. If you ever want, feel free to email or get my information to Facebook me please get it from Greg. I am up all hours of the day and night. I understand what you are going through and will never judge any feeling you have. Before this "life" I was a victim advocate, now I feel the need to advocate/support for different "vicitims" of our common foe.

      Remember ~ never give up hope and today YOU start extending your life. I will wear Blue for YOU today! Cyber hugs to you and yours. You are in my thoughts and prYers.

      about 5 years ago
    • JudyDowell's Avatar
      JudyDowell

      Amy jo, I was stage 4e lymphoma Feb. 2006. They said I had six to eight months at best, with or without chemo. I'm still here, it's been 8 years! I found DCA as I studied cancer cells down to the molecular level! Don't write yourself off, go to www.thedcasite.com and read up on others who have saved their own lives using DCA. You can buy it online. It is a sodium, virtually tasteless and for a person weighing 125 pounds, it only takes an eighth of a teaspoon in water once daily, 2 days on, 2 days off, or 4 on, 4 off. You take thiamin (vit. B1) to help from feeling numbness in the hands and feet (neuropothy) which goes away as soon as you stop taking DCA. Chemo drugs like vinchristine cause that but it is permanant damage. DCA does not hurt healthy cells, instead, it reverses the warburg effect so that the cancer cells will die a natural cell death! It also helps with all the symptoms, night sweats, itching, bone pain, tennitis... so if nothing else, it improves the quality of life! Please check it out. I posted there while I was really sick until I started getting better and found remission! I posted under the name JudyDowell. Dr. Akbar Kahn did human trials in Canada, links to his studies can be found there as well. The FDA has not approved this in the USA, but they can not stop you from using it. It is harmless to the human body but kills cancer! At least it gives your own body a fighting chance and you get to keep your hair! Yay! I am living proof, it works!
      Keep that great attitude!
      Judy

      about 5 years ago
    • JudyDowell's Avatar
      JudyDowell

      Curcumin (found in a lot of Mexican dishes) kills cancer cells on contact. It's been proven, however the curcumin cells are too large to be absorbed into the rest of the body. It would only kill cancer cells within the interior of your intestines and colon. I bought some (it's in the spice isle and also Puritan's pride sells it in capsules online, it's at a lot of organic food stores) and I still take them occasionally. It's yellow powder, doesn't have much taste. It is from the turmeric spice. The curcumin is what kills the cancer cells on contact. I would get some for good measure. I put my lose powder of curcummin in a large zip lock baggie and would shake it and quickly breathe in some dust to distribute it into my lungs. That was in 2007. My lungs are great today, no problems. Anything to make life better! Get the DCA at www.puredca.com. a 50 gram bottle will last over six months. It is worth it, especially with the quality of life!

      about 5 years ago
    • ibcarolek's Avatar
      ibcarolek

      AmyJo - your doctor is wise. John kept fighting and he never wanted to miss a treatment. We had a big trip planned in January but missed it due to a new treatment starting. It didn't work and the most recent treatments aren't helping either. Now going to the store is out of the question. He's barely able to move since breathing is so hard. Even Oxygen isn't helping. We thought he'd have 5 years (great health, young, etc) - but it may be less than 2. So please have fun - and if you think 1 moment about procrastinating, think about us. And don't procrastinate - go do it! Whatever It is.

      Sometimes it's not about the fight and survival - it's about living and enjoying - truly enjoying - time on earth. May you have a wonderful time!

      about 5 years ago
    • Joyex's Avatar
      Joyex

      thank you for being here, for communicating, for helping me to know what my husband is going through. Wishing you container loads of love and peace and strength. xxxx

      about 5 years ago
    • PerryLowell's Avatar
      PerryLowell

      AmyJo, live it to the limit! -Perry-

      "Somebody should tell us, right at the start of our lives, that we are dying. Then we might live life to the limit, every minute of every day. Do it! I say. Whatever you want to do, do it now! There are only so many tomorrows."

