• Triple Negative Breast Cancer

    Asked by Dorialicia23 on Monday, April 15, 2019

    Triple Negative Breast Cancer

    I was Diagnosed with Breast Cancer
    On March 22, 2019.
    Triple Negative Breast Cancer.

    I am Scared of the unknown, terrified of the truth that lurks inside my thoughts.
    Feelings of desperation and anxiety, crushing my soul.
    I ask myself, in a confused state., can I go through this? Am I strong enough to survive, or is it just the feeling of the unknown desperately taking me to a place I fear not go.
    Dori
    4/13/2019

    I will continue to log my daily thoughts through out my Chemo.
    I had several test, from blood drawn, to Biopsy , CT Scan, MRI, Mammogram, and the worst was Breast Syringe Aspirations, so painful your eyes will tear up, and your soul will weep.

    9 Answers from the Community

    9 answers
    • Kp2018's Avatar
      Kp2018 (Best Answer!)

      Dori,

      My heart goes out to you. The first month after diagnosis is the most terrifying. You have expressed your feeling of confusion and uncertainty so well. I hope your writing is and continues to be therapeutic for you.

      Yes, the tests and pokes seem to be endless and uncomfortable, but they are the tickets to your treatment journey. Once I actually started on the journey (lumpectomy surgery) I experienced a feeling of profound relief. At last, something was being done about this cancer in my body! I was so grateful. And, when the rest of the roadmap was revealed, chemo followed by radiation, I couldn't wait to get started. I was so grateful to know what was ahead that the prospect of difficult side effects was not daunting.

      I had so much to be grateful for. Luckily, one of Michigan's premiere cancer treatment centers had a satellite near my home. It gave me a great uplift and huge confidence that I was getting the best treatment possible to attack my cancer. I hope that you are able to access state of the art treatment, too.

      I hope you fill your heart and soul with gratitude that so much is known about TNBC (even though so much remains to be learned), and that there are treatments that work, however arduous they may be.

      You will find the strength you need to undertake this journey. It is already within you.

      6 months ago
    • carm's Avatar
      carm

      @Dorialicia,
      Hello, I am an oncology nurse and you may not realize it but you are so much stronger than you imagine. What you feel is what everyone feels and the faCt that you can verbalize it is apositve thing. We are all here for you to give you any answers you might seek. Best of luck to you.

      6 months ago
    • cllinda's Avatar
      cllinda

      What you are feeling is normal. Too many unknowns. I didn't sleep much for the first couple of months. I couldn't shut off my brain long enough to sleep. Too many what ifs. And at the time I was caregiver to my son who had been seriously injured in a freak accident. So life became crazy and disjointed.
      But we got through it all somehow. I'm now a six year survivor, my son is about to graduate next month from SIU, and I'm a grandma to two little girls. Life goes on.
      You will get through this. It's not easy. Journaling helps. See a counselor if you need help. Join a cancer survivor group. Do all that is expected of you during this chapter of your life and get through it. It can be hard but you can do this. And this site will help you, too. Hugs.

      6 months ago
    • fiddler's Avatar
      fiddler

      The thought of having cancer in the body is scary enough, but to think about TNBC? I don't know what stage you are, but once you beat it and make the 5 yr mark post treatment you're prospects are very good.

      Going through treatment is the s--ts, so a couple of things - ask for numbing cream to put on the port site so you don't feel the pain of the poke every time you go in; during radiation treatment slather on calendula gel (GEL) afterward to help preserve your skin; just go on neutral if you're able; watch funny movies - all the negative doom and gloom affects your body's ability to heal at the cellular level.

      You can get through this and when it's over it's over. Plan a celebration for the end of treatment.

      6 months ago
    • TerriL's Avatar
      TerriL

      I was diagnosed with tnbc March 2018. First of all, you can do this! It is not easy and your thoughts are completely normal. Take care of yourself first. Put everything else on the back burner. Chemo is rough, no doubt about it. I found that for me Vaseline worked better than the suggested creams during radiation. I am currently on Xeloda and have two more rounds, and it has been a year since I started treatment. It is a long journey but you can make it!

      6 months ago
    • MLT's Avatar
      MLT

      As all have said, you are having the normal reactions. It IS a relief to start treatment. I have confidence in my medical team and love my chemo nurses. Ask any and all questions you might have. I take a tablet with me every week for notes and my "Kill the Beast" pic from Beauty and the Beast. Even after you get thru all your treatments, continue to report anything new going on with your body. We have to be proactive with TNBC and all other BC.

      6 months ago
    • Dorialicia23's Avatar
      Dorialicia23

      I want to thank, KP2018, Carm, CLLinda, Fiddler, TerriL, and MLT,. All have given me hope, inspiration, and a reason to move forward on a positive note. Thank you for moral support.

      6 months ago
    • gpgirl70's Avatar
      gpgirl70

      You summed up exactly how I felt 4 years ago. I kept up a strong exterior but inside I was suffering. I was so angry because I had been so diligent about getting mammos, etc. I had a mammogram a few months before diagnosis and I was stage 3c at diagnosis and they found thyroid nodules that ended up being cancerous. I was a hot mess of anxiety and depression. The turning point for me was seeing a therapist who I continue to see every 3 weeks. I think time also heals a broken soul. I still think about my experience with cancer from time to time but now I have days go by without thinking about cancer.

      Just know that it does get better. You are in a treatment storm right now and as you finish treatments you will begin to see the light. Take every opportunity to pamper yourself and plan for fun things to do. During my treatment, I decided I wanted to go to Iceland. I planned the trip while I was being pumped full of chemo and waiting to be zapped by radiation. A year and a half after my diagnosis, I was traveling in a camper van with my husband around Iceland! Sending good thoughts your way. ❤️❤️

      6 months ago
    • Bella1819's Avatar
      Bella1819

      I think we all have very similar feelings when we are told we have TNBC. We are scared of the unknown, we feel unsettled, we are in a constant state of fear if it returns. I was diagnosed with stage 3, also 7 positive Lymph nodes. I chose to have a double radical mastectomy, Lymphectomy of 28 nodes, and oophorectomy. Then 6 months of chemo and 3 months radiation. Two years later I had Melanoma and also squamous cell carcinoma. They also found 3 nodules on my lungs. This best thing I did was I found a therapist I could share my thoughts with. It helped with my stress levels and my fears. I was diagnosed July 26th , 2009. Choose to fight. I hope I can inspire those who have little hope.

      3 months ago

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