• What are your thoughts/experiences with Immunotherapy?

    Asked by mandybruin on Wednesday, September 18, 2019

    What are your thoughts/experiences with Immunotherapy?

    I’ve been on Ibrance October 2018. I have possibly had some progression so my oncologist is considering trying me on Immunotherapy, which has recently been approved, depending on the results of my CT, which I will be doing on Tuesday. Has anyone done Immunotherapy or know anyone who has?

    8 Answers from the Community

    8 answers
    • GregP_WN's Avatar
      GregP_WN

      There are several people on the site that are on immunotherapy. @LiveWithCancer is one that comes to mind.

      about 1 month ago
    • 2943's Avatar
      2943

      I have been on immunotherapy. I had two doses of Keytruda in a clinical trial and am down to my last two treatments of Imfinzi. Will have taken infusions every two weeks for a year. Side effects have been mild compared to chemo. Fatigue is there. Other ones not consistent...I take Claritin daily for itching. Nothing that I cannot tolerate. Would do it again if necessary. Anything specific and do you know which one? The Keytruda stomped a tumor so much a mega surgery was cancelled and it disappeared. Hugs!

      about 1 month ago
    • judithj's Avatar
      judithj

      I had stage 4 lymphoma and went through immunotherapy Nov. 2018. The treatment is called CAR-T, I had it at Stanford hospital and the product used is Yescarta.
      I was declared in remission January of 2019 and remain so to this day.
      If this is the type of immunotherapy you are considering I would be happy to tell you more about it.
      We are so lucky these options are out there!

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was on nivolumab (Opdivo) for 5 or 6 years ... I can't remember which, now. Anyway, I got on it as clinical trial and was on it until May 2019. I've been on "watch and see" since then because I started developing a new rash and had a couple of other complaints that might (or might not) have been Opdivo-related.

      Compared to chemo, Opdivo was a walk in the park for me. Better yet, it kept me alive. I was supposed to die in 4 months ... and I will soon have my 7th year anniversary.

      about 1 month ago
    • debbien507's Avatar
      debbien507

      If you don't have progression, stay on Ibrance. I've been on Ibrance and faslodex (fulvestrant) for 4+ years with no progression (knocking on wood).

      28 days ago
    • Terri's Avatar
      Terri

      I have been on Yervoy three times. I have had Stage IV melanoma since 2009. This is a permanent condition. I am still alive. Immunotherapy is a miracle. I still have recurrences. I have them cut out, so far this is possible. I don't think immunotherapy is a cure all, necessarily, but in my case I believe it has slowed it down. Yervoy was so much easier than chemo, or TIL.

      7 days ago
    • petieagnor's Avatar
      petieagnor

      @debbien507. That is great to hear. I started that regime in April. Dr. issued a new script for 100mg. I get a CT scan every 3 mos & am due next week. This is my 7th kind of chemo. I'm triple positive which can be tricky. I feel more positive about my treatment now.
      @mandybruin. Dr. put me on an immunotherapy drug for 3 mons. My little nodule in my lung grew. Each of us is different so the results can also be different. The Ibrance has shrunken the spot to nearly where it was 3 yrs ago when it was discovered. I feel blessed.

      7 days ago
    • mandybruin's Avatar
      mandybruin

      I’ve had definite progression with a larger cyst in my neck and 6 new lesions on my liver. I’ve since started Immunotherapy but had to stop for a bit due to getting hospitalized for what turned out to be extensive blood clots. I started having acute symptoms the day I started this new treatment so that’s not the cause. I found out I’m only 10% ER+, which is considered triple negative and that’s probably why I wasn’t really benefiting from Ibrance (or Tamoxifen prior to recurrence or Faslodex).

      7 days ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more invasive (infiltrating) ductal carcinoma questions.  Also, don't forget to check out our Invasive (Infiltrating) Ductal Carcinoma page.