• What has surprised you the most about your cancer experience?

    Asked by Carol-Charlie on Tuesday, November 6, 2012

    What has surprised you the most about your cancer experience?

    I went to the doctor for back surgery... My back surgeon found the cancer. But my biggest shock, when after my first PET CT Scan came back a month or so after surgery showing NO CANCER AT ALL.

    13 Answers from the Community

    13 answers
    • nancyjac's Avatar

      Well, hindsight being the wonderful thing that it is, what surprises me most is how quickly the past year has gone by. Some where around my 3rd or 4th chemo treatment back in January, I remember thinking ugh, this is will never end. Now it is almost the end of the year and I finished not only chemo but surgery and rads and have already be on an AI for 4 months.

      almost 4 years ago
    • Peroll's Avatar

      After 8 years

      almost 4 years ago
    • Peroll's Avatar

      I'll try again and hope I don't it the wrong key. After 8 years of fighting cancer and seeng all of the effort in research is the amount unknowns and missinformation that is out there. It suprizes me that we don'tknow more about what causes cancer, how it spreads and how to kill it. I am amazed at the work being done and the progress being made and I am proably impatient for a cure. I am also amazed at the number of people that get missinformation or bad advice from friends and places like the internet. I am amazed at some of the things people have told and continue. Hopefully sites like this one will be able to help combat the missinformation.

      almost 4 years ago
    • FreeBird's Avatar

      sticker shock on the price tags.
      Almost three years ago, my dad had his first experience with Neulasta--- one of the drugs that helps boost your white blood cells. It was billed at over $8,000. per injection, times four.

      almost 4 years ago
    • ticklingcancer's Avatar

      I was surprised about how many people actually care. Friends, Family, they came from everywhere to help me out in so many different ways.

      almost 4 years ago
    • JudyS's Avatar

      How up and down my feelings weresince the treatment process is over. I know I'm blessed but I just can't seem to let go of fear of it coming back - I guess I'm surprised at how hard it is to let the fear go once and for all. I'm not sure I ever will let go of it completely and that saddens me and surprises me.

      almost 4 years ago
    • Nancebeth's Avatar

      I was also surprised by how many of my friends were willing to do anything and everything I needed. I have no family so my friends really stepped up and helped me through my surgery, my chemo, my next surgery and everything else.
      I was also surprised at the price tags as well. My 2 day hospital stay for my mastectomy and reconstruction was $135,000!
      Most surprising of all though was just hearing I had cancer. I was a healthy young woman...breast cancer doesn't happen to people like me, or so I thought!

      almost 4 years ago
    • SpunkyS's Avatar

      I too was surprised by the support I received from past coworkers, friends, family, and friends of my family.
      The other surprise is that while I would not have chosen cancer, there have been many blessings in the experience that I would not want to lose and maybe never would have had without cancer. Strange but true.

      almost 4 years ago
    • SueRae1's Avatar

      The support of my friends and family, and how wonderful and caring my medical team has been. One of the nurse oncologists called me the day my DD graduated college in May to congratulate us.

      almost 4 years ago
    • packerbacker's Avatar

      Congrats on the NED (no evidence of disease)! I think what has surprised me the most was when my doctor told me after back surgery, that I had metastasis to the bones. Now, 4 months out, I still have back pain, but I'm not sure whether it is still from surgery (extensive), or bone pain (mets found in the hips). I'm told I'm treatable, not curable. I was also told I had 2-3 years left, which shocked me. So, it's a toss-up, both suck. I'm sorry my post isn't happier.

      almost 4 years ago
    • cancervivor's Avatar

      The first experience, the thing that suprised me the most was that I could have CANCER! I mean, I was young, healthy, didn't even have a family dr. I didn't get sick. Then I passed just getting sick in the fast lane and went straight to cancer.

      The second time, when it came back, was how much people, including family, friends and friends of friends that came out to support. It made me feel comforted just knowing people cared.

      almost 4 years ago
    • Harry's Avatar

      My brothers were awesome. I called them to tell them that, because I have a form of NHL that means they have an increased risk of NHL. A couple of them immediately demanded to know if I needed a bone marrow transplant and should they get tested for compatibility. No, I don't, and I hadn't asked. But they wanted to be sure that I would have that option if needed.

      I am still in awe that their very first reaction was, "What can I do to help?"

      almost 4 years ago
    • denisec's Avatar

      The outpouring of support from family and friends was mine!

      almost 4 years ago

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