• What do you tell yourself to keep sane while waiting for a bone marrow transplant?

    Asked by MelMom on Wednesday, March 6, 2013

    What do you tell yourself to keep sane while waiting for a bone marrow transplant?

    9 Answers from the Community

    9 answers
    • SueRae1's Avatar

      Try to pamper yourself. If you can get healing massages and energy work both are really helpful in calming you down. See lots of fun movies. Ask for a referral to speak to someone who specializes in treating cancer patients you may also want to investigate taking anti-anxiety meds. Senidng you prayers, hugs and healing vibes.

      over 3 years ago
    • Tracy's Avatar

      Do what I do on this site. Answer the questions that you can and help by sharing your experiences. It helps me to give back in ways that I can no longer do in person as easily. Keep your spirits up by spending as much time as you can with friends, doing the hobbies that you can and find ways to laugh. Feel free to contact me, I am kind of on hold as well. Tracy

      over 3 years ago
    • clemsoncash1's Avatar

      Distractions worked best for me. My counts had recovered somewhat while we were waiting for transplant so my girlfriend\now wife and I would get out of the house when we could. Matinee movies, late lunches, and walks were good distractions. I read alot of books. it wasn't good for me to get on message boards a whole lot because I always ended up reading about complications and what could be potentially negative out comes for me. I jsut stayed incontact5 with the transplant center and ther donor board contact was a saint. Here's hoping you dont drive yourself crazy.

      over 3 years ago
    • ter303's Avatar

      Well, I kept my self busy doing things I liked and loved. Stayed a way from peope that brought me down. I only talked about it with a few people. I had to wait 5 months for BMT. I was finding info online that was freaking me out. My Oncoligst told to me to stop because because the posting were mostly from people with bad experinces. There will always be someone worse off than you. Keep a positive Attitude. I continually counted my blessing. Kept a gratitude journal - that helped to look back on when I had those days when it was hard to find a blessing. Good luck.

      over 3 years ago
    • LisaLathrop's Avatar

      The hardest part for me was the WAITING! I wasn't anxious or anything becuase I had what I considered my perfect donor my sister and 100% match. She came out a few days before and we had lot of fun reminiscing, watching movies, talking to our Mom on the phone etc. Even though she was in a lot of pain from the neupogen shots, we were able to keep her mind off of it. I was able to visit her in the apherisis room where she was donating and acted as the go between between she and the nurses. She was a great donor - got it done all in one day. And the BMT (or stem cell transplant) was a piece of cake - litterally my head nurse brought in a 1 serving cake to celebrate the start of a new life and we all gathered around and watched as my sister's blood was given to me just like a transfusion. We also enjoyed puzzles and chatted for days until they were done....by the time the puzzle was done, it was time for the transplant. Sit back relax and visit with who ever you can....before you know it, you'll be on your way to a new life with a few bumps in the road...but promise, those bumps will be small compared to the chemo you had to endure prior to the transplant.

      over 3 years ago
    • AlizaMLS's Avatar

      Dear MelMom,

      The best thing is anything that distracts you, especially anything you enjoy. Netflix, answering questions here, visits from friends (be sure they're in good health), I know of a virtual bookgroup (Im a retired Medical Librarian) called www.goodreads.com. You can track titles, write reviews, join small genre bookgroups, find virtual friends, find titles, and read others' reviews. Also, I love crossword puzzles as well as Scrabble (if you have others who can play with you).

      I hope your wait for your transplant isn't a long one. If you need other ideas, feel free to message me-I've helped lots of people with everything including term papers on all kinds of subjects.

      Warm wishes,

      over 3 years ago
    • VickieA@StF's Avatar

      You already have some great suggestions. I try to encourage my patients to enjoy the things they enjoyed prior to becoming ill with a life threatening illness. Transplant process will be difficult and there will be a number of restrictions including avoiding crowds and certain foods. Try to distract yourself with activities and things that my be limited during the transplant and post transplant. Enjoy time with friends and family.

      over 3 years ago
    • MelMom's Avatar

      Thanks everyone, I have taken your advice and been trying to keep occupied. It's hard all this waiting, I just want to get it done.

      over 3 years ago
    • ceday's Avatar

      I just pray and leave it to God, I know it wil happen in his time , not mine.

      over 3 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more chronic lymphocytic leukemia (cll) questions.  Also, don't forget to check out our Chronic Lymphocytic Leukemia (CLL) page.