• Triple Negative Brest Cancer

    Asked by Kevinjacque on Tuesday, January 31, 2012

    Triple Negative Brest Cancer

    Let me explain better. In July Jacque was diagnosed with triple negative stage 4 that had gone to her lymph system. Also they found tumors on her spine, pelvis and in her liver. She has been getting chemo since August. starting in December she started to have sever head aches and seizures. The did several CAT scans of her brain and did not find any tumors. However in a spinal tap the found cancer cells in her spinal fluid. The Neurologist said she did not have much time left. Her Oncologist said that she should only listen to him and sounded up beat but skirted the issue of her survival. What can I expect that the Cancer is now in her spinal fluid? Is the Doctor trying to cushion the blow so she doesn't give up? I just want the straight facts. Can anyone help?

    5 Answers from the Community

    5 answers
    • leepenn's Avatar

      Oh my gosh - I am so sorry for her diagnosis - this sounds like such a difficult road. I don't have any knowledge that could be helpful to you, but I do wish you strength and healing during this difficult difficult time. My heart goes out to you both.

      over 4 years ago
    • leesabee's Avatar

      I am so sorry to hear of Jacque's diagnosis. I also have Triple Negative Breast Cancer Stage 3a. I am still in the learning process about this type of cancer. I do know that I will not let it define me or defeat me. Please give Jacque a hug for me and tell her that she is not alone. I will get back in touch with you. I know there is a web site that deals with TNBC I will get you information shortly.

      over 4 years ago
    • leesabee's Avatar

      Go to Triple Negative Breast Cancer Foundation. Just type it into your search. They may be able to help you

      over 4 years ago
    • lovingspouse's Avatar

      My wife is triple negative, stage IV (lungs, sternum, spine, shoulder, femur). She is on her fifth different chemo and we're still trying to find one that works. She is also taking an experimental, common drug named Metoformin which has been shown to attack cancer cells in triple negative patients. Search "metformin-achilles heal-cancer" and you should get some hits. She's now on oxygen and fairly significant pain medication but we're continuing to try. Though it's hard to get her to eat, we do the best we can and her weight is constant. It's my understanding that there are many, many combinations of chemo drugs which, if your wife is otherwise in good health, may be effective. We have been given a 1-2 year prognosis and we are five months into that prognosis. I couldn't tell you know whether or not we're going to meet or exceed that prognosis. I do know that I want her to live for a cure. We have some hope about a vaccine that was announced in the UK, in conjunction with Univ. of Ga. and the Mayo clinic; but, clinical trials are not scheduled to begin until mid 2013. So, when you hear that a drug may only prolong her life for a few months, grab it, because you never know what tomorrow will bring. Also, try to live each day in itself. You can't think of life without her because you will be incapable of doing what you have to do and enjoying whatever moments you have with her. Good luck and God bless you and your wife.

      over 4 years ago
    • drgoodrich's Avatar

      Hello Kevin, how is she doing now? I was just diagnosed with TNBC, stage four, metastasis to the brain and want to know what chemo works the best for late stage TNBC. I hope and pray Jacque is OK.

      almost 3 years ago

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