• What is smoldering multiple myeloma?

    Asked by downbutnotout on Wednesday, April 10, 2013

    What is smoldering multiple myeloma?

    I have seen this term used, but don't quite understand it.

    6 Answers from the Community

    6 answers
    • carm's Avatar

      When a disease is described as "smoldering," it means that the patient is asymptomatic or showing no symptoms of the disease. Best of luck to you, Carm RN.

      over 5 years ago
    • Debio's Avatar

      When I first was aware of my diagnosis, I began researching everything I could on Multiple Myeloma. It got me crazy. In 2010, most of the information I found told me that the average life expectancy was 2 years. I was 50 and not ready to contemplate my mortality. Every time I saw my doctor the anxiety level was off the charts. I read every research paper I could find on research and experimental treatments. I did not understand most of what I read so it would make me more anxiety ridden and panicky. Finally I told my doctor about the amount of time I spent looking on the internet. He informed me that most of the info that is there is out of date. It is his job to stay on top of new proceedures and although he welcomed my questions, my research was not helping me, it was hurting me. It comes back to your physician. Are they experts on MM or not? To you have confidence in them? Your job is to stay positive and as healthy as possible. Of course smoldering myeloma is just as it seems. There is no outward signs of myeloma, it is there, but dormant.

      Take a breath. There are people with MM who have live 30 years with the disease. I hope I am one of them.

      over 5 years ago
    • Gma's Avatar

      I agree with you. Everything on the internet was depressing so I dont go there. I do read the info from MMRF becsuse Ksthi Giusti is a myeloma pt and her foundation does so much for myeloma.

      over 5 years ago
    • Charlieb's Avatar

      In 2007 they determine I had proteins for MGUS. At that time they said there was a chance I would get cancer (MM). In August of 2011 the results showed I had smoldering MM. The doctor told me the proteins where at a level which meant I would get MM. Carm is correct in that I had no symptoms, but I did have cancer. I am not sure if Debio is saying don't spend time researching or what. I started my research in 2007 and never saw anything about 2 years. I feel that researching and discussing with my doctor have been helpful. For example, if you were told you have smoldering multiple myeloma it means that they discovered your cancer early. This is better then having symptoms and then discover you have cancer.

      keep asking questions and talk with your doctor.

      over 5 years ago
    • Therose's Avatar

      Have ever got any information from Leukemia and Lyphoma Society. They provide online seminars with latest treaments, current clinical trials, and chat room once a week. I attended a cancer support group In Redondo Beach, Ca. A member of the group had asymptomatic MM she stated at this time she had not been prescribed any treatment but just watch and see. It seem that treatments and maintenance is depend upon the individual person health and what is best in their particular case.

      over 5 years ago
    • trinlab's Avatar

      I was diagnosed with MGUS almost two years ago and my most recent blood monitor shows the numbers remain steady, slow mover this stuff is, the worst of the M spike has been the Peripheral Neuropathy, wow, neurologists point their fingers at the m protein as the cause, hematologist disagrees, any others out there with this dilema

      19 days ago

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