• What Now?

    Asked by Cathy58 on Friday, March 22, 2013

    What Now?

    This is a new diagnosis, we do not know the stage yet, the spread of cancer was discovered during what was to be a Whipple procedure but that could not be done due to the spread. Jill is recovering now from the surgery that was done, I am not sure when oncology will be involved. Bigger issue is that Jill has been through a variety of health issues beginning in December, including a hospital fall causing an ankle fracture and internal bleeding. I fear that she has lost hope and motivation to go through cancer treatments. Since this is all new to me, what can we expect next?

    2 Answers from the Community

    • SueRae1's Avatar

      Sending the two of you hugs and prayers. Jill is very emotionally fragile (and I suspect you are too), and needs time to integrate everything. Speak with her surgeon to find out what, and plan for the next steps in her treatment. you may also want to get a 2nd opinion. i am a strong believer that a another pair of eyes can only help you put together the best plan possible. It also helped me feel more comfortable with my treatment plan when I was told it was exactly what she would do.

      You also may want to consider getting a referral to a therapist that specializes in treating cancer patients and their caregivers. I see one as needed, and find it very helpful in sorting through my feelings of anger and depression, and moving on. I saw mine for a again for 12 sessions after my breast cancer metastasized in May of last year. I now get a booster session every 4 weeks.

      Wishing both of you the best of luck, please keep us posted on Jill's progress. And remember to take care of yourself.

      over 3 years ago
    • myb's Avatar

      For my diagnosis of colon cancer from colonoscopy at age 50, it was surgery to remove the mass in colon, surrounding lymph nodes and appendix as in vicinity. Pathology showed cancer in 6 of 17 lymph nodes, so needed to do 12 rounds of adjuvant chemo with 5fu, Oxaliplatin and Leucovorin. The Leucovorin was stopped after chemo 1 due to reaction of severe mouth sores. The Oxali was stopped during chemo 11 when had reaction. I hear most people react to Oxali mid way through. Everyone is different.

      I suggesting logging your questions to your docs in a notebook, so everything is in one place. get copies of reports from docs to carry with you if you decide to go for 2nd opinions. I had 2 appointments for surgeon but when met with 1st, I knew she was it. I met with 2 oncologists, one local and one at Upenn. Once again when I met with Oncologist at Upenn, I knew she was it.

      over 3 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more gastrointestinal stromal tumor (gist), colorectal cancer questions.  Also, don't forget to check out our Gastrointestinal Stromal Tumor (GIST), Colorectal Cancer page.