• Triple Negative

    Asked by debphill on Saturday, February 9, 2019

    Triple Negative

    Chances of recurrence,has anyone had recurrence shortly after completion of treatment

    8 Answers from the Community

    8 answers
    • lujos' Avatar
      lujos

      I’m not triple negative, but havehad a recurrence 4 years after diagnosis of a primary IIb, ER/PR+ cancer. Threw the book at it with surgery,rads and chemo.

      The point is, you never know, all you can do is try your best to deal with it if you’re unlucky enough to have it recur.

      2 months ago
    • Shelkay1's Avatar
      Shelkay1

      I had a lower left lobectomy in September, had 4 rounds of chemo (Cisplatin/Alimta) from October-December. I was back for CT/check-up and getting ready to start radiation a couple weeks ago & 2 new spots were found. Largest was biopsied & is positive for adenocarcinoma. They are calling this as recurrence since it is something not there before starting treatment; I should find out more next week about what they are suggesting. 1st one was not sent for biomarker testing, this one was. Now just to wait.

      2 months ago
    • Shelkay1's Avatar
      Shelkay1

      I had a lower left lobectomy in September, had 4 rounds of chemo (Cisplatin/Alimta) from October-December. I was back for CT/check-up and getting ready to start radiation a couple weeks ago & 2 new spots were found. Largest was biopsied & is positive for adenocarcinoma. They are calling this as recurrence since it is something not there before starting treatment; I should find out more next week about what they are suggesting. 1st one was not sent for biomarker testing, this one was. Now just to wait.

      2 months ago
    • cllinda's Avatar
      cllinda

      From my understanding, being triple negative is harder to treat. But I don't know if that makes recurrence more likely.
      All we can do is let our team go to bat for us and hope they send this disease over the left field fence. Way across the street, into Waveland Avenue. A little baseball talk for analogy. Go Cubs!

      2 months ago
    • fiddler's Avatar
      fiddler

      I had TNBC and that has been a concern of mine these past 6 years since surgery to remove the cancer.

      [Digression #1: yesterday I read a piece by an MD in Cholesterol Clear that if your total cholesterol is below 200 you increase the chances of cancer and infectious diseases, and that a woman's LDL should be around 130 because (an MIT researcher said that) women don't have problems with high cholesterol, they have problems with LOW CHOLESTEROL!]

      From all that I've read, the 5 year mark is an indicator that the chances are good for no recurrence. However, it's a number and we all know that those numbers, like LDL, are hooey (arbitrary with not enough information to back up the assertion).

      [Digression #2 and final: an MD in med school was told by a professor that 50% of everything he learned in med school would be disproved.]

      That said, the so-called experts say some things about TNBC survival rate:
      if you make 5 years your survival rate increases a few %-age points
      as time goes on after 5 yrs survival rate increases, whereas with all other breast cancers the
      opposite is true
      there are 2 kinds of TNBC; one recurs, one doesn't
      Vanderbilt U said TNBC may be ovarian cancer that found its way into the breast.
      and so on and so forth.

      Pick one and hold onto it. Either that or roll the dice.

      2 months ago
    • fiddler's Avatar
      fiddler

      PS - LDL #s are not arbitrary, they're made up.

      2 months ago
    • Mom2Twins' Avatar
      Mom2Twins

      I was diagnosed TNBC Stage II In March of 2016 at the age of 40. I had 16 rounds of Chemo (Adriamycin/Cytoxan and Taxol/Carboplatin) followed by a double mastectomy. A TNBC diagnosis can be very scary as there is plenty of negative information one can find about lack of treatment options and recurrence rates. However, there have been many recent advances in the understanding and management of TNBC. I have been followed closely, every 3 months, since my initial diagnosis. I still deal with anxiety with each of those follow-up appointments and bloodwork. But I cancer-free today and I count my blessings each and every day and don't take anything for granted. Find a team of doctors and nurses that you can trust and put you at ease. Listen to their advice and live your best life.

      2 months ago
    • debphill's Avatar
      debphill

      thank you for the responses, it really helps.

      2 months ago

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