• What are your biggest issues that you are facing this week?

    Asked by GregP_WN on Sunday, August 19, 2018

    What are your biggest issues that you are facing this week?

    Do you have some serious side effects that are causing problems? A new diagnosis, waiting for test or scan results? Please list your issues and what kind of help you need.

    8 Answers from the Community

    8 answers
    • Songwriter's Avatar
      Songwriter

      Some new large Lymph Nodes on both side of my Groin. My wife's Surgeon after doing her Lumpectomy said the Ultra Sound didn't show a second tumor in her breast and now needs a Mastectomy. The good news is that neither one spread to any nodes. I have refused Retuxin a monoclonal Antibody and that is the first line of defense for Slow Growing Lymphoma's like I have which is Marginal Zone, Nodal NHL and Follicular. I am told that it is not curable but treatable. When I got sepsis pneumonia two years ago ( Not from treatment ) I was told by a Pulmonary Doc that if I ever got pneumonia again I would probably not survive. One of the many side effects of Retuxin is Lung Toxicity. I'm on a Follicular Page on facebook and most not all of the patients that took Retuxin have been in the ER Multiple times with terrible lung problems. My lungs did heal up on their own and have no issues now. Other that those two worries I also have started getting another Lymphoma I never had before and that is sweating during the day and a little at night. Other than that everything is JUST GREAT...

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am so sorry for all that you and your wife are going through, Barry. Praying that it gets a lot better for you.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      Sorry for that turn of events for both of you Barry. we hope the best for you both.

      about 1 month ago
    • geekling's Avatar
      geekling

      Gee, boomer. Awful news. Is your wife going to go along with the surgery?

      What about you? Is there something you can do to add to your line of defense arsenal?
      Did you ever try the sprouts? Dirt cheap & easy to grow.

      about 1 month ago
    • po18guy's Avatar
      po18guy

      From a spiritual standpoint, embracing - even desiring - the cross I have been given to bear. Very good for humility, which I badly need.

      about 1 month ago
    • Carool's Avatar
      Carool

      Barry, I'm so sorry, too. I send you and your wife hugs and best wishes.

      about 1 month ago
    • Skyemberr's Avatar
      Skyemberr

      Radiation Pneumonitis. I hate it. I think. That after a month It is beginning to go away. Pray you never get it.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @Skyemberr, I am sorry to hear about the pneumonitis :( I had a friend who got it from Opdivo ... she said it was awful. I hope you're right that yours is beginning to go away!

      about 1 month ago

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