• Two cancer surveys: (1) Endocrine therapy side effects and (2) Chemo and hiccups

    Asked by Ejourneys on Tuesday, June 25, 2019

    Two cancer surveys: (1) Endocrine therapy side effects and (2) Chemo and hiccups

    Just learned about these:
    "Approximately 25-30% of patients with breast cancer who are prescribed endocrine therapy do not complete the full course of treatment, and some patients never start. Side effects of endocrine therapy are well documented but there is very little literature on the role of the medical team in helping patients manage treatment-related side effects. This survey is being conducted for research purposes. It is a UCLA research survey, is open to women and men with a history of breast cancer who have been treated with or who have received a recommendation for endocrine therapy."
    Survey Link: https://www.surveymonkey.com/r/EndocrineTherapy

    "Mayo Clinic investigators want to learn more about hiccups in people who are receiving cancer treatment and, if you have experienced hiccups, how they may have affected your quality of life."
    Survey Link: https://connect.mayoclinic.org/discussion/have-you-ever-had-hiccups-with-or-after-chemotherapy/?linkId=69472895

    9 Answers from the Community

    9 answers
    • beachbum5817's Avatar

      @Ejourneys, It is so good to see a post from you. I hope all is going well with you. Thanks for the links. Take care.

      4 months ago
    • Gabba's Avatar

      We have missed you! I am still coloring and we have just put together packets of coloring sheets, pencils and sharpeners for our inpatient cancer unit, infusion and radiology areas. All because you got me started!

      4 months ago
    • Ejourneys' Avatar

      Great work, @Gabba! Thank you! <3

      4 months ago
    • carm's Avatar

      Happy to see you posting again.

      4 months ago
    • Carool's Avatar

      Hey, Ejourneys! I, too, am so glad to see you here.

      4 months ago
    • PaulineJ's Avatar

      Yes,I to was wondering what happened with you.

      4 months ago
    • Ejourneys' Avatar

      Thanks, everyone! I'm fine, just have a lot going on here. Highlights:

      1. Was taken off anastrozole early (after 3-1/2 years, rather than 5) after a severe vertigo event that left me with a headache for a solid week. Head CT and check with ENT confirmed my suspicion that this was yet another SE from the med. Oncologist and I agreed enough was enough. A year later my bone scan shows improvement in my bone density (YAY!), my tenosynovitis is gone (YAY!) and my carpal tunnel syndrome has reverted back to pre-anastrozole baseline (YAY!). My post-chemo garden-variety vertigo continues, but I'll take what I can get. :-)

      2. I'm now part of a great team that's revamping my radiation center's website, plus I do additional writing for the center. I love the gig, and the people there are like family. I also continue to co-facilitate the caregiver support group there.

      3. Caregiving continues to ramp up as my partner continues to lose mobility. She's finally agreed to our taking the transport chair with us, though she's still resistant to applying for a disabled parking card. One step (or wheel) at a time.

      4. I continue to call my legislators and be an engaged citizen.

      Best wishes to all! Keep on keepin' on.

      4 months ago
    • LiveWithCancer's Avatar

      Hi @Ejourneys! Just didn't want to let the opportunity pass to say it is good to see your name here! Thanks for the update ... sounds mostly good except for the declining condition of your partner.

      4 months ago
    • Bug's Avatar

      Hi, Ejourneys! It's nice to hear from you.

      Gabba, it's nice to hear from you, too.

      4 months ago

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