• What is it like to experience mantle radiation?

    Asked by RockTom on Monday, March 25, 2013

    What is it like to experience mantle radiation?

    This has been mentioned as a treatment for me.

    2 Answers from the Community

    • carm's Avatar

      Hello, I am an oncology nurse and hopefully someone will respond to your question regarding their personal experience. Until then, I have attached a link that might help answer some questions for you. Best of luck, Carm RN.


      over 3 years ago
    • carolk2222's Avatar

      The booklet that Carm attached was good. I read through it. I had radiation 31 yrs ago so I know it is given differently than back then.
      I had a raw throat not just sore because the throat was burned. I had a horrible taste because of that. I had to eat soft foods because it hurt so bad to swallow.
      I also had bad burns in my armpits. They gave me a cream for that.
      I lost hair on the back of my head where the radiation hit.
      I was extremely tired with it plus I was a mother of a 9 month old too at that time.
      I took medication for nausea prescribed by my oncologist just before I went in for my treatments that would hit my abdominal area and make me feel sick to my stomach.
      Like I said this was 31 yrs ago so things have changed in medicine as they have learned the affects of radiation. I was told by my former oncologist that how they give the radiation is different.
      My radiation caused me to have muscle deterioration and dropped head syndrome now. It was slowly progressing so I didn't realize what it was. It is rare and can show up 3-30 yrs post radiation. This was one of the affects with the high dosage given back then.
      The benefits out weigh the bad. I would have died if I didn't have the radiation. I am just thankful that I didn't have to have chemotherapy too. The radiation did the trick for me.
      Best of luck. Carol

      over 3 years ago

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