• What am I headed for as the caregiver? What can I expect as "normal?" Hospice has been of little help so far.

    Asked by Angela on Friday, August 10, 2012

    What am I headed for as the caregiver? What can I expect as "normal?" Hospice has been of little help so far.

    3 Answers from the Community

    • GregP_WN's Avatar
      GregP_WN

      We took care of both Mom and Dad in hospice care. Dad was in a nursing home and had hospice there, with a little help from the nurses at the nursing home. We were there 24 hrs a day and done most everything. with mom, we had her at home, hospice came by 3 times a week, until it got close to the end, then it was dailey or anytime we needd them. Our hospice group was great. I'm sorry your having trouble. Let them know your concerns, when we had questions we got answers, until we were satisfied. I hope your process gets better.

      about 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      Angela, what specific questions do you have, I may be able to answer more.Just let me know.

      about 5 years ago
    • GetMyLifeBack's Avatar
      GetMyLifeBack

      Every situation is different and I am not sure if there really is a normal. I definitely suggest you go to caregiver.com and caregiver.org for support as well. The National Coalition of Cancer Survivors has a great CD series that you can get for free. On the Dying Well CD they talk about what to expect from Hospice and Palliative. Hospice usually focuses on keeping someone comfortable when they are no longer able to willing to pursue aggressive treatment. Palliative care is a little bit more intensive, but again, you are trying to keep the surivivor out of the hospital. Hospice is usually considered if someone is expected to live for 6 months or so, but often people do well on hospice and survive much longer than anyone expected. It really depends on your specific situation and what complications you are dealing with. If you have a specific question, let us know.

      about 5 years ago

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