• Update. Hospice.

    Asked by gonewest on Saturday, July 23, 2016

    Update. Hospice.

    So yes, today I met with a new doctor. Palliative doctor. Upgraded pain control today and referred to hospice. Love, Chris

    43 Answers from the Community

    43 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Chris, this is not news that I am happy to hear, but how I pray that hospice will keep you comfortable. I know the decision wasn't made lightly or easily.

      We love you and we are here for you. Both you and your husband (how is he doing?) are very frequently in my thoughts and prayers and will continue to be.

      Great big, gentle bear hugs.

      almost 5 years ago
    • CAS1's Avatar
      CAS1

      Oh Chris, I am so very sorry. I had posted a new clinical trial several weeks ago with you in mind.
      I just wish I could offer you a life line..I wish I could help you. I am so very sad to hear this. I wish there was something I could do or say. I am so sorry.

      almost 5 years ago
    • Ejourneys' Avatar
      Ejourneys

      (((Hugs))), Chris.
      Sending much love and praying that you get whatever comfort you need.

      almost 5 years ago
    • geekling's Avatar
      geekling

      I'm so sorry that you have come to the end of doctor medicine.

      You sound so at peace with it. Are you that tired?

      I read up on your type of cancer, Chris. You never had much of a shot with western medicine.

      If your pain is being handled, I beg you to not go quietly into that good night but to do things outrageous in an attempt to save your own life. For the elevendieth time they are using full extract cannabis oil as a curative and not just a pain killer. I know it is a long shot but it is only a few dollars more as the oil is used as a rectal suppository and you need work up to the dosage for ... it is still a long shot but it is hope..

      You know I like you so I'd like to keep you around for some more time. Would you be willing to try a guanabana protocol? It is just food Chris and the shot is just as long.

      How is that hubby of yours doing? He will miss you so much. Don't go just yet, Chris.

      https://www.youtube.com/watch?v=gEaAmUDEiGo

      You haven't seen everything

      Blessings

      almost 5 years ago
    • Sharlie's Avatar
      Sharlie

      All I wish for you Chris is that you be at peace and it mostly seems as though you are. None of us ever wants cancer to come back but all of our days are numbered from the moment we are born into this life journey. My mother died in a split second from a stroke at the age of 55 and that was 51 years ago. As long as my pain was managed, this is how I would chose to go on to the next journey. You are a class act, lady.

      almost 5 years ago
    • Carool's Avatar
      Carool

      Chris, Sharlie's last sentence said it! Love, Carol

      almost 5 years ago
    • Jalemans' Avatar
      Jalemans

      You are in my thoughts & prayers.

      almost 5 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      gonewest, years ago, my younger brother went into hospice. The caregivers he had were very attentive and helpful, and kept him comfortable .. I have always been grateful that hospice was there to help. I too am sorry this choice had to be made, but I hope you too find the relief from the pain, and a better quality of life . You are in our hearts .

      almost 5 years ago
    • Bug's Avatar
      Bug

      Yes, an accurate way to put it - indeed a class act. I am sending prayers and a big, warm hug.

      almost 5 years ago
    • kalindria's Avatar
      kalindria

      Let me join with the others here who wish you love, light, and peace as you take these next steps. You have been a beacon of joy and hope to so many of us here and I can never thank you enough. And yes, you are indeed a class act. I hope I can be as gracious and calm when my time comes.

      almost 5 years ago
    • SandiA's Avatar
      SandiA

      Chris, I am so sorry to hear this. You have been on my mind and in my prayers. Sending big ((hugs))
      Sandi

      almost 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      All of us on the team at WhatNext are so sorry to hear your journey has come to this fork in the road. We wish you the best, as it can be. For what it's worth, we used Hospice service for both my Mom and Dad, it made the whole process much easier and peaceful than I ever thought it would be possible.

      almost 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      Chris, in my message to you yesterday I may have called you Carol. Sorry about that. I've thought of you many times today and hope that you are experiencing peace. Prayers are continuing to be said for you and your family.

      almost 5 years ago
    • geekling's Avatar
      geekling

      Please let me apologize for my selfishness, Chris.

      I will miss you a surprisingly big amount. You wont be forgotten.

      Now that you've book passage, allow me to wish you a pleasant journey to the UnDiscovered Country. I hear the place is pretty alright. Perhaps we will run into each other at some point but not for a while yet. I still have a lot to do here.

      Hoping you are comfortable and surrounded by love.

      Wishing you colorful Elysian Fields and all your hopes and dreams to be true.

      almost 5 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I hope the pallative care doctor can help with your pain and make you comfortable. And I hope you'll get visiting us here as long as you can. 'Cause I'll selfishly say I don't wanna let you go. But I also know you gotta do what you gotta do, right? And who knows, maybe some miracle cure will become available and you can leave hospice. I can dream, right? Many, many, many hugs to you!

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      @everyone. Thanks so much for your kindness. Surely you know I love you so. Chris

      almost 5 years ago
    • Carool's Avatar
      Carool

      Chris, I know - we know - and you know that we love you. I think of you and hope you are comfortable and dreamy. I'm glad you are at peace, though I, too, "don't want to let you go," as Shelby said so eloquently. And I wish your loved ones ease and peace, though I know how hard it will be for them. Love you.

      almost 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      Hi Chris, I love you too and feel your love also. I find it amazing that I could love someone that I've never met. It's this wonderful site that gives us strength and courage and helps us grow. You have shared so much knowledge and are now teaching us how to accept death. I hope you are resting well. Prayers have been said for you and your family. Doreen

      almost 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise (Best Answer!)

      Thinking of you Chris and hoping you are well.

      almost 5 years ago
    • Sharlie's Avatar
      Sharlie

      Sitting with you Chris, listening to some of your favorite music or just listening to the sounds of nature. Much love and the gentlest of hugs.