      Pope Paul VI

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      I've NEVER heard of DCA and will check it out. I keep beating a dead horse and I guess that's because I'm a half dead 68 year old cancer patient looking for a miracle. BUT I Believe (even if it is too late or just won't work for me) that we have NOTHING to lose to Radically Change our LIVES including a total raw food diet, juicing and Anti Cancer supplements like curcumin etc. It cannot hurt and most objections I hear from extremely sick people is that it's too hard or they don't want to give up their comfort foods etc. WELL it's a free country and we have free will BUT there is SO MUCH Scientific information on eating Flesh Food and Sugar Consumption and possible cancer that in MY OPINION people who don't want to at least do the research are in denial. Again....I don't know or even think it can help all of us but it MAY. You have to be all in or it probably doesn't have a chance. I found this amazing information about Spontaneous Remission below that I posted. BUT MOST of them aren't just without a reason. It seems that the Cancer Power Brokers call a patient who went off the chemo and radiation and became a vegan etc.......and got better is a Spontaneous Remission....ugh....
      I don't blame anybody from following their Docs advice to the limit and I hope we ALL Get well again and reclaim our Lives. BUT.....Group think can be dangerous and it's been proven over and over again throughout history that things and information can change. I remember when they said NO Human can run a mile in under 4 minutes but then a Doc named Roger Bannister from England did it in 3:59......soon after many others were doing it also. The Mind and the Body are very powerful but they have to be nourished to work at a high level. If you put bad oil and gas in a car it will eventually sputter...if you don't simonize the care it might rust.....if you forget to put water in the radiator it will burn up. It's proven that in most cases Hyper Tension can completely go away on a plant or Mediterranean Diet BUT they give meds to most people. A lot of the blame goes to the person that doesn't look this up and try on his own first. Docs are supposed to be Teachers and our immune system is the healer. Most chronic diseases can be cured or prevented with a good diet. Our kids are being bombarded by slick marketing for coke etc. Coke is total poison and THEY Know it but well just follow the money. We'd all have to be deaf, dumb and blind NOT to start to wonder WHY is this type of food sold and marketed to kids and why is cancer and other illnesses epidemic in our Society. We MUST start to think for ourselves and also outside the box. If a Doc giving you chemo and radiation tells you that you can eat whatever you want I believe either he doesn't know any better or has other motives. We are part of the TEAM and need to do our part. It STILL might not help at all but we still put good oil and water in our car for Maintenance etc.
      I've been castigated here and on other sites that I come on too strong and make people feel bad for taking chemo and radiation and following a Doc they really like, respect and believe I. I am sorry for that because I DON'T mean to do that.
      The Internet has allowed us to learn as much or more as our Docs and we should take advantage of it.
      AGAIN......it's probably too late for me but I feel that we and others need to get the message out that Prevention is very important and becoming part of the team is also important.
      One more thing.....THE mental and emotional part is extremely important to our immune system. I found that the empowering feeling I get from taking SOME control by doing something for myself is very healing and it just feels good. I still am scared and have doubts every day BUT I Believe God but all our foods for us to eat and they Mostly grow on plants, bushes and trees.
      Just my opinion and I hope I haven't upset anybody.
      Chris Beat Cancer is a wonderful support group as is his facebook page. It's like here but with a different point of view.
      Check out this spontaneous remission site below and would love to hear from anybody regarding my rant this morning.

