• What are you facing this week that has been a challenge?

    Asked by GregP_WN on Thursday, October 3, 2019

    What are you facing this week that has been a challenge?

    We all have challenges every week. Some are more serious than others but the most important issue of all.......Is the issue you're dealing with at the moment. What is it?

    18 Answers from the Community

    18 answers
    • CancerChicky's Avatar
      CancerChicky

      Scan report and possibly changing my chemo drugs if what I'm on isn't working. I'm a wreck.

      20 days ago
    • Skyemberr's Avatar
      Skyemberr

      I have less support this week and am dealing with paraneoplastic syndrome and recovering from chemo at the same time. It is making me tired and sick and sweaty.

      I am dealing with it by remembering the good news I got this week that I am feeling so sick because my body is actually attacking the cancer and they could see it shrinking on the scans! It is worth being sick to kick some butt! Plus I have had a lot of extra time with my kids, watching movies and talking. That has helped me get through the moments when I am feelin crummy.

      20 days ago
    • meyati's Avatar
      meyati

      I'm finishing up my cancer rounds. This week I see my ENT and the dermatologist. I drag Ryder out of the house every night about 10. He thinks it is a game, where I drag him to the door, push him out and give him a treat. He wags his tail the whole time.

      Tomorrow I take my last predisone for an unknown skin problem. I so hope the itching and swelling doesn't come back.

      My son is going into the VA next week. His meds don't seem to be working good. I'm finishing up the door. It sounds stupid, but I was scared to get up on a ladder or use a power tool. Something in me felt like a saw or electric planer would explode or something and I was incapable. It's been that way for a few months. Odd and uncomfortable.

      Oh, I was declared cancer free almost 2 weeks ago.

      20 days ago
    • GregP_WN's Avatar
      GregP_WN

      We hope you all are finding a way to handle all that you are facing this week.

      19 days ago
    • Coloman's Avatar
      Coloman

      My biggest issue is dealing with my negative nanny doctor. He seems to think he's the one with cancer instead of me. Just going to my regular office meeting is a downer. It's hard enough to keep yourself pumped up to get through each day without being knocked down again by the person that we are looking to for hope.

      19 days ago
    • cllinda's Avatar
      cllinda

      My challenge this month is getting ready for knee surgery on November 1st. I have to do all my cancer doctor appointments plus do the ones I need for this knee replacement surgery. So I have a month of challenging appointments ahead of me.

      19 days ago
    • meyati's Avatar
      meyati

      Clinda I wish you well during the surgery and follow up physical therapy. I understand that the PT is painful-and what PT isn't when we are trying to restore muscle strength and have the nerves work properly? Good luck and following winds to ease your way........

      Hint-check your PT clinic out. I went to see what exercises I would have after knee surgery (build up my leg before surgery) and they called another person in because the therapist decided I was a problem patient. I politely asked for the handout of exercises for knee surgery, and I said--Please, may I have, They never answered my question, never gave me a hand out for knee surgery. 2
      neighbors that had knee surgery recommended that I make the visit.
      but when I tried what they told me at home my back started acting up. . That didn't work-put my back out. I complained to my doctors. I've been doing OK for 2 years. I spent almost a year in my recliner from the Feb 2017 whooping cough..I'm seriously thinking of having knee replacement now, and I know there is a PT that specializes in patients over 65.

      19 days ago
    • Bengal's Avatar
      Bengal

      Totally unexpected challenge this week. I started a new medication yesterday after 2 months off the other AI. I had an adverse reaction after just one pill. After talking with the pharmacist today I found apparently this was a known possible side effect which the oncologist never mentioned to me. It scared the crap out of me last night when it happened but as long as I was breathing OK I didn't panic. God, this disease is fun.

      19 days ago
    • meyati's Avatar
      meyati

      Bengal I hear you.. right now I'm not very turned on by modern medicine---You are so lucky that you had such a horrible reaction to the pill so you don't get worse off before they belive you.

