• Triple negative recurrance

    Asked by Abendintheroad on Monday, February 11, 2019

    Triple negative recurrance

    I was diagnosed October 2017, had chemo, breast surgery, then radiation and was told I was cancer free in October 2018. I know that triple negative has a tendency to come back. I will be returning for mammograms every 6 months but does it ever come back someplace else in the body? I can't quit worrying about this. Any thoughts?

    7 Answers from the Community

    7 answers
    • ChicagoSandy's Avatar

      DIfferent types of BC, when they metastasize, typically do so first in different organs. Luminal A tends to go first to the bones or liver; TN goes to lungs & brain; HER2+ to lungs, brain or liver. But that doesn't mean that one's BC will metastasize, only that chances & eventual location tend to differ. (And with Luminal A, often the first evidence of mets appears at autopsy in women who lived to a ripe old age for decades after treatment, and died of something age-related like CVD).

      10 months ago
    • bruinjt's Avatar

      As a TNBC survivor myself, I can say that you can also get a primary TNBC again. I had TNBC in 2009 on my right side. I had a lumpectomy, chemo, and radiation. No more cancer. Had regular mammograms, etc.

      Flash forward to 2018. Regular checkup mammo. They had me come back because they were concerned (this time left side). They did a mammo with closer films, but also an ultrasound. Thanks to the ultrasound tech, she found cancer (at a place in my breast in a different area than they were concerned about). Luckily, it was found early. But it turned out to be TNBC again, and it was a new primary cancer as opposed to a recurrence. I was BRCA 1 & 2 negative, so the genetic doctor had no clue why I got it again (and as a new primary vs. recurrence) - and also 9 years later. (As someone mentioned, with TNBC, if you go 2-3 years cancer free, your chances of it coming back are less than other types of breast cancer.)

      I didn't tell you this to scare you or worry you. You have to live your life. I was vegan initially in '09 after I finished treatment. Then I just decided to be pescatarian (fish and veggies no meat). After I was diagnosed the second time, I just threw up my hands and said there is no guarantee, so I'm an omnivore again. (Although I probably will go back to being pescatarian.)

      I think it might be helpful to learn meditation and mindfulness. Live each day and celebrate life. Join a support group if that's helpful.

      Trust me, I'm a worry wart. I still worry. But I'm trying really hard not to think about it. (Now as a 2x TNBC survivor, I'm running out of drugs if it comes back!) There are no guarantees in life. Just enjoy each day as it is a present. (One of the reasons why my Relay for Life team name is "Living for the Future."

      10 months ago
    • cards7up's Avatar

      No one should ever be told they're "cancer free" after only one year whether treatment is over or not. Most cancers go by 5 years without a recurrence. There is no sense worrying about it, just stay vigilant with your follow-up scans/appts. Worrying changes nothing.

      10 months ago

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