      http://www.nancyslist.org/spontaneous-remission/
      Barry

      about 5 years ago
    • LindaMHansen's Avatar
      LindaMHansen

      Honey, YOU DON"T HAVE AN EXPIRATION DATE !!! I know a woman who lived 20 years with cancer. And Pastor George Malkmus survived his Colon Cancer and is thriving MANY years after his stage 4 mass was found. The mass is completely gone and he is cancer free !!!( and he did it on diet of raw fruit and veggies ) Yes live each day as it comes and live fully, BUT also take control of your diet to help your body heal its self. check out the raw foods diet ( not so much a diet but a life style) with that you put 90% of the nutrients your body needs to heal and live into your body. and it has helped many live long and energetic lives. Please do research before you give up. I am 7 years past my Time and still going like a Timex...TIC- TIC- TIC...I am reading Dr Malkmus book GOD'S Way to Ultimate health, guide for eliminating sickness through nutrition. Very Encouraging.

      about 5 years ago
    • Nanajudy's Avatar
      Nanajudy

      I have stage IV breast cancer....it,s been 5 yrs. I "try" to stay positive everyday.....some days it works and some days it doesn't. My family is everything to me....I love to travel ....change of pace helps....
      May god bless us all....keep on fighting. !

      about 5 years ago
    • virg112012's Avatar
      virg112012

      Keep fighting no one knows how long they have. I have seen a few friends died suddenly. Cancer has taught me how to enjoy each day to the max. I always wonder how it felt to be told your time maybe up in the near future, and that is true for all of us with this illness, no Dr. can tell you the exact day for checking out. So enjoy yourself and make good memories with the ones you love, and thank God for each and every day.Pray and meditate it helps. God be with you.

      about 5 years ago
    • joyce1979's Avatar
      joyce1979

      God bless you. Your positive outlook is truly an inspiration to all of us. Don't give up yet. Miracles can and do happen.

      about 5 years ago
    • BoiseB's Avatar
      BoiseB

      A year ago my doctor said that my cancer was incurable and I had probably 18 months to live. I am now almost a year (give or take a few months) NED. The cancer just hasn't showed up. People started asking me about the proverbial "bucket list " Well I had never had a bucket list. Also I had never put any effort into enjoying life I really never had any hobbies either. So I have made it a game of just staying alive. My primary care Dr. laughed when I told her I intended to die healthy.
      Sending Prayers your way.

      about 5 years ago
    • elissa5's Avatar
      elissa5

      I also have stage iv pancreatic cancer with mets to the liver....Inoperable and very little treatment.
      It has been 18 months...I have turned to alternative treatments, juicing, supplements, cannabis oil. I haven't had treatment in a year and I had shrinkage on my last scan....so diet can help. I too try and stay positive and try to live everyday with purpose. I admire your inspiration,So keep on living, dreaming, making memories, loving and enjoying this thing called life. I wish you only the best in your Journey!

      about 5 years ago
    • zubsha's Avatar
      zubsha

      She is right. You attitude makes a huge difference. There has been a lot of publicity lately about the need for doctors to have end of life discussions with their patients Seems like she read the headline but not the whole article. I am sorry you had to go through that. Please continue to be upbeat and hopeful The world needs more like you. We cannot afford to lose you

      about 5 years ago
    • LauraJo's Avatar
      LauraJo

      Oh my dear....I am so sorry that you had to hear news like this, but no doctor can tell you when you are moving on to the next adventure. I am so impressed by your strength & positive attitude! None of us know the date...but I will tell you, when I was first diagnosed and horribly depressed and afraid, I was about one inch away from a serious car accident when some pinhead decided to cross into my lane. I realized that day that I could have died from something completely unrelated to cancer....and that could happen any day, so why worry? You really only have to keep going until the next treatment comes along that will work for you....and new stuff becomes available all the time. In a way, you may find this news empowering....you have time now to take care of business, so get that done & then go on to live & do whatever makes you happy. Be strong,stay positive, be happy. You will be in my prayers.

      about 5 years ago
    • alivenwell's Avatar
      alivenwell

      Our treatments come as a result of research from a few years ago until they get approved and formally applied to patients. I admire you for being proactive with a positive attitude. I witnessed that type of attitude in somebody who loved life and lived it to the fullest extent. Attitude causes us to take action in whatever form and gives us empowerment. Personally, I have been exercising in between chemo treatments and trying to improve my diet. I have also heard antioxidants, turmeric, curry and elimination of red meat help fight cancer. Immunotherapy is around the corner for us and will open new pathways, too.

