• Tumor marker numbers rising monthly. I was diagnosed w/primary peritoneal cx and breast cancer/unknownn primary in June 2011. Finished chemo

    Asked by Abuelanana on Monday, May 13, 2013

    Tumor marker numbers rising monthly. I was diagnosed w/primary peritoneal cx and breast cancer/unknownn primary in June 2011. Finished chemo

    my last PET scan showed some lymphatic involvement but not enough to target with chemo/radiation/surgery, etc., I feel that I am being treated as a "lost cause" because I was metastasized at the time of diagnosis. Because I am MEDICARE only and will not have a supplementary policy until next year, I feel the best treatment options aren't offered to me because Medicare payment rates are ridiculous.

    Nutritional approaches aren't discussed with me - only chemo, radiation and surgery as possibilities to look forward to, however, I realized after my last surgery that if I did not keep my immune system maximized and generally take better care of what I put into my body, the cancer might find my body a good host to revisit.

    My oncologist said to "Let me know when you start to feel bad" . . . well, that's encouraging!!!!! I'm keeping a good attitude about all this though. Meditation and God's grace and tender mercies get me through my days.

    4 Answers from the Community

    4 answers
    • JeanB's Avatar

      Hi, I'm new here myself, and I wish I had answers for you. I, too, feel that nutrition is important. I haven't started chemo yet, this Thursday, but I did meet with my nutrionist and I didnt feel like enough was said about nutrition. I am excited to see what this group says about that. I have gotten lots of support here, I love these people. I'm glad you are keeping a good attitude, I truly believe that can make a big difference. I just recently started reading about meditation and I think I would greatly benefit from it. Good luck to you in this journey.

      over 3 years ago
    • BoiseB's Avatar

      "Let me know when you start to feel bad" OMG your oncologist must have the same script as mine. I also got a lot of doctor speak about "markers" I think they must have a playbook they look-up MEDICARE and find the "go to Lost Cause Scenario. I have found that you have to do a lot on your own. I get several Newsletters from two groups the most useful one is www.qualityhealth cancer survival. It always has recipes. They always include nutritional information. Now when I visit my nutritionist she asks me for recipes. All I ask her is what did the blood tests show that I was deficient. Then I make out my menus. I also bump-up alot of the recipes I find on the Food Network and other cooking sites. Is it working ? I got out of the hospital the week before Easter I had had a hysterectomy a month before (lots of complications on that one) I got the "Lost Cause" scenario six weeks ago. Sunday I hiked (with my cane) a mile a quarter of the way was up hill. Did it work? You make the call

      over 3 years ago
    • Abuelanana's Avatar

      I appreciate the feedback so much! I have been lifted by your words and thanks is too weak a word to represent my feelings. Tomorrow is "bloodwork/tumor marker day" and I can only pray that the numbers have seen fit to respond to the Nutritional approaches I've been applying to my situation. One interesting thing that BoiseB mentioned had to do with Nutritionists that will help you work with deficiencies based on your bloodwork. I believe therein lies the KEY! My previous experience has been with Nutritionists that give you a series of handouts about various diets (calorie goals, etc.,) nothing specific to the current condition of your health based upon the tale the bloodwork tells!

      One more thing - I've been introduced to an Ayurvedic practice called "Oil Pulling". It's said to reduce toxins in the body via "swishing" 1 tablespoon of cold-pressed oil (e.g., sesame, sunflower, coconut) for 15-20 minutes once or more times a day. Has anybody had any experience with this? The stated potential benefits are quite amazing. I'm on day 3 of my trial with it. (update to follow).

      over 3 years ago
    • BoiseB's Avatar
      BoiseB (Best Answer!)

      Good Luck with your Doctor Visit, I am also going in for a Dr. Visit tomorrow. Just be sure to ask about the blood work. Because the Nutrionist is not going to volunteer that information, You just have to do it yourself.

      over 3 years ago

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