• We are making a master list of symptoms that people had before diagnosis. Not just some random "I had a strange feeling", but bonifide

    Asked by GregP_WN on Monday, December 26, 2016

    We are making a master list of symptoms that people had before diagnosis. Not just some random "I had a strange feeling", but bonifide

    symptoms that told you that you had to get to the doctor and find out what was wrong. Please list your symptoms and what type of cancer diagnosis you were given.

    43 Answers from the Community

    43 answers
    • LiveWithCancer's Avatar

      Lung cancer - absolutely NO symptoms :(

      almost 3 years ago
    • geekling's Avatar

      Are you making a list and checking it twice?

      A growth. Body aches. Limited energy.

      almost 3 years ago
    • Carool's Avatar

      Lump in breast.

      almost 3 years ago
    • Janetspringer's Avatar

      Stage IV uterine cancer with mets to the lungs and brain. Before I was diagnosed, I had massive bleeding and pain. The pain became so bad that I basically doubled over and vomited several times a day. I lost over 50 lbs in two months. My brain tumor was discovered when one leg had a seizures, focal seizure, and was paralyzed.

      almost 3 years ago
    • meyati's Avatar

      A 25 year old zit on my face. It wasn't in my system yet-

      almost 3 years ago
    • BoiseB's Avatar

      When I went to the Dr. I thought I had the flu. I had vomiting and loss of appetite but I thought is was due to depression over my father's death. I had lost nearly 30 pounds Esophageal Cancer.
      I had started bleeding I thought I had hurt myself pulling large trashcans of water from the ceiling leaking, Before I could schedule the last test I was in the hospital for a blood clot in my lungs. I also had a concussion and a broken wrist and back injury. I live in a three ring circus. Uterine cancer

      almost 3 years ago
    • Boris12's Avatar

      I was getting up during the night 4-5 times, Thought it was just the "old man problem" until I started to see blood in my urine, Stage 4 prostate cancer PSA over 500 and had spread to lungs and bone.

      almost 3 years ago
    • Phoenix76's Avatar

      Even though I'd been through menopause, I started having cramps and heavy bleeding. Diagnosed with Stage III endometrial cancer. NED for 3 years!

      almost 3 years ago
    • Skyemberr's Avatar

      Rectal bleeding, extreme fatigue, constipation, fevers, unexplained mass in rectum.

      almost 3 years ago
    • Skyemberr's Avatar

      Of course all ofc the above symptoms were excused as an anal fissure and hemorrhoids, because the doctors didn't look deeply enough. I'm young and had had a clean colonoscopy two years before, so even when I described a mad the duo's thought I was just a nutty patient. If you feel like the doctors isn't doing enough MAKE SURE they do enough. In my case I forced the doctor to do a digital exam.say hello to stage 3c

      almost 3 years ago
    • msesq's Avatar

      I had absolutely no symptoms of breast cancer and my diagnosis floored me. After my biopsy I had at least 5 breast exams by trained professionals and none of them found a lump. That is why it is so important to get your mammograms on a regular basis, if not for the mammogram I could very well be dead (I have HERS 2+ breast cancer very aggressive if untreated).

      almost 3 years ago
    • lh25's Avatar

      Uterine cancer, stage 3 grade 1. No symptoms until the night I started bleeding very heavily, like a super-period.

      almost 3 years ago
    • Richardc's Avatar

      Squamous cell cancer of the lymph nodes. I had a swollen gland on the left side of my neck. It kept going away, and took the doctor to figure out what was going on.

      almost 3 years ago
    • IKickedIt's Avatar

      Colon cancer, stage III....no symptoms until I literally filled a toilet with blood. Doctors initially thought the bleeding was due to internal hemorrhoids. Because I was adopted as an infant and have no medical history, they decided to do a colonoscopy even though I was only 45 years old. Thank goodness they erred on the side of caution, but the most important thing was that I didn't ignore the bleeding and went to the doctor immediately.

      almost 3 years ago
    • sameagle's Avatar

      I had a small lump (size of a pea) on my breast that hurt intermittently. My GP told me not to worry about it. It increased in size (to the size of a grape) and became more painful for 3 more months. I switched to a new GP who had it checked immediately. By then it was Stage II invasive ductile carcinoma, Triple Negative.

      almost 3 years ago
    • VanAnn's Avatar

      Non-Small Cell Lung Cancer: I had a cough that from start to finish would last 10 - 15 minutes and render me helpless. Extreme fatigue.

      almost 3 years ago
    • geekling's Avatar

      I beg to differ, BTW, in that I am quite sure that "gut feelings" do have value.

