Rare Cancers Questions

  • Julia468's Avatar

    Update

    Asked by Julia468 on Monday, November 12, 2018

    Update

    We've had a rough couple of weeks.

    My swollen leg is cancer. They could see it in the CT scan. It has grown substantially making ineligible for the clinical trial i was on. There is another clinical trial they want to get me into in the next two weeks.

    My husband spent another 10 days in the hospital for pain control and because he hadnt been able to keep anything down. They put him on a pain pump and TPN (total parenteal nutrition) he came home with both. His pain is better but he's refusing tpn. He is so thin and week. Before he went in he told me he was dying. That the grim reaper was sitting next to him. Our ten year old has been having a hard time seeing him like this she says its so hard seeing the strongest person she knows so week. My heart is breaking

    9 Answers from the Community

    9 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Oh @Julia468, i am so, so sorry. I can't imagine what all of you are going through, especially your precious young daughter. I wish i could make it better or offer advice, but all i have are warm cyber hugs and lots of prayers for all three of you.

      7 months ago
    • po18guy's Avatar
      po18guy

      Words fail. When life makes no sense, we can only trust that everything happens for a reason that we cannot see. Prayers ascending for your family!

      7 months ago
    • Bug's Avatar
      Bug

      Oh, goodness. This is rough indeed. I am so sorry.

      7 months ago
    • alivenwell's Avatar
      alivenwell

      I am SO sorry for what you are experiencing. Is there a counselor who can help your daughter copy with the chaos? Hopefully there is somebody available to take you to your trial treatments.

      I see a lot of hope with immunotherapy. Good luck.

      7 months ago
    • beachbum5817's Avatar
      beachbum5817

      I am so sorry that you have to go through all of this. My heart aches for all of you. You are all so young. Your 10 year old sounds so mature for her age. It is hard to watch a person deteriorate. Hopefully, your doctors will be able to get you into a new trial. I hope that you have family and friends close by to help you with everything. Good luck. Take care.

      7 months ago
    • BoiseB's Avatar
      BoiseB

      I can only place you and your family on my prayer list. I do hope your daughter can get counseling either from a pastor or cancer center

      7 months ago
    • SandiA's Avatar
      SandiA

      Oh my! I am so sorry. Like others I wish I had words, but I don’t. I will be praying for you and your family.

      7 months ago
    • andreacha's Avatar
      andreacha

      Please accept my heartfelt prayers for you and your family.

      7 months ago
    • cards7up's Avatar
      cards7up

      Are they going to do a biopsy? That's the only way to confirm if it's cancer or not. Wishing you all the best.

      7 months ago

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