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      I can't decide whether to accept hospice or go on straight palliative care. Choosing palliative right now would leave me on meds like the fentanyl patches that work well to control pain and leave me with a fairly lucid mind. I still walk around, can play some with the dogs, enjoy my friends and family and eat. Hospice would most likely discontinue fentanyl and put me on morphine. I don't do well on morphine, nor do I need it just now for pain control. Palliative care leaves my insurance coverage intact as well whereas hospice restricts my choices. Decisions! Ugh.

      almost 5 years ago
    • Carool's Avatar
      Carool

      Chris, can you first go on palliative care and switch to hospice if and when you want to? Or am I being obtuse in asking this (in other words, you wouldn't be forced to decide now, if you could go first to palliative and then switch later). Palliative sounds so much better to me. Love, Carol

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      Yeah I can decide later on to go with hospice. I don't want my pain control changed just because morphine is cheaper for the hospice. I only want it changed when i say I need more pain control than fentanyl can offer me. Love, Chris

      almost 5 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      gonewest, think you chose without knowing you chose when you said you don't do well on Morphine and your insurance coverage stays intact on palliative care. Glad you are
      enjoying family and friends and eating. I know your dogs are enjoying your playtime with them.

      almost 5 years ago
    • kalindria's Avatar
      kalindria

      I agree with Lynne. If you have a preferred pain control method, that's a great deal. I'd stick with whatever option gives you that. Hugs!

      almost 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I agree that palliative care sounds far superior to hospice at this time. Hugs and prayers, sweet Chris!!!

      almost 5 years ago
    • SandiA's Avatar
      SandiA

      Chris, I am glad palliative care seems like a good option right now and you can enjoy your dogs, family and friends. Sending hugs and lots of prayers!

      almost 5 years ago
    • Carool's Avatar
      Carool

      And your kittens.

      almost 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      Chris, I feel that if palliative care will control your pain for the near future that you should strongly consider that route. When I was young and had horrible menstrual cramps, I found that marijuana helped ease the pain. I have not smoked marijuana in over 30 years, but would consider using it again because of the research showing that it can destroy cancer cells and for pain relief. I would ask my doctor for a prescription for medical marijuana if my cancer journey was similar to yours. There is legal medical marijuana that does not contain the THC that gets one high. If medical marijuana is not an option in your state, I would talk to younger neighbors. I would also go that route if I was unable to obtain it legally. I hope you are doing well. Let us know if you are choosing palliative care or hospice. Stay strong and God Bless you.

      almost 5 years ago
    • geekling's Avatar
      geekling

      Double ditto times twenty from me regarding what Lynne-I-Am said.

      Stick around a bit. You are so lovable.

      almost 5 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      What Lynne-I-Am said! PALLIATIVE CARE---and check into medical marijuana for later. I'm so glad you feel up to playing with your dogs, and I don't blame you for not wanting to go on morphine.

      Sending hugs and good wishes. See you in Paradise with our pets.

      Barbara

      almost 5 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      Hi Chris, I hope you are having a good day.

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      Hi everyone. I chose palliative over hospice. I love my new doctor. What a sweetie. I also got a new oncologist who is looking to find something I haven't already tried. What a difference from my former oncologist. So I'm feeling better, lots better since I stopped the nivolumab. No more joints aching, no more vomiting, no more stomach pain, no more than the occasional headache no more numbness in feet and hands, no more pain in bladder. If I wasn't wearing fentanyl patches and if there wasn't blood in the toilet I would not know I have advanced cancer. Love to you all who weighed in on my choices and once again,made a difference. Sincere thanks. Love, Chris

      almost 5 years ago
    • Sharlie's Avatar
      Sharlie

      Wow, this is awesome news Chris! I'm so excited for you...doing mental cartwheels! How is your hubby doing? Did he have the surgery? Keep up the good work. Hugs.

      almost 5 years ago
    • Ejourneys' Avatar
      Ejourneys

      (((Big Hugs))), @gonewest! I am so glad and relieved that the pain is gone. Makes all the difference in the world. Am pulling for you and the new oncologist!

      almost 5 years ago
    • Bug's Avatar
      Bug

      This is such wonderful news! I am so happy for you, gonewest. It sounds like you practically feel like a different person. You and your husband remain in my prayers. I hope he is doing okay...?

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      For those of you who recommend medical mj, I have been using mj for years now. Yes, all doctors know. It's improved my mood and lessened pain and anxiety. Thanks. Love, Chris

      almost 5 years ago
    • gonewest's Avatar
      gonewest

      @everyone. My husband is having surgery to remove lesion on kidney the end of this month. He's playing that horrible waiting game we all know so well. Thanks so much for caring! Love.

      almost 5 years ago
    • Sharlie's Avatar
      Sharlie

      I hate that waiting game! I'm generally very patient but when it comes to things involving surgery or major health decisions...all my patience flies out the window. Sending him positive thoughts.

      almost 5 years ago
    • SandiA's Avatar
      SandiA

      Chris, that's great to hear. A good doctor makes all the difference too. Continuing to pray! Sandi

      almost 5 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      So glad you found a doctor & a game plan to your liking. You just had to find the right person @ the right time.

      almost 5 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Very glad your off the medication that was causing you so much grief. Encouraging that you
      have a new oncologist ,the right doctor makes a world of difference. Sending a hug and a stream of positive energy.

      almost 5 years ago
    • BoiseB's Avatar
      BoiseB

      Chris so wonderful to here from you. You have made my Day. I will continue to pray for you in my daily prayers and specially on Sunday's at church. Many people are praying for you.

      almost 5 years ago

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