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      Hey Alive en well......I like your spunk.
      ONE THING though is that with nutrition.....you're either in or out there is no such thing as "I'M TRYING TO EAT HEALTHY"....I hear that from people and it usually means that they aren't really doing anything but adding a piece of broccoli now and then.
      But all the things your are doing and HEARD are excellent. We need to try Everything!!

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      I wonder why SPUNK is x'd out.....lol
      Computer must think that's a bad word....b

      about 5 years ago
    • alivenwell's Avatar
      alivenwell

      To be honest, I have been falling off the wagon with diet because food has tasted So much better rather than like coated with melted aluminum foil. Exercise has help me keep the stress under control and burn any extra calories to the point where I can fit into clothing that did not fit in the past.
      I measure my sugar levels, oxygen level, cholesterol levels, heart rate and weigh myself regularly with a personal trainer who has become my best friend. I worked at a company which encouraged people to take control of their health. Colorful fruit and colorful vegetables (I love art) are the best things to have at a meal. Oatmeal, which helped me during chemo, helps maintain a decent cholesterol level. High protein in the form of eggs (take two, throw away one yolk), fish (omega-3) and quinua are great to eat. I avoid gluten, but have an occasional fresh piece of bread. Personally, I enjoy the aroma of baking bread rather than eating it. Roasted whole grain buckwheat (gluten free) is my other favorite with the turmeric or curry for a little fun.

      about 5 years ago
    • Rosa's Avatar
      Rosa

      Maybe your time is up, but nobody knows when the last day will be. With your attitude and positivism you might live to a 100! In the meantime, live day to day, take good care of your health, enjoy your family, have fun, make memories.
      I really admire you and wish you the best.
      Will keep you in my prayers
      Blessings

      about 5 years ago
    • nance's Avatar
      nance

      You are so precious. You are so full of wonderful positive vibes. God bless you!

      about 5 years ago
    • ggort's Avatar
      ggort

      I am also at stage IV with mets to liver. I am stable and for the better. I was diagnosed June 2012.
      My Doctor told me that he believes that my attitude is what keeps me going. I absolutely know its my family and God. I pray daily and much more then once. I am grateful for every morning I awake.
      Try to be happy, do what makes you feel good and happy.

      about 5 years ago
    • BoiseB's Avatar
      BoiseB

      Expiration dates have a whole new meaning for me now. About three weeks ago I went in to the Dr. for swelling in my feet and legs. She prescribed a diuretic and a week later i was to come in for a blood test to see how the pill was affecting my blood. I also mentioned that I wasn't happy with my progress with my back also I had lost about an inch and a quarter height in less than a year, so I should have a bone density scan. Blood work came back cholestrol was through the roof and I was a heart attack waiting to happen. Bone density came back advanced osteroposis add that to the degenerative disc disease my next fall could be fatal. Just goes to show you that nobody knows when they are going to go.

      about 5 years ago
    • Shoeless' Avatar
      Shoeless

      Hey barrybomer...your XXX was x'ed out? You know what they say, right? Dear autocorrect, stop correcting my swear words you piece of shirt. It's okay to laugh...it feels good.

