• What are the biggest issues that you are facing this week that you could use help with? What type of help are you needing....

    Asked by GregP_WN on Tuesday, November 14, 2017

    What are the biggest issues that you are facing this week that you could use help with? What type of help are you needing....

    and have you found help for that issue anywhere? We have resources lists, let us know, maybe we can direct you to find it.

    11 Answers from the Community

    11 answers
    • BoiseB's Avatar
      BoiseB

      My biggest issue this week is picking up my glasses. It is an hour and a half trek one way

      6 days ago
    • GregP_WN's Avatar
      GregP_WN

      Boise, that sounds about like us going to my oncologists or Donna's neurologist. About 2 hours one way. We make a day of it because it winds up taking all day anyway. Do you have someone that takes you?

      6 days ago
    • BoiseB's Avatar
      BoiseB

      Greg if I did have someone to take me, it would only take 20 minutes I could go by cab but that would be $20. I do get 1/2 price script but I only get $120 a month. I purchase it for $60. I am running a little low. And I can't purchase more until December 1. I always like to have a little saved for an emergency like a trip to the ER. That hour and a half includes two transfers involving a 20 minute wait each. I will have to use the cab to take me to a meeting with my financial advisor and also have to take a cab to get my flu shot. Unless you reserve a cab ahead of time, you can have up to an hour and a half wait for the cab.

      6 days ago
    • Padragain's Avatar
      Padragain

      Hello, 3 and 1/2 years after my cancer treatment for Malignant Squamous Cell Ca of the base of my tongue I still get terrible sore spots and blisters on my cheeks and my tongue. Lately I had a very sore throat which I have had before too but it last longer and now my oncologist says the next time I get it it needs to be biopsied? I also feel like my taste buds are off worse than usual too.
      Maybe this is normal. My Oncologist looks at me like I'm weird? I almost get embarrassed telling him this. Very depressed over it.
      Thanks

      6 days ago
    • Padragain's Avatar
      Padragain

      sorry I posted my question in the wrong section. ( see above)

      6 days ago
    • GregP_WN's Avatar
      GregP_WN

      @Padragain, no problem, I answered your question for what I have to offer on that.

      5 days ago
    • meyati's Avatar
      meyati

      Padragain- have you thought of adding an ENT to your team or depending on your ENT? It stirs the fire under some doctors. I can get into my ENT sooner than many oncologist. My ENT has helped me so much-He did a biopsy on the very first visit. The reading radiologist said that I had cancer in my tonsils and throat from the hiigh experimental radiation and type of rare cancer. It was all negative-I don't know what is wrong with that reading radiologist

      Your oncologist just might want to give you time to heal up--if an ENT said this- you might not feel so terrified and frustrated. My ENT worked with me and helps me to do the right things to keep from being sick with sinus- sinus infections- and ear infections. He's always patient with me and listens.

      5 days ago
    • Skyemberr's Avatar
      Skyemberr

      I'm trying to coordinate my mom's cancer care and go up to her house in the mountains to get it ready for her to come home. She has almost no clothing, no legal documents, the cabin is falling apart and just going into Ikea to get her a dresser made me so weak I was shaking.

      I have lots of help, but I'm very overwhelmed and tired. I'm not sure I can get these legal documents done, much less coordinate her cancer care, cause that's in there too. I keep telling myself to do one thing at a time, but I'm only there for four days.

      I also have to see if I can get her generator fixed and decide between a propane or pellet stove for her cabin since the main stove is out.

      I'm trying to do a living trust but it's $250 on legal zoom and the papers I need for it are missing. Legal zoom said I only have 30 days to complete it or it's cancelled. I can see getting it done over a couple of visits but 4 days isn't enough unless she knows exactly where everything is. So that's my week. Right now I'm just packing and taking lots of breaks. It's not fair to be metastatic and trying to take care of a parent at the same time with the same illness, but it is what it is.

      On top of that I'm trying to coordinate my care, but I've been stressed and sleepless. I did delegate some of those phone calls to my mother in law.

      5 days ago
    • Padragain's Avatar
      Padragain

      oh Skyember, I am so sorry. I wish you well. Please delegate what you can. You would be surprised the how many are willing to help

      5 days ago
    • Skyemberr's Avatar
      Skyemberr

      @Padragain that's very true and I've been delegating, but she's my mom and I feel very personally responsible for her well being. I'll be better after this weekend I think when I'm finally not 700 milked away and can actually do something for her !

      1 day ago
    • meyati's Avatar
      meyati

      Especially having the Legal Zoom time frame after paying them the money- and not sure where the documents are---

      Definately find all documents as quickly as possible, and lock them up. Just before my husband went into hospice- one of HIS female family members took many of his documents. My son and the middle brother said they couldn't find some of his papers after he passed in a hospice. I should have expected this.

      Go online, and request and pay for anything you might need for your mother-- birth certificate-marriage license, make sure that you have your own birth certificate in case that issue comes up--anything.

      Whoever took my documents that he needed as a military man. They went and got a Texas driver's license in my name. When he passed, they claimed my Navy widow's pension and Social Security. I had over 90 days without a penny coming in.

      I had to prove that I was physically in NM when they got the Driver's License. My son told both agencies that he was caring for his father, and everyone was in and out. That he, and Levi caught several people taking things. Before this was settled, I actually got several phone calls from these people asking me for copies of our divorce decree- and asking what some military terms meant. Basically, they weren't able to go to recruiter-base-wherever and answer questions of where my kids were born, what ships my husband had been on, what his rate was, what WESPAC, DEERS, TDY, BMC, mole, warping tug, where he had been a dock master and for what, what I had to go through for my security clearance, what year my children got their security clearance--- I told DOD that I didn't remember the year my children got their clearance but it was at the Tucson Naval Reserve station and my kids were finger-printed and told their dad would loose his security clearance if they even shop lifted. The DOD agent said-- That's it-- you are the correct person-- only a family going through a security clearence would know this.

      They talk about online ID theft, but it happens quite a lot by family members while someone is dying- they just walk in- take papers- They were locked up, but the keys were left out. Then the family close to the thief- will defend that person and lie.

      1 day ago

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