• Update

    Asked by gonewest on Friday, June 10, 2016

    Update

    Hi. I've had an interesting month. Nivolumab took my thyroid hyper then hypo within a couple of weeks. Lots of shaking, sweating, moodiness. Having yet another PET/CT next week. Prior scan showed "psuedo-progression". Lung met nodule got bigger but onco not sure it wasn't inflamed with nivolumab. Thank you to everyone looking for me and your wall posts. I have had messaging off for a while. Love. Chris

    21 Answers from the Community

    21 answers
    • geekling's Avatar
      geekling

      Feel better soon, Chris.

      We miss ya.

      about 5 years ago
    • judyinflorida's Avatar
      judyinflorida

      So glad to hear from you. Catch us up when you can.

      about 5 years ago
    • BoiseB's Avatar
      BoiseB

      Glad you are back. Sending prayers your way

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hoping you feel better soon. Opdivo messed with my thyroid too. I never went hyper, but definitely hypo... no fun. Just hope the immunotherapy is doing its job.

      about 5 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm sorry you had to go through "interesting times". Hope you are feeling better soon and your oncology team gets things under control. Take care!!

      about 5 years ago
    • Sue_2015's Avatar
      Sue_2015

      Thanks for the update Chris. Glad you're back. I've not been on here much lately at all either.
      I'll have to post an update one of these days but afraid it'll be a whole page long so much has been going on.
      Blessings.

      about 5 years ago
    • Ejourneys' Avatar
      Ejourneys

      (((Hugs)))
      I'm sorry for the interesting times. Am keeping my fingers crossed for the best possible PET/CT results.

      about 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      I also hope you do well in your journey. Take care.

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @geekling. Thanks, I miss you guys too. Love to to you.
      @judyinflorida. Great to hear from you. How are you and how is your husband?. Love to you both.
      @BoiseB. Awww you know I appreciate your kindness. Spread the love and my love to you.
      @LiveWithCancer. I never understood how much a thyroid has to do with well-being. I haven't felt human in the last month. Just a weepy, sleepy blob! Love to you.
      @buckeye Shelby. For some reason your quotes around interesting times made me laugh out loud. Yes, much drama this this month, especially when the girl in the SUV ran over my 67 year old husband (37 years married) in a pedestrian crosswalk. He was crossing with the light and the "walk" sign was flashing "walk" as she ran him down. He miraculously survived with soft tissue injuries, muscle injuries and a hairline fracture. Thanks for the laugh it was cathartic. Love to you.
      @Sue_2015. I would be happy to read any post of yours no matter the length! Love.
      @Ejourneys. Hugs back! Thanks for the crossed fingers. Love to you.

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @Doreen Louise. Thanks so much. How's it going with you? You slid in there as I was sending my response above! Love.

      about 5 years ago
    • SandiA's Avatar
      SandiA

      Hi Chris, glad to hear from you. I also had thyroid problems with nivolumab. Like Live I was hypo too. Sending you best wishes and ((hugs)). Sandi

      about 5 years ago
    • Carool's Avatar
      Carool

      Chris, it's great to hear from you! I hope, of course, that you get good news on your upcoming tests, and that your husband is healing well (what a traumatic experience that must've been). Please let us know how you're doing. Love and hugs, Carol

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @SandiA. Thanks. I went from normal tsh levels to undetectable 0.0, in 2 weeks. Hyper thyroid. Went on tapazole. 3 weeks later tsh was 116. Endocrinologist put me on levothyroxin. Tsh went down to 96. Normal=<5. Still a blithering mass of horrible but somewhat better. How's the thyroid med working for you? Love as always.
      @Carool. Hi my friend. Yeah the husband transported by ambulance to Cedars, a bloody mess but it could have been much worse. The ER docs said he was lucky to be alive. Love and hugs back.

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thank God your husband survived being run over. Was the person that ran him over texting or just in a hurry? I had an aunt and uncle run over by a drunk when they were crossing the street legally. It killed my aunt. My uncle lived, but suffered side effects until he passed away.

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @LiveWithCancer. We don't know what she was doing but the subject of cell phone use at the time was broached. Because we've had to get him immediate care for so many injuries we haven't even addressed her yet. How horrible a drunk driver took your aunt's life! And your poor uncle. Love as always.

      about 5 years ago
    • Sharlie's Avatar
      Sharlie

      Good to hear from you, Chris. Geez, what awful "interesting" things! Life throws us a lot of curve balls along the way and it's best to know when to duck and get out of the way, try to hit the sucker out of the park, of just take it as it comes and see if the next pitch is any better. I'm so sorry that your husband was struck by a distracted driver. What an awful thing for you both. I hope he heals completely. Wishing you all the best with your PET/CT scan next week. Keep us updated if you're able to.

      about 5 years ago
    • Jenjen29's Avatar
      Jenjen29

      Feel better soon praying for you

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @Sharlie. Your advice is spot on as usual. Ride the ride. Thanks for caring. Love to you.
      @Jenjen29. Thanks. All right back at you. Sending love, compassion.

      about 5 years ago
    • geekling's Avatar
      geekling

      Thank goodness that you and your hubby are still there for each other.

      The roads and roadways are another nightmare. People dont look. If they look, they dont see. If they see, they dont act properly for the situation.

      Im sorry your hubby was injured. I am glad he survives. Tbose soft tissue injuries can be almost as much of a bug-a-boo as the drug induced neuropathy.

      Best wishes for both of you to feel better soon.

      about 5 years ago
    • Jalemans' Avatar
      Jalemans

      just sending positive vibes to you!

      about 5 years ago
    • gonewest's Avatar
      gonewest

      @geekling. Thanks so much. You're right about soft tissue injuries. He had to use a walker.
      Love, Chris
      @Jalemans. Catching those with much appreciation! Love to you.

      about 5 years ago

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