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      I wasn't saying a bad word it was F U N K not F U....Geeze!!!

      about 5 years ago
    • Shoeless' Avatar
      Shoeless

      Yeah sometimes our smart software isn't very smart.

      about 5 years ago
    • lastra25's Avatar
      lastra25

      My mother is going through the same now. Although she has pancreatic cancer, her vitals are now better. She was in ICU for about 2 weeks. I didn't think she would come out of it and neither did the doctors. But, for our surprise, she raised from that bed miraculously. I thank God for giving her that extra time she has on earth. She cannot perform any chemo at this moment due to her weakness the previous chemo did for her. She was aggressively treated on a stage IV. She knows her cancer may be growing but right now I concentrate in making sure she has no pain and getting the proper diet for her strength. She is a fighter and has been able to get therapy at home. I am very hopeful that she can extend a bit more of life. Sometimes I think she has a mission to complete and this is why she is still around. The essence of her fighting just makes me feel is not her time yet. She was diagnosed last May 2013 at age 70. I tell her to enjoy every second of her life and do what ever she wants to do, eat all she wants, what ever it is her heart desires. Go anywhere she wants to go. Hope is what you never lose. I am thankful for having her still here and making sure she wakes up every morning. I feel you! And, I will pray for you as well as for everyone in this website going through so many hardships. God Bless!

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      We have a friend who was diagnosed with stage IV bone cancer. By the time his cancer was found, his prognosis was pretty bleak. Soon after they discovered his cancer, nurses were in his hospital room talking about how dire his circumstances were and how he was surely going to die very soon. He sat up in his bed and ordered them out of his room. Next, he told his doctors that only persons who had a positive outlook or at least faked a positive outlook would be allowed in his room. It has been at least 10 years ago and our friend is still alive and well ... and cancer free!!! Miracles happen!!! In the meantime, keep your wonderful, positive attitude and enjoy every single day. That's what I do, as a stage IV lung cancer patient.

      about 5 years ago
    • lastra25's Avatar
      lastra25

      I think that is such wonderful news! My mother is at a stage IV Pancreatic Cancer and she was in ICU. The doctors wanted her to be placed in hospice because they didn't think she was going to make it. Her aggressive chemo did not do so well after a good 7 month of treatments. She lost platelets and all her vitals were very low.

      BUT, something told me this was not the day. We come from a family of fighters and my grandmother had many fall outs and survived them at a different decease. I knew my mother was fighting for her life that day. She was in ICU for 2 weeks! I told the doctors that day to give her the next 48 hours because she will rise. They didn't believe me. Following that Sunday almost Monday (48 hours later) my mother awoke from her sleep and came out of the stage she was in. She was very weak. Her vitals and platelets started going hope gradually. That Monday, the doctors were scratching their heads thinking!!!!. I looked at them and told them "I TOLD YOU SO".

      My point to all this is that nobody knows when is their day to go. God is the only one to provide that answer. Doctors are just tools. Scientifically, they can predict certain danger to life but they cannot predict death.

      I do believe that miracle do exist!!!! If you keep the positive attitude, good things can happen in your life. Think of all the opportunities life has brought and will bring if you stay strong. We all have our day to go but meanwhile take the advantage of being able to live life.

      My prayers are with you and everyone in this site as well. Keep up that great progress.

      Have a beautiful day!

      about 5 years ago
    • leesburger's Avatar
      leesburger

      Hi AmyJo

      How are you doing????

      Joanne

      about 5 years ago
    • Nanajudy's Avatar
      Nanajudy

      I pray every night for all my friends in what's next. We all share the same road. Let's make sure we keep on fighting. Best of love to all

      about 5 years ago
    • AmyJo's Avatar
      AmyJo

      Joanne (leesburger), thank you for asking.
      I'm doing alright. I get pretty weak and tired, but I'm hanging in there. I do what I can, when I can, and don't worry about the rest.
      I live in Florida and have family visiting from Upstate New York, so it's pretty exhausting.
      I rest a lot.
      I hope everything is good on your end! and remember.........
      ~Never Lose Hope~

      about 5 years ago
    • JudyDowell's Avatar
      JudyDowell

      Try DCA. What do you have to lose? It is harmless to healthy human cells! Please, save your life!

