• Timing?

    Asked by jend on Sunday, April 14, 2013


    I'm newly diagnosed with IDC and all this information I'm reading through is overwhelming. The one thing that's unsettling is not knowing how quickly this will all play out and what to expect as far as timing.

    I am meeting with my surgeon this week - does radiation wait until they get clean lines from the surgery? I'm curious how soon radiation started for everyone after a lumpectomy. Also when did you start talking to an oncologist? (I've only been talking so far to an oncological nurse after my biopsy)

    12 Answers from the Community

    12 answers
    • CAS1's Avatar

      There is a timing sequence for each cancer, and each treatment that your oncologists know. Ask them to plot the process for you. They can do this.

      over 3 years ago
    • carm's Avatar

      I am an oncology nurse and if you are researching your disease, just make sure you are on credible websites that don't have an agenda. There is a process but it is individualized to your disease. If you need help finding the right sites let me know, Carm RN.

      over 3 years ago
    • karen1956's Avatar

      Time lines seem to vary from person to person. I saw an oncologist after seeing the surgeon but before surgery. I knew from time of Dx that a lumpectomy was not an option. For me things moved very quickly, but that was because I had help getting appts schedule quickly. I had bilat 4 weeks post Dx. Onc told me that I could start chemo 3 weeks post bilat, so that is what I did. Then he told me that rads could start 3 weeks post chemo, so once again thats what I did. I just wanted to get through Tx as fast as I could. all the best to you...

      over 3 years ago
    • Kossmore's Avatar

      I had the option of chemo first to try and shrink the cancer tumor. The first lumpectomy was about six months but they did not get clean lines. The second surgery was not long after the first and that time they kept me on the operating room table while they sent the section for testing. About three weeks later started radiation.

      The best suggestion for you is too start a journal and write everything, I mean everything in it and keep it where you will always see it. Put reminders to write or look at your journal in several places. Once you start treatment, your brain can get foggy and you forget or miss many things you wouldn't have before treatment. Good luck!

      over 3 years ago
    • scared's Avatar

      Things happened quickly for me after diagnosis. I had lumpectomy then chemo a few weeks later. I'm still doing chemo--5 more rounds then radiation, then tamoxifen. FYI: Make sure you have a good rapport with your Onc. as you will be seeing LOTS of her/him. Even if it takes a while to find the right one you will be glad later. It is very overwhelming and none of the info stuck with me so I had to keep asking. Still lots of things I don't know. Should I have chosen a total masectomy..would my chances be better? I don't know. Good luck!!!

      over 3 years ago
    • cris' Avatar

      I was diagnosed in September, started chemo in oct. to shrink tumor, which it did, finished chemo in feb. 2 weeks later had bilateral mastectomy w/silicone implants, in a couple of weeks will be starting radiation. which has been about 8 weeks recovery from my surgery. I saw my oncologist the week after I was diagnosed, everything doctors and tests were done very quickly didn't have to wait much. good luck!!

      over 3 years ago
    • Giraffe's Avatar

      I saw the surgeon the next day from diagnosis. Surgery was scheduled about 3 weeks later. Had two surgeries to get clean margins. Met with oncologist wile waiting to heal. Started Chemo fibe weeks after surgery. Met with Radiation Oncologist while waiting for the month before radiation. I Maine it is different for everyone. Yes the reading is overwhelming. Family and support of friends is key! The what next site was invaluable for me.

      over 3 years ago
    • rlclark93654's Avatar

      Did you have lymph node removal? are they biopsying them? I have the same diagnosis and I know that because there were cancerous cells in the lymph node dissection they did after the lumpectomy I ended up doing chemo first before radiation. I've had a Oncologist since my very first diagnosis but if you are not having chemo but just the radiation you may just see the Radiation Oncologist

      over 3 years ago
    • rlclark93654's Avatar

      i am sorry I commented without realizing that you had not had surgery yet. When I first talked with my Oncologist, I had a team set up: surgeon specializing in breast surgery, Medical Oncologist, and Radiation Oncologist. Yes it is extremely overwhelming and all the info doesn't need to be digested in one day.....Take a big deep breath and take it day by day....

      over 3 years ago
    • JennyMiller's Avatar

      Timing varies --- for me, it was --
      Diagnosis was 11/11/11
      Surgery was 12/5/11
      Scans were 12/19/11
      1st Appointment with Oncologist was 12/23/11
      Port placement was 12/29/11
      Chemo was from 1/5/12 to 4/12/12
      Radiation was from 4/30/12 to 6/23/12
      Started Arimidex on 6/30/12

      over 3 years ago
    • Nellie's Avatar

      Yearly mammogram 6/27/12
      Sonogram 7/10/12
      Stereotactical Biopsy 7/17/12
      Diagnosed w/BC 7/19/12
      Lumpectomy 7/30/12
      Met Oncologist 8/6/12
      Echo cardiogram 8/10/12
      Port placement 8/27/12
      !st Chemo 8/29/12
      2nd chemo 9/19/12
      3rd chemo 10/10/12
      4th chemo 10/31/12
      Rads 11/26/12 - 01/08/13
      Tamoxifen 1/09/13

      over 3 years ago
    • Nancebeth's Avatar

      I had options of mastectomy or lumpectomy. I chose modified bilateral mastectomy with immediate reconstruction. It was followed by 6 rounds of CMF chemo cocktail. I did not needd rads. I was on tamoxifen for 2 months but could not handle the side effetcs and stopped it. Everyone's time frame is different because everyone's cancer is different, however, I spoke with 3 breast surgeons, 2 plastic surgeons and 2 oncologists before I chose my team of life savers.

      over 3 years ago

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