      I sometimes have precognitive dreams or unexplainable premonitions and it has been to my benefit to not discount them.

      almost 3 years ago
    • Molly72's Avatar

      Angiosarcoma: a very strange colored bruise kept appearing where there had been no injury
      Gastrointestinal Stromal Tumor: no symptoms
      Melanoma: mole changing & enlarging
      Thyroid: no symptoms
      Basal cell (5) : just small spots on skin
      The 2 other pre-cancerous tumors had no symptoms as well

      almost 3 years ago
    • Dkatsmeow's Avatar

      I had a sore throat that just would not go away. Not even after a course of antibiotics. 2nd time an ear ache on left side only.

      almost 3 years ago
    • NinaKristiina's Avatar

      Abdominal pain, lots of it. Sweating too. I was on loads of pain meds over a year, crying at home and got no answers. Pills did not touch the pain.Finally tumours in both ovaries and they had spread already. I wonder how they could do ultrasound and miss over 6cm tumours but well..now, after chemo, severe sepsis and 2 operations I have nerve pain..but I´m still here. (Ovarian cancer) This was about 5 yrs ago, and I´m 42 now.

      almost 3 years ago
    • Fudgie's Avatar

      Lung cancer Stage IV, EGFR+ Exon 19. Shortness of breath and then a strange sounding cough when I first got up in the morning. Went to urgent care, chest X-ray, dx with pneumonia, given antibiotics, went back a week later, another chest X-ray, blood work all normal, referred to PCP (who had no openings) and saw nurse practitioner, deep breathing exercises and another chest X-ray. Radiologist recommended CT scan which showed a mass in my lung and mets to liver and spleen. During that period of time I also developed a whistle sound when I exhaled which I noticed only when I went to bed.

      almost 3 years ago
    • cheryncp's Avatar

      I was having shortness of breathe that got progressively worse as well as a persistent cough which was non-productive but annoying. I also had a squeaky voice that tended to come and go. I finally went to see my pcp who diagnosed me with bronchitis/asthma. After several visits with no relief I scheduled an appointment to see a pulmonologist who ordered an xray that showed a large pleural effusion i then had a thoracentisis and the pleural fluid tested positive for cancer cells. I then underwent a pleurodesis and biopsy that showed stage 4 adenocarcinoma and I had the ALK mutation.

      almost 3 years ago
    • schweetieangel's Avatar

      Colon Cancer- bowel movements off, no energy, growling an bad pains in stomach,vomiting,

      almost 3 years ago
    • Spudpn's Avatar

      Started in April with a sore lower back. As we were moving house, thought it was a strain or slipped disc. Went to the doctor and had physiotherapy but no better. Then I developed night sweats and itchy lower legs. Could not walk far without immense leg pain. Finally had an MRI in September. Diagnosed with stage 4 large B cell lymphoma and stated treatment immediately. Also had DVT in legs. Have now had four cycles of chemo and three methotrexate treatments. Waiting for first scan to determine effectiveness of treatment.

      almost 3 years ago
    • StuffNonsense's Avatar

      Vulvar cancer - itching, fatigue, unexplained sore on vulva

      almost 3 years ago
    • webbsurvivor's Avatar

      Large B cell Lymphoma. Polyps found during colonoscopy 2 years before diagnosis, said to be precancerous. Pain in back that persisted for over two weeks that was barely touched by pain (Vicodin) or flexerall pills. Any pain that last more than two weeks or is not relieved by pain pills is a red flag. Men I especially mean you! Or weight loss for no reason.

      almost 3 years ago
    • Floridagirl6's Avatar

      Anemia for about one year. Primary care doc just prescribed iron pills. My cardiologist urged me to get a colonoscopy even though it hadn't been 10 years since my first one. No other symptoms.

      Invasive adenocarcinoma- stage 2a.

      almost 3 years ago
    • Mimmi's Avatar

      April 2015 I had pain in left hip joint that didn't go way. Im in the fitness industry and know my body really really well so this to me felt a bit odd. I felt pain when running or in deep hip flexion. Had X-ray as doc said it was probably osteoarthritis, but Xray came back clear..Went to various physio-therapists and was given stretches to do an NHS refused to give me an MRI--said it wasn't urgent enough..I then paid myself to have a private MRI end of June, when pain still just got worse. The MRI showed lesions in hip left join also pubic bone and right head of femur. Biopsy then showed Stage IV DLBCL , lymphs all over were affected and it had spread to the pelvis..I had no other symptoms. Just before my first chemo session which was mid July I had my first enormous night sweat....If I hadn't made a real fuss over the hip pain, who knows how it would have turned out..Worse I guess...I think they are very slow on the uptake here in UK....Sadly.

