• What is the best piece of advice you have received after surviving uterine cancer and surgery like a hysterectomy?

    Asked by HardyGirl on Tuesday, May 21, 2013

    What is the best piece of advice you have received after surviving uterine cancer and surgery like a hysterectomy?

    2 Answers from the Community

    • Ivy's Avatar

      I honestly haven't been given any advice that I thought was particularly good. Each cancer survivor has to find a direction post-treatment. We also have to try to be patient in our recovery from the extremely harsh treatments that most of us have had. Generally speaking, people who have walked this road understand how much the treatment and after-effects can vary, and I've found these people to be wisely hesitant to assume they know what is right for someone else. And honestly, people including family, who haven't been down this road might offer advice but probably the recipient wouldn't think such advice is useful. The surgeons and radiologists are good at predicting the next stage in recovery, and the oncologists much less so, but such specific medical advice doesn't seem to answer your question. I think we each have to find our own way, and this is one of the factors that adds more poignancy to our personal journeys. I had hysterectomy, chemotherapy, and radiation, but probably the answer is similar for people who have had other surgeries followed by chemo and radiation.

      That said, many of us on this site can offer our own experiences with regard to specific procedures and/or side effects that you might be facing. Regarding hysterectomy, I had robotic surgery, all the "parts" removed. I had such a terrific surgeon that I walked out of the hospital the next day. The surgery required time to overcome internally, but my recovery was better than I expected. So to anyone facing surgery, just go to the most experienced surgeon at a facility that routinely does this surgery, and your odds of a good surgical outcome are excellent. Don't worry about the headlines of surgical problems as long as you have chosen the right place for your operation.

      Hope this helps. Perhaps some one else will have a better answer.

      about 5 years ago
    • Cindy's Avatar

      The best advice is for people with gynecological cancers is to have the surgery done by a gynecological oncologist (i.e., one that specializes in both gynecology and cancer). I had ovarian cancer that spread to my uterus. I had an abdominal hysterectomy and oophorectomy (removal of ovaries and fallopian tubes) and removal of a tumor the size of a grapefruit. Mine was done by an expert surgeon who was able to remove all the cancer that he could find. I was in the hospital for almost a week and I took about 3 weeks off from work after that to recover and also avoided stairs for 3 weeks. I probably should have waited another week before going back to work because of backaches I think that were due to the need to build my abdominal muscles back up. Due to my cancer, my doctor would not let me have anything with estrogen in it. So, I had deal with the hot flashes without any hormone replacements. I learned to dress in layers.

      about 5 years ago

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