      about 5 years ago
    • JudyDowell's Avatar
      JudyDowell

      DCA is an alkalater, makes your acidic body (which cancer thrives in) more alkaline plus it reverses the warburg effect so the cancer cells die a natural cell death. This gives your healthy killer cells a chance to fight. If you're losing energy, that's not a good thing! You know this. Grab your boot straps and pull them up! How can you enjoy "dancing" if you can't get out of bed? This is a serious problem and you don't need to resign, you need to fight with all you've got, plus with DCA, you get to keep your hair! I'm here if you need me.
      Judy Dowell

      about 5 years ago
    • Kathy1's Avatar
      Kathy1

      Having family can be exhausting but also fun. You sound like you are makng the most of what you can. I would want to do the same. But yet listen to your body and resting when you should. I think about you often and hope I have the same spirit. Plz stay in touch - as I said my thoughts are with you.

      about 5 years ago
    • chrismorr's Avatar
      chrismorr

      AmyJo, I think your attitude will get you farther than anyone else thinks... only you can live your life and make the most of it ! I don't know if you've read the book "Love, Medicine and Miracles" by Dr Bernie Siegel but he talks about how the spirit can be the most important thing in our fight against cancer. Inspiring, as are you.

      almost 5 years ago
    • Shoeless' Avatar
      Shoeless

      Absolutely, Chris. I have seen the power of positive thinking and prayer. We were told by the doctors that my daughter had no chance, that her leukemia was too far advanced by the time she was diagnosed. That was four years ago. She is alive and healthy and has an 11 month old daughter who is sitting on my lap helping me type this. Your positive attitude can overcome and triumph.

      almost 5 years ago
    • chrismorr's Avatar
      chrismorr

      Shoeless, that book I mentioned was recommended to me, and it clearly points out how instrumental our own determination, thoughts, feelings, and resolve can be... and how the reverse can be only too true as well. Angels and prayers help to guide me, family.

      almost 5 years ago
    • Lamarcy21's Avatar
      Lamarcy21

      Spoiler alert-everybody dies! People with cancer are fortunate to get time to come to terms with it and say goodbye. I feel fortunate to have received the wakeup call and have the opportunity to live like I am going to die. I am going to die, we all are someday. Live well, love well.

      almost 5 years ago
    • lastra25's Avatar
      lastra25

      My mom passed away on April 4, 2014. She passed away peacefully and no pain. She tried so much but her Cancer just got more aggressive. Before she passed away she mentioned to me that she was ready to go. She tried and God gave her strength and additional time to enjoy with the family. She said she didn't regret doing these treatments because it gave her more time to do what she wanted to do. We all have a day to go. And, before that time comes, try to focus on your surroundings. Enjoy every second of life!!! Eat, travel, cry, laugh, etc....because these times never comes back. Life should not be taken for granted. Make every second count!!! She said to me that although our bodies give up on us our spirit never dies. She will always live. We go to another life, to a better life!

      So, before we die... live, love, and laugh!

      Life is very precious. Life is beautiful. There is a purpose in life for us and a mission to complete. God is very merciful and we should never be afraid. We may not understand HIS work but at the end HE shows his will. HE makes things perfect. The Lord listened to my request as my mother was dying. I asked him to please take her peacefully and no pain. I accepted HIS will in taking my mother. And, HE did! I thank HIM for that.

      I wanted to share this with you. Those who are still struggling....continue doing what you are doing. Keep strong and don't give up hope. Hope is the last thing we lose. May everyone have a bless day.

      Andrea =D

      almost 5 years ago
    • chrismorr's Avatar
      chrismorr

      Andrea, I am so sorry you have lost your Mother. Your attitude about her loss is inspiring, I believe as you do that she has gone to another life, her spirits endures. We do need to enjoy every minute of our lives, relish our time here on earth. Some are given more time, some less, but every single day is precious. As you said, none of us should give up hope, it too is a precious thing.

