• What challenges have you faced during your cancer care, that you wish were different, and that you would improve if you were world ruler?

    Asked by FreeBird on Sunday, October 14, 2012

    What challenges have you faced during your cancer care, that you wish were different, and that you would improve if you were world ruler?

    If we lived in your perfect world, plus cancer, what would you like to see as your ideal care? or are you satisfied with your health care? Did you have problems with transportation? waiting too long? long travels? patient education? lack of a personal approach, or good bedside manner? did you feel rushed? can't afford something? do you feel lost in the factory?

    What are your complaints, and what would you do better if you were in charge? What was done particularly well if you are satisfied with your health care? Maybe your feedback will help shape the quality of care for some other people out there.

    4 Answers from the Community

    4 answers
    • SueRae1's Avatar

      The cost of care. Even with insurance the co-pays for some tests and medications are high. And it is so complicated to find the right resources for help. Individuals and families going through this should not have be jumping through hoops, begging, etc to help from the Medical system, trying to figure out what plans to go on, etc. One Phrama company lost my paper work twice. Another doesn't offer "assistance" for a drug I self inject, because it's protocol is for it to be given in a hospital setting. According to my oncologist, research and the patient info I got with my first set of shots (co-pay $100 a shot), is that the vast majority of people who use this drug self inject at home. My oncologist doesn't want me back down at the hospital/infusion center for 3 days after my treatment. I need to be home recuperating, not stressed out - by travel and waiting.

      about 4 years ago
    • FreeBird's Avatar

      I hear you. It gets expensive even with insurance.

      about 4 years ago
    • teddyfuzz's Avatar

      I am so thankful to have insurance and to be able to choose my own doctors. The main problem that I had was with pain medicine.There is so much publicity nowadays focusing on prescription drug addiction that doctors seem to be scared of prescribing real pain killers. I am not a drug addict but hydrocodone doesn't do the trick for me. I HATE being in pain but I hate being treated like a criminal if I ask for oxycodone. My plastic surgeon told me point blank - "I don't prescribe that". If it wasn't for my oncologist prescribing Percocet while I was going through chemo, the bone and joint pain would have been excrutiating. Thank God that some doctors still actually care. Stop hassling patients about pain meds and prescribe what works. Being in pain is no fun.

      about 4 years ago
    • FreeBird's Avatar

      I absolutely agree with you on the pain medication. It's very easy to get the prescription for dad, with his cancer. The hard part comes when I go to pick it up. No one will tell me over the phone whether they have morphine in stock, and I have a difficult time getting it at pharmacies. I tried buying his prescriptions by mail order and was informed that his insurance will not cover these prescriptions by mail. I drove for four hours looking for morphine. The last two times, we have hit it lucky with one Walgreens, that has had it in stock, but once I had to drive back over to the cancer center to have the prescription rewritten to the dosage they had in stock. One small pharmacy in the next county would not fill the prescription anymore unless he transferred all of his other medications over. Three small pharmacies looked at me sideways like I was a drug addict, because we're forced to shop around and these pharmacists are not familiar with us.

      It's too bad that there are so many drug abusers that it makes it difficult on people who have a legitimate need. If I had to change something, I would put a pharmacy in every cancer center and make the drugs that are hard to find available there, where the staff knows exactly why there is a need for those drugs, how much is being used, and when it's appropriate to prescribe more. OR locate a pharmacy at the local police station, to scare away abusers.

      about 4 years ago

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