      19 days ago
    • andreacha's Avatar
      andreacha

      My niece who is an RN came to visit for a few days. On Thursday as I was on my recliner and she was on the couch, I stopped what I was saying and grabbed my chest. I had sharp pains in the center of my chest. I have nitro and took them as directed and the pains were gone! It's only the second time in 10 years I've had to take nitro. Being a nurse she was very concerned. It wasn't until after the pain stopped she was relaxing a little and then the sweats hit me. Pouring off me. Never had that happen before. She picked up the phone without saying anything to me and called 911. Since I have so many things wrong with me, they decided to keep me and performed a CT that night before going to my room. My cardiologist ordered a stress test and a heart echo for the next morning. At 7 exactly they were there to take me for the tests. The stress and echo were fine and showed no changes since I had them in 2016. Needless to say, I was relieved. When I got home I had a message on my phone from my neighbor that he would no longer be able to take me to my appointments in the next town. He knew he was scheduled for Wednesday to take me for my scans and Oncologist's visit. I still haven't found anyone yet to replace him and, if I don't, I will have to give up treatment altogether. Those were the 2 highlights of my week.

      18 days ago
    • Bengal's Avatar
      Bengal

      Google grief, that sounds so scary. Waaaaay scarier than my little bump in the road. Pleased that the tests didn't show anything. You will find someone to drive you. Check with the hospital. Mine provides a driver service for those who need it.

      18 days ago
    • meyati's Avatar
      meyati

      I'm so sorry Andreacha. That is a hard one to deal with--rides to the doctor. I feel for you. That can be a big problem in NM---90 miles to the nearest doctor---

      18 days ago
    • EmpathAgain's Avatar
      EmpathAgain

      I don't have much of a support system and one of the few people who I could rely on is moving to the other side of the country the end of this month. She's moving for work and she loves the city of Phoenix (I've never been, but maybe this will be a reason to go sometime, ha).

      I on the other hand hate the city I've moved to and keep on trying to find something I like about it, but it seems impossible. It's the last time I'll prob get a chance to move (I'm stage 4, don't have the money to, etc.), even though I don't have any reasons for why I actually want to stay herte, because I don't. So, I guess just dying alone and the crippling emptiness it that brings with it.

      16 days ago
    • meyati's Avatar
      meyati

      Empath-I'm so sorry about this. There is not anything I can say to help you. I say--I was born alone and I will die alone--I do have a small family, but I know that I need to face myself when my time comes, no matter who is next to me. Tht certainly isn't comforting to anybody else, like you, so again I'm sorry.

      16 days ago
    • Paperpusher's Avatar
      Paperpusher

      Our big thing this week is hubby is getting 3-4 hours of cognitive testing on Thursday morning to try to figure out if his increasing memory problem are from the chemo, his stroke in 2004, possible metastases or something else. He's already had a brain MRI. If it's not cancer, then we'll be happy. Don't get the results until Oct 18th though. Waiting sucks.

      16 days ago
    • meyati's Avatar
      meyati

      Hi, paperpusher. I'm so sorry to hear this. We all do the best we can, and sometimes it's not enough.

      Are you going to a Speech Pathologist? They are good for more than coaching actors to speak with a Little Rock, AR accent for the Glass Managerial, or with a snotty New England accent.

      With the problems you are having, I do hope that you are going to a Neural Psychologist. They are so accurate.

      If you haven't gone this route before, he'll probably feel upset toward the end of the session. It is so frustrating for the client to be asked over and over to repeat, do word association, remember a process, etc.

      Good luck, and I hope that time speeds away while waiting for Oct 18

      16 days ago
    • Paperpusher's Avatar
      Paperpusher

      @ meyati He's already had a screening appt with a neurologist where he had to do all those memory tests to see if further testing was warranted. She's the one who order the MRI. He was supposed to be seeing a cognitive therapist in between appts but refused to go because he felt would be repetitive and didn't feel it wasn't necessary. He doesn't have problems with his speech thankfully. He is seeing the head of the Neuroscience dept at the hospital who happens to specialize in cognitive issues.
      Thanks for the good wishes for speedy results. We're feeling positive. His MRI was done a couple of weeks ago so the radiologist report would have been there in a couple of days. We feel that if anything dramatic had shown up, they would have moved up his appt.

      16 days ago
    • meyati's Avatar
      meyati

      know it is frustrating and tedious for him, but speech pathologists often are the only help for people with brain injuries.

      16 days ago

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