• Waiting for PET/CT Scan Results...

    Asked by MarS676 on Tuesday, April 9, 2013

    Waiting for PET/CT Scan Results...

    I had a PET/CT scan yesterday because at my 3 months MO follow-up the blood work showed I had elevated liver enzymes. I hardly slept last night and will not let my phone out of my sight all day today but I'm wishing it didn't ring. I know someone will call if there is a problem but am not sure if they will call to tell me good news. I almost don't want to know, if it turns out to be mets there is really nothing to be done so why even bother knowing. I am so nervous, is this the way the rest of my life will be? Worrying about medical test results, recurrence or mets?

    7 Answers from the Community

    7 answers
    • GregP_WN's Avatar
      GregP_WN (Best Answer!)

      I do know the feeling of waiting for a scan. Sometimes it overwhelms you. I try to think about other things and put it into my mind that everything is going to be fine. Worrying about the what if's will drive you batty. I prefer to not worry about what I cannot control. I heard a quote years ago when first starting treatments that said, "Keep your mind OFF what you don't want, and ON what you do want". So anytime I start feeling like you are I turn those thoughts off and start thinking about what I want, what my wife and I are going to do. It helps and works for me.

      I hope you can get a grasp of your runaway feelings.

      over 3 years ago
    • fastdog's Avatar

      This will happen to an extent with every scan, that's why it's called "scanxiety." It's part of the new normal that is a cancer journey, unfortunately. But, we can't let it control our lives, overwhelming as it can be. I always try to tell myself that if there's something inside me that shouldn't be there, knowledge is power, and the scan will give my oncologist information so that we can be proactive and deal with it. I compare thinking about it obsessively to a little white mouse going round and round on his wheel. He goes round and round, but gets nowhere. And then I try to visualize the mouse getting off the wheel and going to get a snack or have a nap, and then I think of something good to look forward to, or get myself a treat or read a good book. Anything to interrupt that obsessive worrying. I wish you the very best, and hope you get good results. And don't be afraid to follow up if you don't hear in a reasonable time. It took me a lot longer than it should have to get results from my last scan.

      over 3 years ago
    • karen1956's Avatar

      I love what Greg said.....yes, nervous about test results, but life does go on.....and if it is mets, life isn't over....its just a new direction....wishing you good news.....

      over 3 years ago
    • CAS1's Avatar

      First of all Metastic Breast cancer has a five year survival of 90% and if thats the posted rate you know its better than that. We only wish that "ALL" cancers had that statistic behind them. What ever it is its treatable. Did you read my post about 70% of men with Lung Cancer also have anxiety..Please don't let fear hurt your health. Get some exercise, meditate and stay calm.
      You have the power to decide how the rest of your life will be..Thats part of the fighting..Do not let cancer win...All the best,

      over 3 years ago
    • Kathy's Avatar

      We have all been there. I think that has got to be one of the worst things is waiting for results. It just is! If it is the good news you will feel like the hugest weight is lifted over your shoulder. And if its news you don't want to hear - at least you will finally know what it is and make the necessary plans to fix it. I love when I'm fresh off of getting good results and anxiety free. When it gets closer to the next follow up the anxiety will creep in. I don't constantly feel anxious; however when waiting for results it is tough. Be kind to yourself and try to engage in anything you enjoy to take your mind off of the waiting. Take good care. Hang in there.

      over 3 years ago
    • MarS676's Avatar

      My scan was NORMAL! Like Kathy said the minute I heard the nurse say "normal scan" a huge weight was lifted off my shoulders and I actually began to cry. I can't believe the anxiety I was feeling, it was worse than when I was waiting for my biopsy results. I pray to God that this gets easier. Thank you all for your support.

      over 3 years ago
    • GregP_WN's Avatar

      Good news Mar. Now you can relax!

      over 3 years ago

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