      almost 5 years ago
    • barryboomer's Avatar
      barryboomer

      Dying is NOT an exclusive club. Every living thing that has lived on this Planet died. How bad can it be. It's not the death it's the dying. Hospice makes things much easier. I have a wonderful song that talks about this called "A TIME TO LIVE & A TIME TO DIE"....check it out at barrydbutler channel on youtube. Woody Allen once said " I DON'T MIND DYING I JUST DON'T WANT TO BE THERE WHEN IT HAPPENS....LOL

      almost 5 years ago
    • lastra25's Avatar
      lastra25

      Thank you Chrismorr....=D.

      almost 5 years ago
    • AmyJo's Avatar
      AmyJo

      I was having a bad morning.... so I decided to re-read your responses to me.
      I have to say, this is the most caring group of people I've ever come across and I am grateful to have found you. Thank you very much for all of your comments!! <3
      ~Never Lose Hope~

      almost 5 years ago
    • lastra25's Avatar
      lastra25

      We are here for a reason...to cope and be heard about our feelings. This site has been very inspiring to me. I feel other people's pain and sorrows. We are here to help all those in need of a hand.

      My prayers to you!

      Andrea =D

      almost 5 years ago
    • Rosa's Avatar
      Rosa

      "Never Lose Hope"
      What's Next has helped me so much. I really feel people here understand all of my feelings.
      You are still an inspiration. Keep on enjoying life.
      Blessings

      almost 5 years ago
    • BoiseB's Avatar
      BoiseB

      Sending prayers your way, AmyJo

      almost 5 years ago
    • Kathy1's Avatar
      Kathy1

      AmyJo - you are a total inspiration. I often think of you and it helps me to keep going. You need to stay strong and keep fighting. My prayers are always with you.

      almost 5 years ago
    • angeldancer's Avatar
      angeldancer

      Amyjo…your care and concern for me out rivals anything I have experienced. I felt your warmth as you tried to encourage me to move forward on this journey. I hope I can inspire you as you have done me and as well as this whole community. This journey is not easy but you have persevered, you have encouraged an inspired. Just know that what you need to do for you only can come from you. I want you to live and push forward and beat the odds and love on people and yourself. I know everyone keeps talking about healthy eating and it is just that. I am doing it but it is coming with a cost because I don't have much money so I just try to eat a few times a week to keep from eating the bad stuff. If that is what you want then go for it. I think I have learned from you that we need to trust ourselves more to push through, to questioned and to seek answers.

      I just have to say: the hope that you have given me I know resides in you. You are perfectly made, you are wonderfully made, you are the light when things seem so dark. I love you and I encourage you to keep moving on in this journey. Leave no stone unturned. Leave no stone unturned. If something can restore your strength to be able to press through and do something new go for it.

      Just a note. I told my daughter that I didn't want a funeral. I want my ashes in the ocean with the dolphins. I want to leave with grace, joy and dignity and thats doing it the way I feel fit. My bucket list is to go to one of those tahitian islands. I have done a lot and have helped a lot of people. I will keep fighting. Just keep fighting in the way you best know how.

      Amyjo…don't give up on love and hope. I love you.

      almost 5 years ago
    • AmyJo's Avatar
      AmyJo

      Angeldancer that was so beautiful it put me to tears. Thank you for those very, very kind words!
      I'm not doing very well, an have been thinking a lot, trying to decide if it's time to go off of chemo and let nature take it's course or continue on chemo. I recently took a 6 week break off of chemo and let me tell you, the pain has been horrible, so much so they've had to increase my pain. My 6 weeks is up next week and I'm almost excited to go back on chemo. ha ha ha ha who would have ever thought..... see, God works in mysterious ways!

