• What Next for someone told they are cancer free

    Asked by Buddyritz on Tuesday, January 8, 2019

    What Next for someone told they are cancer free

    My wife had 6 chemo treatments. After the second she was told there was NED. We were surprised but cautious about the future. We continued treatments until the end. We now are scheduled to get a PET and CAT scan. She is feeling the effects of all the treatments-very fatigued and unsteady. She has always had a bad back which complicates things. She is using a walker and for long treks a wheel chair. Should we be celebrating or continue to be cautious? The doctor said there would be no follow up treatments if the scans show NED. Thanks in advance for anyone who responds. JOE C.

    6 Answers from the Community

    6 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Both, celebrate and continue to be cautious. There are survivors who never reach NED and are on maintenance for months and years after frontline chemo, I celebrated with my husband when my post chemo CT scan showed NED. Your doctor said NED however and did not use the term cured. Going forward stay vigilent. Follow up blood tests and exams are common for sirvivors, especially the first two years post chemo. About your wife’s fatigue , this is a very common side effect with chemo. Her strength should slowly return. It is important for her to keep slowly but steadily increasing her daily activity to tolerance . Getting up, out and about, is often the best medicine once treatment ends. Wishing you continued better days ahead.

      2 months ago
    • Gumpus61's Avatar
      Gumpus61

      I am a care giver and we have had the NED declaration 4 times in the last 5 years. That cycle repeating has left us with a simple philosophy. The Bucket list is simply a life well lived, so we live well awaiting the day they say there is nothing more we can do. Perhaps NED might mean this to you. Cancer will not take you this day, this month, this Year........who gets that guarantee ? Approach what is next that way and have a great year !

      2 months ago
    • macfightsback's Avatar
      macfightsback

      I have been through having cancer, receiving chemo and then being declared NED twice. I am cancer free now ( as far as I know.). Many people feel weaker and not back to their "normal" as it was before cancer. It takes time to get your strength back. This happened to me both times and I felt more like my old self after a couple of months. I agree with cancer there is never a guarantee it will not return sometime after treatment. I held my breath for 2 years when I was cancer free, fearing reoccurrence. Then it came back last year. I won't do that again! I suggest you both celebrate her NED diagnosis. Start making some plans for fun activities you enjoy. You can start small. I put bird feeders up in my front yard because I love birds. I do some very amateur photography of animals and plants. Next week I am off to a 5 day winter vacation. I have a companion Siamese cat who gives me joy everyday. I treasure good times spent with family and friends. Carpe Diem! Seize the day. Yes, certainly continue to be vigilant regarding your health. Go to your follow up appointments. Report any new symptoms. Yes, sometimes what seems like a symptom of reoccurrence is not. I decided I had melanoma in my left foot because it was a strange lesion I had never seen before. It must have been an insect bite because it disappeared in a week. Your life is changed forever once you are diagnosed with cancer. The secret is that information should not prevent you from finding joy in your life.

      2 months ago

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