      almost 3 years ago
    • still_fighting's Avatar

      Extreme tiredness that I attributed to chasing 2 elementary students around in their multiple activities. I would get sick really easily and it would last a long time. I had a large lump in the back of my neck on the left side that wouldn't go away and my white count was always high. Until I had my hysterectomy we didn't know it was leukemia.

      almost 3 years ago
    • barbaraanne's Avatar

      noticed my breast looked fuller, esp the left side which was always a bit smaller (like most woman). since i was working out and going thru peri-menopause I thought it was from that, hormonal craziness, wrong. Annual mammo showed suspicious growth.

      almost 3 years ago
    • ariez's Avatar

      Just a stiff neck after an afternoon nap with my granddaughter sent me to my doctor. I was given antibiotics and was better but the stiff neck came back several weeks later. This time biopsied and then was told. Non Hodgkins DLBCL Stage IV

      almost 3 years ago
    • VanAnn's Avatar

      I was reading and article that listed a system that I had that I didn't know was a system until just recently, I kept having these quick pains in the chest, just under my left breast. They would just come and go. Since I had nothing else to put them with i.e. an additional symptom of anything, I just ignored it!

      almost 3 years ago
    • robertpirtle's Avatar

      NSCLC Stage 3b....March 2015 had blood clot in leg (thought it was from my training) Had PE's in June 2015,...still no sign of cancer on scans..then in Nov found swollen lymph node in neck and was feeling a little tired after a couple half marathons. .. But no pain, no cough, except for the blood clot months I ran and worked out regularly running a couple half marathons. It was the swollen Lymph node that made the Dr stop and add up 1+1+1 to get cancer! Jan 4th 2016 was the day all the pieces came together.

      almost 3 years ago
    • GregP_WN's Avatar

      Thanks to everyone for your responses. Keep them coming please!

      almost 3 years ago
    • gretch's Avatar

      none. Found by mamogram

      almost 3 years ago
    • Bug's Avatar

      None. Breast cancer was found via breast MRI.

      almost 3 years ago
    • donnatu9122's Avatar

      Extreme fatigue, and sleepless nights. I was of menopause age and blamed it all on that. I found a large lump on the left side of my neck while showering. Stage IV papillary thyroid cancer..I also would lose my voice from coughing.

      over 2 years ago
    • wife2elliot's Avatar

      Fallopian tube carcinoma stage 2 in 2014~symptoms were right side pain lower pelvic area and my clothes didn't fit right..lots of heartburn and couldn't eat but didn't lose weight. Did surgery, chemo and never felt better at all.
      May of 2016, diagnosed with Fallopian tube carcinoma stage 4...
      Pain in right armpit was biopsied..it was persistent for 5 months prior to biopsy with pain that would wake me up at night...was told 'not all pain is cancer'..it IS Non Hodgkins Lymphoma.

      over 2 years ago
    • Jayne's Avatar

      Blood in stool

      over 2 years ago
    • mimistewart's Avatar

      this is the day i was diagnosed with breast cancer......i had a lump in my breast

      over 2 years ago
    • Dkatsmeow's Avatar

      1st symptom was I could no longer eat pineapple, a food I love & ate frequently, it made my throat burn. then a sore throat that would not go away, even after a course of antibiotics.

      about 1 year ago
    • Sparkplug's Avatar

      Extreme fatigue for a year before diagnosis of stage 3 c breast cancer

      about 1 year ago
    • MarciaLynn's Avatar

      Sorry, I posted this earlier and found a typo ~ so I had to delete it and repost since there are no edit capabilities.

      I'm new to this forum, and just saw this question. I am 1 year into my journey to survive Double Hit NLD, Stage IV. I had vague symptoms for a couple years that I attributed to aging or other reasons ~ trembling hands, fatigue, weight loss, memory issues, occasional double vision that would quickly go away and no reason was found on MRI so doctor said it was probably another form of migraine.

      I had a week or so of my face being swollen and thought it was seasonal allergies. Had an MRI that showed chronic sinusitis and was referred to an ear, nose and throat doctor. He ordered another scan. That scan showed it was cancer, and a golf ball size tumor had made its way to my forehead in a matter of days. He advised me to go to the ER at U of Michigan.

      The "lump" above my eye was a tumor that started between my brain and left eye and made its way to the outside of my skull. Pretty disfiguring!

      If interested, please go to my page for a couple pictures and (long, lol!) list of seemingly unrelated symptoms. (8/21/18)

      about 1 year ago

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