      ~Never Lose Hope~

      almost 5 years ago
    • CathIvyP01's Avatar
      CathIvyP01

      Amy Jo, I may have already missed the details of your situation, so forgive me, but I'm not clear when you were diagnosed, what treatments you have had, what Chemo cocktail you are on, and what the plan for your future treatments are. I have Stage IV Colon Cancer as well (diagnosed 1 yr and 1/2 now) and have had good results with Oxyilplatin during my first 10 treatments. My doctor gives me 'maintenance breaks between hitting me with the 'big guns'. Participating in your treatments and voicing an opinion helps us not feel as victims. My Lungs are now clear and everything is much reduced..... it's the Liver that we need to be aggressive with at this point. Nutrition is so important, there is so much out there as far as information and accessibility of important alternatives. Remember: 'alternative treatment' may seem unconventional, but it is far more normal than the way Americans eat now! What is Organic? Just the food that we already ate in the 20's, 30's, & 40's, before Pesticides; only now we have to pay more for normal food and are considered (still) a bit stigmatized for being exclusive about our untreated food, because we seek out "Organic" which is synonymous with 'untreated' or 'fresh'! Who wants to eat foods covered with bug-poisen?
      Really!? Processed foods have a great shelf life..... so? Did anyone ask us? We eat and eat and eat, but can not nourish ourselves. White Sugar, Soduim, and Corn Syrup are in everything! Never had our bodies had so many toxins to try and rid itself of on a continual basis. It does mean, in our present time and habits, as a society, a complete life-style change (but it wouldn't have been so if you were a Pioneer back in the day.) The Oncologists and Nurses can be absolutely marvelous (and they have saved my life as well) because I was mis-diagnosed with IBS for the first 6 months, couldn't hold down food or water, had to go on TPN (liquid food), and lost 75 pounds BEFORE being diagnosed and starting treatment. Remember however, that Specialists are just that: specialists in their field; so my Oncologist is not a Nutritionist nor a Dietition, and his job is to know how to get the most out of the cutting-edge Medicine of the day...... but that is not the entire picture. I am 5'8" and weigh 115 pounds..... nice huh? But I am far from giving up! I just bought a cold-pressed Juicer and my sister bought me a great Water-filter (I live in a city) that takes out Chlorine & Floride etc..... We must participate in this therapy! Doctor Oz has it right: food is Medicine. What is bringing you pain to the point of giving up?
      I hope you can respond.

      almost 5 years ago
    • barryboomer's Avatar
      barryboomer

      Plant Foods are God's Food to US.
      EAT IT!

      almost 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      AmyJo, I don't know why this popped up on my screen but I am soooo glad that I am still seeing your name on this forum and that you still seem to be beating the odds! You go girl!! Big hugs and you just keep on keeping on!

      over 4 years ago
    • AmyJo's Avatar
      AmyJo

      LiveWithCancer... yep, I'm still keepin' on! I'm not one to give up easily and am going to fight for as long as I can. I'm on oxygen now and that bothered me emotionally for a couple of days. I felt like it was just one step closer to death, but I was able to turn that around to be one step closer to living. I can do more with the oxygen because I can breathe better and I have portable tanks. I am whatever I can while I can. :) ~Never Lose Hope~

      over 4 years ago
    • CathIvyP01's Avatar
      CathIvyP01

      Amy Jo, You go girl! The glass can be half full and not half empty. Every day we open our eyes and look around (if we are blessed with sight), it is one more day we have today than we had yesterday! I will keep you in my thoughts and prayers.
      ~ Catherine P.

      over 4 years ago
    • Rosa's Avatar
      Rosa

      You are still in my thoughts and prayers.
      Blessings

      over 4 years ago
    • Joyex's Avatar
      Joyex

      Dear AmyJo, wishing you all the best. peace and strength and a calm mind. Thank you for updating this, its very kind of you to let us know how you are doing. Sure you have lots of other things on your mind. Hugs xx

      over 4 years ago
    • Kathy1's Avatar
      Kathy1

      AmyJo....your an incredible lady. Thank you so much for letting us know how you are. Keep up the fight don't let it get you down. All my prayers are with you. Take care!

      over 4 years ago
    • BoiseB's Avatar
      BoiseB

      Thank you for the update. I am reminded to keep you in my prayers

      over 4 years ago

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