• What is your experience with Xeloda? for Stage Iv breast cancer?

    Asked by janeti on Friday, December 28, 2012

    What is your experience with Xeloda?
    for Stage Iv breast cancer?

    Cancer has metastatic to blood, lymph & skin. Have not started Xeloda (Jan 1) Already have Taste Bud problem, finger nail tips have fallen off, drymouth, breathing problems and lung infection.

    3 Answers from the Community

    • Gena's Avatar
      Gena (Best Answer!)

      I took Xeloda for almost a year. It stopped working after 6 months. I took one pill a day and had no side effects. I am now back on Abraxane and have taste bud problems and finger nails are a mess. I don't know if dosage could be decreased in your case, but I would talk to your oncologist about it.

      almost 4 years ago
    • Tami's Avatar

      I have stage IV breast cancer and I took Xeloda for 6 months. I worked for me, I only stopped because I had to have a hysterectomy. I had only minor hand/foot disorder, mostly in my feet. I used lots of moisturizer which seemed to help. During the 6 months I was on it, it cleared up the cancer in my lymph nodes and there was no progression of the cancer that I had in my bones. After my surgery my doctor put me on Femara but said that I could go back on Xeloda in the future since it did work for me. It is always scary starting a new medication, I pray Xeloda helps you and that you don't experience any side effects. From what I remember, I don't think Xeloda will effect your taste or nails. Drymouth maybe, but I don't think it should effect your breathing or lung infection either. Be sure to tell your doctor of any side effects, the dosage can be adjusted if the side effects are bad. Take Care!

      almost 4 years ago
    • mdc's Avatar

      I started Xeloda in March, 2012. I finished my 12th cycle Christmas day. I took two pills in the a.m. and 3 in the p.m. (2,500 mg total). Initially I was on the drug for 14 days and off a week. Later we went to 14 days on and 14 days off. I too moisturize my hands and feet. My nails do not look wonderful but have looked worse when I was on different chemotherapies. I did experience GI issues. I was in the bathroom a little bit more than normal. My hair is still on my head which is so nice after not really having a full head of hair for a couple of years now. During the last visit with my oncologist he spoke about switching to an anti-hormonal drug to give me a break from chemo. (Side Note: On this drug my bone mets resolved and visible lymph node tumors resolved. This was visible ona Pet Scan dated June, 2012. The scan showed a little activity still present in the lung and under my right arm near the scar tissue. I had a thoracentesis of both lungs done last March, 2012. This past Wednesday a thoracentesis was done on the left side only.)

      almost 4 years ago

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