Generally, the protocol is to treat only when there are clinical symptoms an active disease progression.
Chronic Lymphocytic Leukemia (CLL) Questions
Asked by Cindygirl on Wednesday, February 27, 2013
How do you know when to treat CLL?
4 Answers from the Community
I cannot answer your question, but can refer you to an organization that might be able to offer more specific help. It's the Leukemia Lymphoma Society. You can find them online at www.lls.org. My late father had CLL. I'm a BC patient myself doing pretty well.
Let me know if there's anything I can do for you-I'm a (retired) Librarian and trained Medical Librarian.
My doctor told me that when fatigue was becoming more the norm than the exception, that was a sign that I may need treatment. The other indicator is when your absolute neutrophils or platelets are very low. I just saw my oncologist today for a checkup & my platelets are only 60,000. He thinks I may need more chemo soon. There is a new MAB that he would like to try if my insurance will approve it for payment. I will wait & see. My next appointment is for late June.
Did you get your answer? I have same cancer and am wanting to know more details rather than generalizations. There are clinical symptoms listed on many sites, but who notices them, what do they actually notice? I get the impression I may get peripheral neuropathy due to node enlargement near blood vessels. What is the one near my main portan vein going to do ?? Just so many unknowns. Best of luck to you!