• What if a person chooses not to have radiation and chemo for their Glioblastoma? I know the Drs say 6 months? What are the end stages like?

    Asked by Deb76 on Tuesday, January 29, 2013

    What if a person chooses not to have radiation and chemo for their Glioblastoma? I know the Drs say 6 months? What are the end stages like?

    Mom is 76 and has multible health issues. She is living in a nursing home in a wheelchair now and needs assitance with eating and dressing. She is on a low dose steroid which is helping some with her daily functions. Surgery was January 3rd with Glioblastoma grade 4 diagnoses.

    4 Answers from the Community

    4 answers
    • Peroll's Avatar

      Deb, Sorry to hear about your mother's condition. Let me first address the time left question. The 6 month is just an estimate of an average and is based on data that is at least 5 years old. That means it could be shorter or longer, in some cases much longer. If she/you choose not to have further treatment then hospice or palitive care will be used to keep her comfortable and minimize pain. You can learn more about this by consulting the social worker at your mother's nursing home who can put you in touch with the people that provide the care and they can answer most of your questions.

      If your mother has dimentia it will be hard for her to understand the treatments and make them more difficult to adminester. My 94 year old MIL has dimentia and used tio ask if I was better everytime I came home from chemo despite the fact that I flet terriable. She was unable to understand the concept of cancer and that chemo made you feel worse to get better in the long run. I don't think she would have been able to sit through more than 2 hours of chemo let alone a 10 hour session. I had to take her to chemo a few times and it was always a chore to watch her and get chemo.

      I know that his is a difficult and heart wrenching decsion that you and your mother have to make. Take time to talk to all of thise involved and when you feel comfortable with a desision make it and do not look back. Good Luck and you are in our thoughts and prayers.

      over 3 years ago
    • carm's Avatar

      Deb, I can answer your question but not on this forum. You can contact me from my homepage if you want that answer, Carm.

      over 3 years ago
    • misha41510's Avatar

      Hi Deb,
      I'm sorry to hear about your mom. My mom passed away from stage 4 Gliosarcoma several months ago. She chose to do treatment, so I'm not sure about your first question.
      Your second question about the end stages really depend on the location of the tumors. My mom's began in her right frontal lobe and spread throughout the right side of her brain. The symptoms started as mostly cognitive and progressed to physical as the cancer progressed. At first, she was having trouble planning or thinking ahead or making even minor decisions. Later one she had balance problems (not to mention the seizures). And later on she lost movement and feeling in the left side of her body so she couldn't walk anymore. Eating became difficult because the left side of her mouth would open all the way. Also around the same time, she stopped talking. Not entirely, but communicating verbally became very difficult for her. As did writing and drawing. Sometimes she would just look at you with big eyes, just staring, almost like a child. you could tell she had something to say, but she couldn't say it. As it got closer to the end, she get weaker and started eating less. One morning, she just didn't wake up. She was in a coma-like state for 10 days before finally passing away. I've heard that most people don't last that long in that coma-like state. It's usually only for a couple of days. But I think she was really holding on.
      I hope this was helpful and will prepare you for your mom's end of life. I know it can be a very emotional and stressful time. I wish you the best.

      over 3 years ago
    • Deb76's Avatar

      My mothers tumor is in her right front temperal lobe. She now has short term memory loss, some talking difficulty, incontinance, can not walk but a few steps and somedays no walking,mood swings and some swallowing issues. Just wondering how long she has to live this way. Horrible!

      over 3 years ago

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